rheumi / advice please?...... im back!

Discussion in 'Fibromyalgia Main Forum' started by bratqb, Jul 21, 2003.

  1. bratqb

    bratqb New Member

    Hi

    Finally my doctor has agreed to send me to a rheumatologist, ive been asking him for months. He tells me that they wont be able to do anything for me as most rheumys dont belive in fibro, and that they will not give me any pain-relief. I said i didnt care, i just wanted to be seen by one, so said he will refer me..

    Im so nervous.... Ive heard so many horror stories on here where people have been humiliated and left feeling really awful. Ive asked my partner to go with me, i have no idea what to expect. What will he do? What should i say? Can anyone give me an idea what i should expect?

    Thanks in advance, soft hugs to you all

    Bratqb
    xx




    [This Message was Edited on 09/16/2003]
    [This Message was Edited on 09/16/2003]
    [This Message was Edited on 09/16/2003]
  2. tjlibby

    tjlibby New Member

    Do you have a list of symptoms, medications, he will order blood work, I have a great rheumy she dx'd my Fibro. Do take notes why you are there. Its been a long time since my first visit to my rheumy. So you will get other people to help you out with questions. Go with a positive adittude. Good Luck.. Teri
  3. Annette2

    Annette2 New Member

    My suggestion is not to go in defensively. Don't assume this doctor won't "believe" in fibromyaglia. I know a lot of people here have horror stories, but that doesn't mean that you will. Tell the doctor what your symptoms are and what's been done in the past. After he/she examines you, ask them what they think. When I went to my rheumy, I told her I thought I had FMS and my family doctor wanted her to confirm it. She did the tender point exam and diagnosed me right away. My symptoms were too obvious to be ignored. If this doctor doesn't treat you with respect or help with meds, just don't go back. They don't deserve your money anyway. Look for another rheumy or pain clinic. I hope this one works out for you though!

    Annette2
  4. bratqb

    bratqb New Member

    I appreciate the advice, ive waited so long to see a rheumatologist. Im very nervous abvout it, but relieved that its finally going to happen!!

    No doubt, it will be a while before my appointment date comes through, by then, i will have loads of advice and tips on what to say and what to expect.

    Thank you all so much..

    Big hugs to you all


    Bratqb
    xx
  5. bratqb

    bratqb New Member

    Hi

    My hospital appointment is tomorrow morning at 9am. I made sure i got an early appointment as i wanted him to see me at my worst!! Im very nervous about it, it seems to have come round really fast..

    Im gonna make some notes tonight, as my memory is really awful and i know i will forget lots.. wish me luck pleaseeeeeee

    Soft hugs

    Bratqb
    xxx
  6. toots2

    toots2 New Member

    I saw a rheumy for my diagnosis but aside from that she did nothing for me. Most rheumy's will not prescribe pain medication. Mine had no problem with me taking them but wanted me to see my primary care physician or a pain management dr. to prescribe them. I now go to a pain specialist for my pain medication and get my antidepressant and trazadone (a great sleeping medication which is non-addictive and safe) from my family dr. If I had gotten my antidepressant and sleep medication from her that would mean I would have had to continue seeing her about every three months for refill scripts and I didn't want to do that. I am one who believes that the only thing that helps with the fibro pain is pain medication. Of course, being on an antidepressant and taking something for sleep is also a must. Depending on what other symptoms you have, you might need other medication too. Hope this helps. Toots
  7. bratqb

    bratqb New Member

    yes that does help. Im not on any pain meds at the moment, but im not expecting the rheumi to give me anything. Just want a once over so to speak lol...

    In the last few months ive developed bad pain in both wrists and thumbs. Plus ankle pain and elbow pain too. All new symptoms, so im interested what he has to say and if he can give me some advice on how i can deal with the pain. Meds would be a huge bonus but i wont hold my breath for them LOL...Im barely hanging onto my job right now, any advice he can give me will help greatly... ohhhhhhhh im so nervous about it!!!!!!!

    Thanks

    Bratqb
    xx
  8. twin2

    twin2 New Member

    My last reply vanished so here goes again....
    I had an appt. with a new rheumy last week. I expected the worst --- short visit, more blood tests, more ineffective meds. I couldn't have been more wrong! He was great! He *attentively* listened to me and seemed to understand what I was going through. I told him that a good night's sleep helps more than any pain med has so far. He prescribed Desyrel for sleep (works wonderfully) and Effexor which is a low-dose antidepressant. I feel considerably better this week.
    I hope you are pleasantly surprised during your visit.
    I found that making a few lists really hepled me out. I listed my symptoms, meds and supplements I am currently on, other meds I tried and questions to ask him. That way I didn't miss anything...well, not TOO much.
    Best of luck tomorrow and let us know what happens!
    Cindy
  9. Annette2

    Annette2 New Member

    I wish you luck on your rheumy visit! By the way, my rheumy DOES prescribe my pain meds. She is quite good about giving them to me too. She has NEVER suggested I am a "drug seeker". In fact, she gets upset if I don't take adequate pain meds. So not all rheumys are horrible people. As I said before, don't go in being on the defensive. You are entitled to above-adequate care!!!!

    Annettew
  10. bratqb

    bratqb New Member

    Phew its over...

    Just got back and not sure how im feeling actually. Feling a little frustrated i think. He did examine me and said there wasnt any inflammation anywhere, and that he wasnt sure what he thought about firbromyalgia. He didnt say i had it, but didnt rule it out either!!!!!hmmmm

    He took blood and urine samples and he has sent a letter to my doc recommending a new antidepressant to help me sleep better. He said i need about 6 months of physical therapy on my knees cause he says theres not nuch muscle there at all. Plus he has ordered a wrist support for me and some 'arch support insoles' as he thinks my arches have fallen. What does that mean? I thought only old people had thngs like that.. will they return to normal???

    He said he will refer me to a pain clinic if i still feel bad in a few weeks and also will inject some of the most painful areas like my wrists and elbows..

    Hes testing me for hepititis and lupus he said.I asked him about me working as im struggling with the pain and he said it was my choice, i had to decide if i want to continue or not.

    Thats about it, thank you all for your wonderful advice!!

    Soft hugs

    Bratqb
    xx

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