Roll Call: Oprah

Discussion in 'Fibromyalgia Main Forum' started by Shoobie, Aug 30, 2002.

  1. Shoobie

    Shoobie New Member

    OK. So exactly how many of us have written to Oprah within the past 6 months?

  2. Shoobie

    Shoobie New Member

    OK. So exactly how many of us have written to Oprah within the past 6 months?

  3. TeresaBnGA

    TeresaBnGA New Member

    I emailed Oprah.
  4. judee

    judee New Member

    Yes, my child has FM, I have e-mailed so many people: Oprah, Maury, GMA, the list goes on. No responses yet. I think we need to start some kind of drive or something. Maybe if they get flooded with a bunch of mail from all over they will take notice. I have had such a hard time finding any help out there for kids with FM. Her physician says it is entirely different with children and I am having a hard time getting the word out that this also happens to kids. A lot of doctors and people still believe that it is an "adult" illness.
  5. LBinCA

    LBinCA New Member

    Shoobie....5 sent to Oprah...2 to GMA, and requests to various Media Major Newspapers/Metropolitan area...LOcal Newspapers.

    Let me know if I can help anymore! Love, Lori
    [This Message was Edited on 08/30/2002]
  6. amymb74

    amymb74 New Member

    this past week
  7. TiredbutWired

    TiredbutWired New Member

    I sent a poem I wrote about cfids.I put it under cfids victim.They sent me this immediately,Dear cfids victim,Thank you for your e-mail!Your message is important to us.Unfortunately,due to the volume of e-mail messages we receive every day,we cannot guarantee that you'll receive a personal response.Feel free to check out our Frequently asked questions for additional help.Thanks again for writing to us!Sincerely,The staff.I assume that this is the letter we all received!Tracey
  8. Coping

    Coping New Member

    I've sent 3 in the last 6 months.

  9. BethM

    BethM New Member

    this week.
  10. nana42

    nana42 New Member

    I sent a messsage under a future program about lossing something important. I replied that I had lost myself, and felt trapped in a body totally foreign to me, much like a stroke victim might feel.
  11. dlizard

    dlizard New Member

    mail from me to Oprah! (( it was long too ) LOL>>>>>>>>
  12. bubblegum

    bubblegum New Member

    Yes as you know I emailed Oprah and I sent the same mail to Montel
    ciao 4 now
  13. Wildcat

    Wildcat New Member

    I have emailed twice, once about a month ago, and again the beginning of this week! Wildcat
  14. Wildcat

    Wildcat New Member

    That just hit the spot perfectly! Nicely put! Wildcat
  15. SAS

    SAS New Member

    I, too e-mailed awhile back.. Time to send another!!!
  16. Shoobie

    Shoobie New Member

    That makes at least 14 of us! I'm sure there are many others on this board alone who have written.

    If you send more than one letter, do you just send the same one again or do you change it to a different angle?

    I wrote to Montel too.

    Thanks for replying everyone! And thanks for being a "voice"!!

  17. pepper

    pepper New Member

    and got the same reply as TiredbutWired. I wonder if they differentiate between CFS and FM? My e-mail was about CFS although I did indicate that I came down with FM later on.

    I don't think she's interested.

    I think back to the one small part of her program that was about a mother and daughter with CFS and how the daughter got through university despite her illness. I thought it was an unfair slant since so many of us are incapable of doing anything like that any more. The fact that the illness varies greatly from person to person wasn't even mentioned. I was asked by a number of people after that show why I could no longer work. (Yeah, I would really rather stay home and lose my income from teaching!)

  18. BluEyes

    BluEyes New Member a member of Oprah's web site? I am wondering if that may get us closer to being heard. I have received those "do to the heavy volume of emails... blah blah blah" before from several different sites.... mostly the television sites. I joined and as soon as I can sit up long enough.... I will be gtrying to contact them that way (I saw something where you can submit ideas for future shows)


    INHISGRIP New Member



  20. dls

    dls New Member

    from here in the UK, about 3 months ago...
    every little helps!
    Di xx