Samento cures award winning musician with lyme disease

Discussion in 'Fibromyalgia Main Forum' started by tansy, Jun 25, 2005.

  1. tansy

    tansy New Member

    "Miraculous Peruvian Herb Cures Emmy-award Winning Singer-Songwriter, Bill Chinnock, of Devastating Chronic Lyme Disease"


    "Samento gave me my life back," says Emmy award-winning singer/ songwriter Bill Chinnock. After reading Amy Tan's story, I offer mine in the hope that it will help others.

    (PRWEB) February 17, 2005 -- My story: After a five year bout with CNS Lyme disease, I am well. I can't believe it! I am sharing my story, because there is hope for those suffering from Lyme disease. I would try Samento not only on Lyme, but on every disease.

    Like so many Lyme patients, I was misdiagnosed for ten months. Various doctors said I had Lupus, MS, stress, etc. But by the end of that time, the Lyme bacteria had entrenched itself deep into my body and nervous system. I was 100% disabled with crushing fatigue, burning, body pain, brain fog, and many more symptoms.

    I saw countless doctors. I was finally referred to Dr. Neils and Dr. Sam Donta MD., a leading lyme specialist, who figured it out. In 10 months time I was sicker than I could believe and trying every antibiotic that medicine had to offer. I was treated intravenously with Zithromax for 18 months, and at the end of it all, I was still incredibly sick and now broke from all the medical expenses. I was not about to give up because I have a family and a six year old that need me.

    Seeking some type of cure, my wife and I tried nosodes, etc., and ended up worse than ever in the hospital. I resumed the IV protocol of Zithromax under Dr. Meryl Nass' & Dr Paul Balzer's care for 18 months, with minimal improvement. I tried cholestyramine treatments, and many others without success. We had lost everything but our love and faith. I have met countless Lyme patients suffering like us, many being treated by a medical community that is uninformed and without answers.

    A global summit of doctors meeting in London believe that Borrelia (Lyme) is a pandemic and 33% of the world has Lyme. The former head of the American Psychiatric Association in a 1996 letter said he suspects 90% of all psychiatric disorders are attributable to Borrelia Bergdorferi (Lyme bacteria) infection.

    Dr. Joanne Whitaker at Bowen Lab in Florida has developed a remarkable diagnostic test for Lyme greatly improving the ability to diagnose the disease. With her test, in random testing of 1000 patients suffering with a variety of diseases, all but one were positive for Lyme!

    Then six months ago, my doctor discovered an herbal remedy called Samento. It had been producing miraculous results in chronically ill patients suffering with a variety of diseases, including Lyme. Skeptical after five years of failure, I started taking it. I took it in conjunction with a Noni juice extract.

    The first three months were hard because as the bacteria die, they release toxins. Due to these toxins, I experienced classic a Herxheimer reaction. After five years of antibiotics we had still not killed the bacteria. Then I began to notice my energy returning. I increased my dosage and at month six, I just finished a week in the studio producing another artist, working from 6AM to 12:pM every day. I have my life back.

    After reading Amy Tan's story, I offer mine. I believe that God has provided all the remedies that we need to restore health. We just need to discover them. For me, Samento has been a miracle and a life saver. I share my story in the hope that it will help others.

    Samento and Noni extract can be obtained from Nutramedix

    Bill Chinnock

  2. foxglove9922

    foxglove9922 New Member

    Thank you, thank you tansy for posting this. It's so encouraging to read success stories. I do wish he got a little more into the actual protocol i.e. how much Samento and for how long.

    Why also the noni juice in conjunction with the Samento?

    I plan on starting Natto at the end of this week (hopefully the UTI is gone this time)for 2 weeks and then add in Samento, increasing 1 drop everyday until I herx. Does this sound like a viable plan, tansy?

    I thank you ever so kindly for any information you could provide and a big thanks for the story. I hope others read it and also find it encouraging......foxglove
  3. dontlikeliver

    dontlikeliver New Member

    Geez, how did we miss that one? I am not convinced about that or I think I, or someone I know, would have heard about this.

    I'd like to believe Samento cures Lyme, and anything else, but where are all of the other cured people who've used Samento. I'm glad it worked for this guy, but I am not 'seeing' (friends and internet) these results in anyone else - at least not LASTING results like that. Those I know who have used it have gone back to antibiotics after (relapsing).

    I know of people who've got well on antibiotics and got their lives back and live normal lives. When I see that happening with Samento, I may go back on it (it did not help me first time around).

    DLL
  4. tansy

    tansy New Member

    Recommends the noni juice extract as well, it is believed to make the action of samento more tolerable, if so I dread to think what my herxes would have been like without it. For those who are severely affected and have been ill a long time it is recommended they start on the noni before taking samento. After my own experience when starting noni I would suggest a very low dose initially and raising it very slowly just as is advised when starting samento.

    Noni has many qualities: it helps normalise the blood’s ph level, acts an anti-inflammatory and immune modulator, by itself it can help treat infections and assist detoxing. There’s a long list of potential benefits, the only thing the extract does not provide is the fibre present in pure noni juice. The extract works out a lot cheaper than noni juice and does not have the horrible bitter taste that can put people off noni juice.

    A rise of one drop a day is often recommended when starting out on samento; the instructions from my Dr meant I went up too quickly, I still believe his enthusiasm means he misses how slowly some of us need to go especially in the early stages of treatment. It’s one of those treatments that can easily to be adjusted according to how things are going, if the herxing becomes too strong the dose can be lowered and then raised again after things have settled down. Some people just get well with no or little herxing, in lyme this only happens to the lucky few.

    I think starting with natto first is a good plan and possibly easier to manage than the other way around. Enzymes like natto and bromelain can make ABx and samento more effective, so you have avoided having to readjust your samento dose if herxing becomes too strong by doing it this way around.

    I realise you already know most of this, but thought others reading this thread might find the additional info here helpful.

    Love, Tansy
  5. tansy

    tansy New Member

    Not sure which conference in the UK he was referring to, perhaps it was one of those LDA or Nutramedix have organised. This is a genuine case and a genuine remission.

    If you check out the samento library you will read many more success stories like this one.

    As for samento successes: the number is increasing all the time worldwide. Samento based protocols have not been around as long as ABx protocols. Guess the percentages we individually assume depend upon where we source our information and read feedback on the various protocols, and our own mindsets. There have been a growing number successful cases from taking samento in the UK as well, and more where already promising progress is continuing. And all this without the knock on effects or additional risks of using so many ABx in high doses over a very long period of time.

    An increasing number of ABx orientated LLMDs are adding samento into their to their own preferred protocols. It’s no longer seen as snake oil or an ineffective treatment, samento is not just for lyme but other infections which the ABx used for LD cannot treat.

    ABx do not suit, nor do they work for, everyone. I have been observing progress on the salt and vitamin C protocol and so far it is looking impressive. Many of those doing well on salt and vit C seem to think it is far better than their former ABx protocols, a few are trying it because they would rather not use high dose ABx long term in the first place. The herxes from salt/vit c are strong but for many the other risks and knock on effects are far fewer than those experienced with ABx as they are often used in LD protocols.

    So there we have it, lots of possibilities, samento and noni extract being just one of a growing number. I am not against the use of ABx, but for many their use long term and in high doses is likely to be, or has proved, counterproductive.

    My LLMD refers to CFS and other similar illnesses as polymicrobial, with many more pathogens not usually included under the LD umbrella being found over time. Then we have the toxins, in addition to those produced by borrelia and linked co-infections, low glutathione issues too; the resulting vicious circles many get into indicate all these cannot be fixed by the more traditional Abx based protocols which are clearly not working for everyone.

    I know lyme disease is serious but too often patients and doctors fall into the trap of assuming everything that’s going wrong is down to LD. Subsequently other equally serious and life affecting health issues are left untreated, or become worse as the body becomes overburdened through the consequences of the lyme ABx protocols and the failure to treat these non lyme issues.

    I am not anti ABx, I just believe that those in the late stages of lyme disease, borreliosis, babesiosis, etc should look at other possibilities as well because they are considered by a growing number of LLMDs to be more successful in late stage and chronic lyme cases.

    If I absolutely need ABx I will use them but I hope I will never feel the need to resort to them in such high doses for years on end. In the meantime I have had very strong prolonged herxing on a samento based protocol and once I recouped from those it was clear to everyone else that I’ve improved. To be honest the Schardt protocol appeals a lot more to me.

    Despite your insistence it has to be ABx for lyme disease the resources I have been reading regularly, and the people I’ve communicated with over the last year or so, portray a different and wider picture. Please also bear in mind many here have no chance of being able to finance seeing a LLMD and paying out for very expensive long term protocols, no matter how much they might want it to be otherwise. With due respect I ask you to remember it is incorrect and IMHO unfair to make those who cannot have the kind of protocol you are on left feeling they are doomed.

    There is no one size fits all for ME/CFIDS, FM, GWS or LD, but new protocols are appearing all the time and more established ones evolving. As a result a higher percentage are in remission and/or doing a lot better, including those Dx with lyme disease.

    Love, Tansy
  6. dontlikeliver

    dontlikeliver New Member

    I am not anti-alternative and complimentary either, but I do believe abx has to, in most cases, be part of the picture in the treatment of spirochetal illness such as Lyme.

    AW did say last year that about a third of people on Samento were improving on it. But, that means 2/3's weren't.

    Myself and others I've noticed have posted on Lymenet asking for updates from Samento users........it appears most folks have given up on it.

    The Samento site, of course, is very promotional of Samento and I can't see they would post things that do not portray success with Samento. All positive news about Samento seems to originate from the Samento people themselves, which does make me a little suspicious. The people in the study did not only 'just' take Samento either, they did a multitude of things, and as far as I'm aware many of them had already taken lots of antibiotics, thus already having lowered their germload somewhat. I do not know these people, except one who weas a frequent poster on Lymenet who also ended back up on antibiotics after being 'cured' by Samento. (so you can maybe see why I do not have that great faith in this product).

    That Lyme borreliosis is almost always polymicrobial is not something that just AW is saying, I think all LLMD's realizwe this, apart from maybe Dr D. So, all have to be addressed with the appropriate treatments.

    Has anyone with Syphilis been cured by Samento? Just curious as it is very close to Lyme. Do you happen to know if there is any feedback/statistics on that?

    DLL
    [This Message was Edited on 06/26/2005]
  7. tansy

    tansy New Member

    because everywhere I’ve read AW’s assessments of samento last year, including his own info for patients, they have not been the ones you quoted. So I have checked my copy of AW’s patient info on samento last year in which he writes “around 50% people improve dramatically over the first three or four months. 25% have quite a rough time with die off….. . Another 25% don’t really seem to be doing anything at all in terms of benefit or side effects."

    I fit the 25% having a rough time with die off but then eventually improved as a result of cutting back the level of die off, now I am benefiting from lowering my pathogen load alongside samento’s + noni’s immune modulating effects.

    There have been posts by people doing well on samento posted on Euro lyme as well, perhaps you missed them. If you want statistics other than AW’s or feedback from those it helps then I suggest you go to the message boards where people can post more freely about samento and other non-ABx protocols for lyme more comfortably. Many find the reactions to posts on alternatives on boards like lymenet too aggressive for their liking. I read the lymenet board frequently myself but like many others I know prefer to post elsewhere. However if I need info on something LD related then that is one source I check out, I regularly check out eurolyme too which I personally consider much more tolerant and supportive. As for one case reported on lymenet, who obviously stopped taking samento too soon, it can hardly be quoted as proof samento does not work, nor can posters taking samento asking questions.

    I agree the makers of samento are not the only source we should read because they clearly have a strong conviction it works as well as the need to run a profitable business. When posting in the thread Daneen started you recently expressed the absolute need for ABx but appear to have missed the very significant improvements made on samento and similar protocols such as those posted by Barty and Summerbreeze. Similar improvements and remissions are being reported on other message boards. As I said in my previous message; where we look for info, and our mindsets (this includes interpretations), are as important as what we read.

    Yes syphilis is similar, but it’s not the same; to quote another “most of us should be grateful it is borreliosis we have not syphilis”. You would have to ask nutramedix if it has been used for syphilis: since the current ABx protocols work well for syphilis, in fact a lot better than they seem to work for LD, then only those who cannot tolerate ABx would consider an alternative like samento, specific homeopathic remedies, medical arsenic etc.

    This seems a good time to highlight why AW, Bill Harvey, and some regular contributors to Eurolyme keep reminding us about terminology. This is important since many docs will only consider lyme disease as the acute extracellular form which responds well to ABx providing it is taken for long enough. The chronic intracellular form is referred to as chronic borreliosis, and neuroborreliosis when there is major neurological involvement; treatment for the chronic borreliosis is different, and whatever the protocols used are, patients need to be treated long term.

    The fact these DDs are polymicrobial has led to some LLMDs choosing to concentrate on other infections, toxins, and health issues first because often they are deemed as the priority and treatments for Bb etc will not work if they are still present. Pathogens like parasites, yeasts, and fungal strains, have more than a nuisance value for many patients. Issues like hypercoagulation have to be taken seriously, especially when there’s already been a history, or risk, of DVTs and/or a coagulation cascades that can also involve severe allergic reactions like anaphylactic shock. Likewise immune dysfunction that can mean an over reactive immune system and/or meds intolerances/allergies. If a patient’s liver and kidney function is poor, or the lymphatic system is unable to cope with the rate of die off, then the high dose ABx approach risks doing more harm that good.

    I am not anti ABx as I have already made clear, but I have spent the last year or so diligently following feedback on all protocols, I believe ABx risks (especially in such high doses and used long term even proposed in some cases as needed for the rest of the patient’s life) have to be given more ethical consideration than I often observe. ABx protocols are making some patients worse not better.

    ABx are not benign meds, what’s more their use can encourage resistance in other chronic bacterial infections we may also have and which are just as serious maybe even more so. I have read reports back from patients herxing at levels that are proving counterproductive who are then being told by their doctors and other PWLD it’s something they have to go through to get better.

    Slow and steady often wins the race and IMO this is most important in the earlier stages of treatment. ABx may or may not be a part of remission from LD/borreliosis but so far there’s no proof it’s the only answer.

    Love, Tansy

  8. ANNXYZ

    ANNXYZ New Member


    Who knows , this may help someone . Interestingly enough , this samento must have SOME credibility because I just Visited the Atlanta Fibro & Fatigue Center , and the doc gave me some info ( BRIEF) about samento as an anti infective .



    I have also heard Dr Patricia Salvato recommends it to her patients . It may not cure everyone , but nothing else cures everyone either!!!!! If I had lyme , I would probably try ABX , but not everyone has access to ABX , and some people literally can not tolerate the long treatment required . There is no easy answer .

    However, I am VERY encouraged to read that there are people here who see some genuine progress with the samento protocol!

    Tansy , have you heard any reports if samento has any benefit with other organisms ( like mycoplasma ) other than lyme ?
  9. tansy

    tansy New Member

    treat mycos, it is thought be effective in stealth infections. Nutramedix have provided a samento science library, likewise one for noni too. Whilst they obviously only publish articles that support the use of samento the articles they provide links to are written by others. Might be worth checking them out and/or contacting nutramedix direct.

    I checked out a few sources I refer to now and again.

    From Dr Gordon’s page on hypercoagulation at his web site

    “Of course, getting at the underlying cause of much of this hypercoagulability that we see even in the younger population means we must deal with the chronic hidden infections. For that reason, Dr. Gordon recommends immune support products, including the Immuni-T line and RM-10™, and/or Samento, and/or Wobenzym.”

    At one UK based web site with a Q and A page where Dr Luis Romero provides information he states samento is effective for all stealth infections, this was in reply to a question about treating lyme, mycos and CPn. See http://www.samento-faq.eu.kz

    love, Tansy

    ps samento can be used alongside ABx.




    [This Message was Edited on 06/26/2005]
  10. Leenerbups

    Leenerbups New Member

    Hello all,

    I have seen Noni juice at my local Cstco but never knew it was good for us!

    I wish allopathic docs would get up to speed on things that can help like this, so they can pass the info onto us. I have to find out about this stuff from message boards, not my docs!


    What is the story with AMy Tan too?
  11. tansy

    tansy New Member

    WORLD FAMOUS WRITER SHARES OWN STORY OF LYME

    AMY TAN’S REAL LIFE SCRIPT CAPTURES NATION’S ATTENTION



    Bethesda, MD January 9, 2004— It takes courage, talent and compassion to do what bestselling fiction writer Amy Tan has just done for Lyme disease patients and professionals around the globe. Tan has just devoted months of her life and an entire chapter of her latest book to the subject of Lyme disease after suffering from the disease herself.

    Tan is considered one of the best writers of our time (six best selling books, including The Joy Luck Club). For four years, this brilliant mind endured symptoms which undereducated medical professionals could not identify or explain. At times Tan couldn’t write. She couldn’t keep up with conversations at parties. She’d get lost in her own neighborhood, and she suffered frightening hallucinations. Cognitive lapses were compounded by chronic fatigue and extreme physical pain. Ten doctors, different antidepressants, steroids, and surgery failed to provide the help and answers she needed.

    After an exhaustive search for answers, Tan finally found ILADS’ physician, Dr. Raphael Stricker, who diagnosed Tan with Lyme. Dr. Stricker’s suspicions were confirmed by tests done at IGeneX Reference Laboratory run by another ILADS member, Dr. Nick Harris. Tan then decided she wanted to “give back” to the Lyme community by speaking out about her experience and the need for more education. She took to network news airwaves and did interviews with the nation’s top television reporters.

    Tan is now undergoing appropriate treatment for Lyme. Her symptoms still exist but they’ve been greatly reduced. She is writing again as evidenced by her latest book The Opposite of Fate in which she devotes her epilogue to her struggle with Lyme.

    ILADS president, Dr. Steven Phillips says “we are very grateful to Ms. Tan for having the courage and compassion to come forward. She has done a remarkable thing for Lyme patients around the world.”

    Tan concluded her crusade for Lyme education by providing the keynote speech at this year’s ILADS International conference in Pennsylvania.
  12. Leenerbups

    Leenerbups New Member

    Good on her for finding a way out.

    It seems likemuch of our battle is going through doctor after doctor until you find the one who TRULY knows what to do. Sad thing is, most give up after a while and you can't blame them.

    I went to the site that sells this stuff and WOW is it expensive!
  13. victoria

    victoria New Member

    I have heard about Amy Tan having lyme, but does anyone know what protocol(s) she is using?

    Thanks,
    Victoria
  14. foxglove9922

    foxglove9922 New Member

    Many thanks for all the information tansy. Gosh, I wish you could be my doctor....lol You obviously know more than many that I've seen.

    Let's keep this post towards the top in case others are unfamiliar with this treatment.

    You also mentioned....duh....something like Schardt (sp) protocol. What is that?

    The salt and Vit C sounds difficult unless you're a chemist and make your own or have a doc who is up to speed on this. Didn't this orginate in Spain? Are there any docs in the US using this protocol that anyone knows of?

    Many thanks for all the info and sorry for so many questions...........foxglove
  15. tansy

    tansy New Member

    is being used for neuroborreliosis and in ABx resistant borreliosis/lyme cases. It does not work for everyone, just like all the different protocols for chronic borreliosis/lyme, but feedback indicates patients who are doing well on it make better and faster progress than those on the more traditional ABx protocols. There are some posts on Dr Fritz Schardt’s protocol here, and I will post an article on it from the IS library below.

    My LLMD suggested this a while ago but we are both concerned about my liver tolerating it, for most people it is fine. We agreed to leave it for a while to see how others got on, there’s been excellent feedback from the patients doing well on it, though most have to start out on a lower dose of diflucan intially. I like the idea of using a simple ABx too.

    The salt and vitamin C protocol involves natural salt or specific sodium tablets, the dose is raised over time and an equal amount of vit C is used as well. The only reason I’m not trying this one atm is I can have problems with my potassium levels suddenly dropping especially during my heat reactions and some herxing – it’s like thyroid storms.

    The salts from Spain are electrolyte salts, these combine 2 types of sodium, potassium, calcium and magnesium in ratios aimed at rebalancing the ion channelopathy found in CFS and FM. These Blasi salts are particularly good for FM, but more CFS and lyme patients are using it as an adjunct to their protocols and finding them beneficial. There has been a large official trial in Spain using the Blasi salts and once completed the results will be published.

    Love, Tansy
  16. tansy

    tansy New Member

    ImmuneSupport.com

    05-11-2005

    By Jill Neimark

    In May of this year I sat down at the beautiful Essex House on Central Park South, with a German physician specializing in internal medicine, Fritz Schardt. Dr. Schardt, who is associated with the University of Wurzburg in Germany, published an interesting pilot study in the European Journal of Medical Research in July of 2004 on the use of an antifungal drug, fluconazole, in treating chronic, advanced lyme disease. This pilot study examined 11 patients with chronic lyme. Dr. Schardt has slowly refined the protocol since then, and believes it holds great promise in treating this difficult condition—which is often misdiagnosed as chronic fatigue or fibromyalgia.

    Here follows our interview:

    Jill Neimark (JN): What made you think of using diflucan, an antifungal, to treat lyme disease?

    Dr. Fritz Schardt (FS): I was actually my first patient. I got lyme disease in 1989, and was given two weeks of doxycycline. Our country follows the protocols set by yours, so that’s what is generally recommended. I now know that was very inadequate and I do not think doxycycline should be used in early lyme disease at all. It is only bacteriostatic, meaning it inhibits the bacteria but does not kill them.

    JN: I know, the same thing happened to me. At the doses they recommend, it also does not penetrate the central nervous system. I had a fever, stiff neck and bullseye rash. The stiff neck means it was already in my nervous system. Therefore I probably needed six to eight weeks of doxycycline at double the dose I was given. Higher doses will penetrate the CNS.

    FS: Right. I recommend penicillin in early lyme disease.

    JN: Amoxicillin is given here. Is that what you recommend?

    FS: No, that’s broad spectrum, so you end up killing many bacteria, including necessary ones in your gut. I recommend smaller spectrum penicillins. The syphilis spirochete has not become resistant to penicillin, and there’s good evidence that borrelia, the lyme spirochete, has not either. In Germany, we have cefalosporine, roxithromycin, cotrim-TMPO, and clarithromycin. These are all good choices. They should still be taken for 20-30 days.

    JN: Okay, well, you took doxycycline so you ended up with chronic lyme disease. What happened then?

    FS: I was sick for 18 months. I was given intravenous rocephin several times. I would feel better, but then once I stopped taking the antibiotics, I relapsed. I was often bedridden and I thought I was ready for the wheelchair. Then, I developed a fungal infection, possibly because of all the antibiotics. So I was put on diflucan. This was around 1990. It was a new drug that was being used mainly for opportunistic fungal infections in AIDS patients.

    JN: And what happened?

    FS: I got better. But I only stayed on it for two weeks at first, and then I got worse again. So I went back on it for 30 days, and I got well.

    JN: What was the dose?

    FS: I took 100 milligrams twice a day.

    JN: Are you completely well?

    FS: I am very active and energetic and I feel quite well. I have since competed in athletic events and won them. However, I do have an occasional heart arrhythmia that I believe may be due to permanent damage from the spirochete.

    JN: Tell me your reasoning as to why diflucan might work in chronic lyme.

    FS: There are several reasons. First of all, it inhibits an enzyme called cytochrome P450. This is an enzyme that your liver, for instance, uses to detoxify chemicals and drugs. Borrelia has a very primitive p450 defense, so if you inhibit it, it is easily weakened. Therefore I believe that diflucan inhibits the growth and replication of borrelia. It does not necessarily kill it. In addition, it penetrates well into the cells and into the nervous system and brain, where borrelia may hide.

    JN: What is your current protocol?

    FS: I recommend 200 milligrams a day, for 50 days. There are now 200 milligram pills available, so once a day is fine. Then I recommend 20-30 days of any of the penicillins I mentioned. You may have to go through several cycles of this protocol. You must also be very aware of other drugs that act on the p450 enzyme system, specifically a subset that inhibits CYP3A4. You should not be taking any of these drugs at the same time as you take diflucan.

    JN: What are some of these drugs?

    FS: There are many, and it’s best to check with your doctor. Some common ones are erythromycin, amitryptylin, midazolam, Lovastatin, and others.

    JN: I hate antibiotics. Do you have to take the penicillin?

    FS: I understand, many lyme patients come to hate antibiotics because they have to take so many of them for so many years and are still ill. In fact, I also was made ill by the antibiotics.

    JN: They really disrupt your digestion.

    FS: Right, that was my problem.

    JN: So, this protocol is your best one-two punch against borrelia, but you don’t have to take the antibiotics if you truly hate them.

    FS: Right. In addition, diflucan has a slow half-life so it can slowly build up in your bloodstream. Sometimes patients call me after a few weeks and say they are feeling very ill on the protocol. Perhaps it’s a herxheimer, or perhaps it’s that the levels of diflucan are higher than they can tolerate. So I say, take a 3 or 4 day pause, and then go back on the protocol. This is perfectly acceptable.

    JN: What happens if you have a weak p450 system? Have any of your patients have raised liver enzymes from the diflucan?

    FS: I have been lucky, not one of my patients have had raised enzymes. It is generally well tolerated. If it is a problem, however, you can lower the dose of diflucan. This would be overseen by your doctor. I recommend 100 milligrams in pediatric cases.

    JN: How many patients have you treated now?

    FS: At least eighty.

    JN: What is the most difficult case you’ve had?

    FS: I have one 75-year-old patient who has had lyme for 18 years. He was very ill. He has had to do this cycle of diflucan and penicillin 3 times. He is much, much better. In fact, he’s so happy with his improvement he called the drug manufacturer to tell them they need to run a publicity campaign to promote diflucan for chronic lyme disease.

    JN: Some patients on some internet groups are adapting your protocol, probably in concert with their doctors, and I’d like to know what you think of this. They are suggesting staying on diflucan for 9 months, and some of them are adding in low-dose minocycline. Are you aware of this?

    FS: No, I am not aware of this.

    JN: What do you think of the idea?

    FS: I believe in the narrow-spectrum penicillins for borrelia, not the cyclines.

    JN: What about 9 months?

    FS: That remains to be seen. Perhaps, like tuberculosis, some patients will need to be on diflucan at least six months or more. Borrelia is a very sophisticated organism, and one of the few bacterium with two cell membranes. There is much we still have to learn about it.

    (c) Jill Neimark, 2005.
  17. Jeanne-in-Canada

    Jeanne-in-Canada New Member

    I don't think we'll ever find a one size fits all cure for env. diseases, because there is no one thing(s) that cause it in different individuals.

    Let's try and keep this info. bumped.


    Jeanne
  18. ANNXYZ

    ANNXYZ New Member

    I have been reading about the TOA free samento on different websites and the noni juice . What is the
    benefit of the noni juice with lyme disease ?

    In your discussion with other lyme sufferers , have you heard any of them suggest anything that can lessen the herx reaction ?

    When you started on the samento , did you feel worse initially ? How long did it take to get over feeling worse?
  19. ANNXYZ

    ANNXYZ New Member

    I have been reading about the TOA free samento on different websites and the noni juice . What is the
    benefit of the noni juice with lyme disease ?

    In your discussion with other lyme sufferers , have you heard any of them suggest anything that can lessen the herx reaction ?

    When you started on the samento , did you feel worse initially ? How long did it take to get over feeling worse?
  20. tansy

    tansy New Member

    is said to help lessen the impact of herxing and others on this protocol say they feel it has helped them with regard to this. With the wisdom of hindsight I would now start on the noni extract at a lower dose than my Dr recommended and take it for much longer before starting the samento.

    I herxed quickly and hard on samento on a low dose (1 drop tid), the second herx became scarey and counterproductive so I stopped the samento for 2 weeks and increased my noni intake; just recently I have started to raise my samento dose again. So far all treatment symptoms are tolerable and short lived, the test will be my next substantial herx.

    A PWLD I know contacted nutramedix and asked about dosing and herxing. She was told herxing too hard and long was counterproductive and it's not necessary, if the herx gets too strong she should lower her dose.

    It took me too long to start to feel well again after my second big herx because I foolishly tried to stick it out, this taught me an invaluable lesson. Two weeks after it finally sunk in things were much improved; even more so two weeks later when back on a low maintenance dose of samento again.

    Despite other health issues cropping up, additional demands on my time and energy, potentially stressful situations etc, I have improved. I can sustain more activity (mental and physical) and now pacing really works for me. I feel stronger; everyone tells me they have never seen me looking so well and they have commented on how much improvement there is in my conversation. One neighbour told me my face and eyes were sparkling. My better days are getting better and I am getting more of them. Even if this doesn’t last it still will have been worth it cos this is the best I have been for many years.

    Love, Tansy

    ps noni and LD. It helps detox, acts an anti inflammatory, is also anti microbial, works like an anti depressant and helps with anxiety, can reduce pain, helps normalise the blood's ph. There's more too.
    [This Message was Edited on 06/27/2005]