Discussion in 'Fibromyalgia Main Forum' started by chris350, Sep 16, 2009.

  1. chris350

    chris350 New Member

    Went to the psychiatrist. She strongly wants me on Savella. I wrote a post earlier but "Savella" did not get in my title. I wrote earlier that she had a patient that she hospitalized due to severe pain and other issues from Fibro. She had a pain dr. see him and took him off Cymbalta onto Savella. She claims he has made a complete turn around. She claims that the internists and GP doctors are getting the samples and are the docs being visited by the drug reps so she could not write the script. I need to go to my Fibro doc to get him to write it.

    Any one on Savella? What do you think?
  2. FibroFay

    FibroFay New Member

    I just posted on your other thread. From my own experience, I believe your psychiatrist might be on to something. I know Savella is helpful to me.

    It's expensive. My doctor that prescribed it had to fight with the insurance company to pay for it. They finally approved it and I get a 30day supply for my copay of 55.00. Someone else had a similiar experience with having to fight with their insurance company to pay for it.

    Good luck to you!

  3. are you taking it for depression or fibro or both? my dr is talking about putting me on it. I am sooo tired of meds that don't work, their side effects and so many my insurance won't even pay for even though I pay a HUGE mo. payment plus high copays. The neuro dr I recently went to said it helps some, BUT added if a med doesn't take your pain level from a 10 to a 5 its probably best not to take it. good luck, keep us updated.
  4. over50

    over50 New Member

    hi chris and everyone,
    Just want you to know that I will be giving Savella a try. I got samples(thank God) today. I have tried so many things and medications. Wish I could give you more info,but its my first pill today. I will keep you posted on my progress with it. It will be interesting what everyone has to say.
    take care [This Message was Edited on 09/17/2009]
  5. FibroFay

    FibroFay New Member

    I take Savella for Fibro. I understand it's not used for depression though it is in that class of drugs.

    I began the Savella because nothing else was helping my pain. I'd exhausted the whole range of Antidepressant drugs that are normally used to treat Fibro pain, Cymbalta was my last one before the Savella. Nothing was helping me. There were some I couldn't tolerate at all.

    I take Vicodin three times a day along with the Savella.

    My baseline pain level before Savella was around 7. Some days, but not every day, my pain level is about 4. To me, that's worth going for. And my energy level is much better. I believe it's because I sleep better now.

    Because I want all of you to be very careful, I want to add, this is only my own personal experience and Savella may not be right for you. Please talk to your doctor for advice. Don't ask for a RX for Savella because it's working for me.

    Take care all.

  6. SBear

    SBear Member

    I would guess that the doctor who said that a medication is not worth taking unless it reduces pain from a 10 to a 5 has never had to deal with overwhelming pain 24/7/365, or the way it wears you down just dealing with it day after day. I had initial side effects of nausea, dizziness, and "goose bumps", but I do believe savella reduces the pain and exhaustion. It isn't a complete elimination of symptoms and it isn't all the time, but for me it does help.

    The effect of all medications varies from person to person. I would say a common-sense approach is to examine whether the benefit is greater than the side effects plus the expense, or whether it improves your total life situation.

    I would like to ask that doctor for what length of time he/she has borne disabling pain, and what the pain level was, and whether he/she was willing to try medication.
  7. Sbear....what she was trying to say is if a med doesnt help that much its not worth taking with all the usual side effects. It makes sense to me, believe me she was one smart dr.
  8. ProHealth
    13-country study finds chronic pain not improved in half of patients after 1 year treatment; worse in 19%
    September 17, 2009

    “This research reveals an alarmingly high prevalence of uncontrolled chronic pain in our communities. This serious public health problem must be addressed as a matter of urgency.” - Dr. Tony O'Brien, MD

    Fully 95% of patients are suffering from moderate to severe chronic pain after one year of treatment and only 12% are being prescribed strong opioids, according to a year-long survey presented Sep 10 at the EFIC Pain Congress in Lisbon (European Federation of Chapters of the International Association for the Study of Pain).

    The research reveals that:

    • More than half of patients' pain levels fail to improve over the course of a year's treatment, and for 19%, their pain has become worse.

    • Despite the high proportion of patients continuing to suffer pain, 64% of patients believe they are taking the most appropriate level of medication and 58% believe that everything is being done to help them.

    The new survey, entitled PainSTORY* (Pain Study Tracking Ongoing Responses for a Year), is the first of its kind to track the impact of chronic pain on patients' lives over the course of a year, and involved 294 patients in 13 European countries.

    Regarding pain management, the survey demonstrates that out of all patients who took part in the survey:

    • 83% are prescribed medication but 30% also resort to over the counter (OTC) medication to try to manage their pain either alone or in combination with other therapies.

    • Despite the fact that 95% of patients receiving treatment are suffering from moderate-to-severe pain, only 12% of them are being prescribed a strong opioid treatment, 25% a weak opioid, and 43% are prescribed a non-opioid treatment.

    • The research also reveals that only 23% had their prescription changed to a stronger type of pain medication over the course of the year.

    The survey illustrates that almost half of all patients report side effects as a result of their medication, the most common of which is constipation, experienced by almost half of patients, 49% of whom are receiving treatment with opioids.

    • Although highly effective in controlling pain, opioids can be associated with opioid-induced constipation (OIC).

    • The research indicates that 26% of patients taking opioid medication turn to laxatives to help relieve their constipation, which may alleviate symptoms but will not address the cause of the problem.

    Commenting on the findings, Dr. Tony O'Brien, Consultant Physician in Palliative Medicine at Cork University Hospital, said:

    "This research reveals an alarmingly high prevalence of uncontrolled chronic pain in our communities. This serious public health problem must be addressed as a matter of urgency. Patients suffering pain require comprehensive evaluation and assessment by skilled healthcare professionals.

    “Selected patients will benefit from a supervised trial of opioid medication in order to achieve an optimal level of analgesia, whilst preventing unwanted opioid adverse effects, including opioid induced constipation. The objective is to ensure that patients can experience the best possible quality of life.”

    The research provides some valuable insights into patients' experience of the healthcare professional team.

    Despite the high proportion of patients continuing to suffer pain, the number of patients visiting a doctor declined over the course of the year from 83% at the beginning of the survey to 70% at the end. By the end of the survey:

    • 58% had been given a physical examination,

    • 22% were rated on a pain scale,

    • 19% were sent for further tests,

    • And only 2% had seen a pain specialist consistently throughout the year.

    Severe Psychic Toll…

    Across the year, 44% of patients report feeling alone in tackling their pain and two-thirds of patients feel anxious or depressed as a result of their pain. For 28% of patients, their pain is so bad they report they sometimes want to die. Patients report feeling trapped by a pain which may vary in intensity, but continuously affects every aspect of their life.

    Commenting on the findings of the survey, EFIC President Elect Hans Kress, a professor at the Medical University of Vienna, said:

    "This research presents a unique insight into patients' journey in pain across Europe. It is shocking to observe that one year on, patients are still trapped in an ongoing cycle of pain and a large proportion seem to be losing hope. I urge patients to speak to their doctor if they are experiencing chronic pain or are concerned about side effects, and not suffer in silence.”

  9. over50

    over50 New Member

    I went to /Fibro support forums. There at least 43 pages of those who have tried Savella and their results. Everyone is very nice and its so helpful to see how it affects others. I am not going to take my second one tonight,my blood pressure is 150/101 tonight. I think I will do better on low doses. Thanks so much for all the info. I will check in when I can .
    take good care