saw CFS specialist today, here's the plan

Discussion in 'Fibromyalgia Main Forum' started by Shannonsparkles, Aug 3, 2006.

  1. Shannonsparkles

    Shannonsparkles New Member

    Here's my new program. 12 hours of sleep or more every night (Imovane). Eat a little bit of food (preferably protien) every two hours. No unnecisary activity, nothing tiring or stressful in any way.

    I'm also doing a lyme disease protocol from my naturopath (salt/c) and herxed really badly, so that's why I've been scarce lately.

    Keep praying! It's good to have something to try. If nothing else, I sure will enjoy those extra hours asleep every day. :D Maybe I'll have that dream where I'm wearing that spangled white ball gown while eating chocolate cake with my fingers again. ;) I expect I'll be away more, with all the resting. Let's hope this is a good month for progress. This board is my favorite place of all, so I wish I could be here more.

    Love you all. ((( ))) Shannon
    [This Message was Edited on 08/03/2006]
  2. ANNXYZ

    ANNXYZ New Member

    Thank you for updating us. I am saying a prayer that you make progress . You might want to look into samento for treating lyme disease also !
  3. Jeanne-in-Canada

    Jeanne-in-Canada New Member

    you could check out recoveryfromcfs.org that is Bruce somethings site. He recovered w/a pre-emptive rest and stress reduction plan. I'm going to read through it all, he makes so much sense.


    Jeanne
  4. sues1

    sues1 New Member

    will be looking for ya'

    Love, Susan
  5. fight4acure

    fight4acure Member

    I'm glad you have a plan in place now! It takes a lot of work to finally get to the stage where we finally demand that some doc gives us some kind of plan, because they're too busy testing us for fibro and cfs.

    Anyway, congrats! And I always dream of chocolate, LOL!

    :)
  6. greatgran

    greatgran Member

    It's great you have a plan, now you have something to work with..which most of us don't..Please keep us posted on how you are doing..

    Sure can be a miserable way to live..Sometimes I just want to give up...

    Prayers,
    greatgran
  7. onlythestrong

    onlythestrong New Member

    I sure hope it works out for you.I would love to hear it works for you.
    Take care of you and drop in when you can,we'll miss you!
    Your fibro sis,
    Mary
  8. rockgor

    rockgor Well-Known Member

    Hope it helps!
  9. Tantallon

    Tantallon New Member

    Good luck
    Sue
  10. Lolalee

    Lolalee New Member

    Shannon,

    This sounds like a good plan. I am learning that rest, rest, rest is what helps me the most. We are really sick and we need to get that (at least I do).

    It's funny the other night during dinner I commented to my husband how great I feel after I eat a piece of meat. I had made pork cutlets. So, I agree with the protein plan.

    Just a tip..since you will need to rest and not be able to cook a lot. Make some salads that will keep a few days, i.e. chicken salad, tuna salad, turkey salad, bean salad, shrimp salad, etc. This way you will have nutritious meals handy.

    Best of luck and blessings,

    Lolalee
  11. sascha

    sascha Member

    and it sounds good to have profressional give you the go-ahead to rest more and avoid stress. that's much better than trying to fight your way through on your own. peopls say they 'get it', but sometimes they really don't. i had to crash and crash and fight and fight and go through a terrible time before my relatives out here 'got it.' i'm not even sure they do now. best of luck- hope you get better- sascha
  12. mrdad

    mrdad New Member


    Best wishes for success with your new Protocol!! I also
    have CF and will be greatly interested in following your
    progress. Please keep us informed as we will be thinking
    of you!

    Gotta take a nap!!
    MRDAD
  13. Shannonsparkles

    Shannonsparkles New Member

    I feel lousy about being here less, but I hope all the resting will help a bit. It's hard for me to use the computer, really. Thanks for all the good wishes and for keeping the door open.
    ((( ))) Shannon