Saw Doc Yesterday, Adrenal Fatigue and Sinus Infection

Discussion in 'Fibromyalgia Main Forum' started by greatgran, Jan 26, 2009.

  1. greatgran

    greatgran Member

    I finally got in with the good doc yesterday, he is only a D.O. but seems to know more than the specialist I have been to. He does confirm that I have cfs and fm but I also had a sinus infection and prescriped bixian. Then we got to discussing how I felt, he was so easy to talk to. Then he started telling me how I felt, was I amazed, that finally a doc understand. (he was the doc that helped me get my disablility).

    He says it all goes back to hormones being so off balance, my cortisol,
    etc. He stills thinks my thyroid, even though my labs are normal except for a low t3 is out of wack.

    He wants me to try L trytophan and theanine for now, he did labs and I am to go back in 3 weeks. Went to get my Bixian but could not find Ltrytophan or theanine in this town . Guess I will have to order it.

    Hope I haven't got my hopes up to be let down again but won't be the first time. Time will tell.

    Thought I would just share this , I felt so much better mentally after leaving his office. Oh, he did tell me to be as active as possible but not overdo and to elimate stress...or try to handle it with laughter.

    God bless,

    p.s. Jamin if you read this he is a frim believer in grapeseed extract. He feels once I get my immune system built up I will not have these darn sinus infection as often.
  2. Nanie46

    Nanie46 Moderator


    I am glad that you had a good visit and felt better afterwards.

    Did you happen to talk to him about the possibility of lyme disease and getting an Igenex western blot? Your symptoms are all on the list.

    If you didn't read my post "All with FM or CFS please do this symptom checklist", I would urge you to.

    Wishing you better health. We are all in this to help one another.
  3. Empower

    Empower New Member

    I am glad to hear of your positive doc visit, as I know you have been feeling really bad for some time

    The sinus infection ALONE would make you worn out and miserable

  4. greatgran

    greatgran Member

    I did mention the lyme, he doesn't think so but wants to wait till he gets the labs back and will take it from there. I did bring the info up and printed it off to show him about the Igenex western blot, from what I have read medicare may pay some on it but will have to call.

    If I am not feeling better in 3 weeks and my other labs are normal then I am sure he will help me getting the test. He did say most of all lyme test would show up negative.

    Thanks for your help and well wishes,
  5. greatgran

    greatgran Member

    You are correct the sinus infection had made me miserable and the doc did say I probably have been caring this around for years and never got it fully cleared up.. That is one reason he wants to work on my immune system.

    Hope you are having a good day,
  6. greatgran

    greatgran Member

    Yes , he is in his 50's I think ..What do you think of the L-Trytophan and the theanine he wanted me to take? Can't believe I couldn't find it in this town.

    Thanks for your support,

  7. MsE

    MsE New Member

    About time one of the docs came up with something that helps you. I love the line you included that he said to handle it with laughter when stuff got rough. Three cheers for a lively sense of humor, and may it always show up when needed. An ability to see the situational irony of life makes the whole mess much easier to take. Hope this guy really helps you, my friend. I'll be rooting for you! MsE
    PS. I put myself back on estrogen--just a tiny bit. I feel better. I really am. It's working.
    Keep your fingers and toes crossed for me because I really really really want to make that trip to Croatia with my daughter this spring, and I'll have to be reasonably strong to do that.
  8. Waynesrhythm

    Waynesrhythm Member

    Hi Greatgran,

    Congratulations on your recent ND visit. I don't want to dash any hopes, but I deal with adrenal insufficiency and generally consider it to be different from CFS. I do believe that either condition can exacerbate the other however.

    I just got back from a long trip during which time our 18 year old kitty was taken to a vet for a variety of problems. Turns out it was a thyroid problem and she is now doing much better. She was being such a pill before I left last fall, and has now returned to her sweet self. Amazing how hormonal imbalances can affect how we feel.

    Re: your ND mentioning that he didn't think you had Lyme. My ND told me the same thing last fall when I inquired about some Lyme testing, saying I didn't really fit the classic profile, or something like that. I asked in return whether others with Lyme have tried just about everything under the sun for the past 30 years to try to improve my health; and whether doing so could influence whether I had a "classic" profile for Lyme.

    He was open to my input and we eventually did do the Lyme testing, for which I have tested positive. Since I've been gone since this positive test, I have not yet started on treating it. It will be my first priority once I get a little recovery under my belt.

    Best to you and you move forward with your new doctor and protocol.


    P.S. This past year, my sister was dealing with a chronic sinus infection for quite some time and had been putting off going to a doctor. When we went shopping at a local food cooperative, she spotted a natural sinus rinse product and decided to give it a try. It worked very well for her and feels it completely cleared up her sinus infection. I hear Neti pots can do amazing things for sinus conditions as well.
    [This Message was Edited on 01/28/2009]
  9. greatgran

    greatgran Member

    I posted a note to you about you starting Estrogen, I will bump it so you can find it. I do hope I am not in for another disappointment as we all have seen so many doctors to get out hopes up and then it doesn't last.

    I did ask him about me going back on estrogen , he said not now that all my other hormones are out of wack, which I don't think is uncommon for us with this DD. He wants to work on getting me back on track then he said we would talk about it.

    I am so happy to hear you are feeling better and I have eveything crossed for bout of us.. A trip sounds wonderful ..I haven't been on a vacation in 8 years, afraid to go anywhere.

    Prayers ,
  10. greatgran

    greatgran Member

    Thanks so much for answering my post. How are you dealing with your
    adrenal problems, meds, activity etc.? I have been tested for lyme twice both negative but I did mention about the western blot and the ignexe (sp) lab. What lab Dx you? I do hope I can move forward but it is hard when you feel so exhausted. Good luck to you and your treatment, is it going to be the antibiotic route?

    Would love to know what natural sinue rinse your sister found. I have tried the nasal irriagation and always end up getting fluid in my ears.

    Thanks and Good Luck keep us posted,
  11. Nanie46

    Nanie46 Moderator


    Just wanted to share some information from Dr Joseph Burrascano's latest version of "Advanced Topics in Lyme Disease-Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses", Oct 2008:

    On page 4 he writes:

    Hypothalmic-Pituitary Axis:

    "As an extension of the effect of chronic Lyme Disease on the central nervous system, there often is a deleterious effect on the hypothalmic-pituitary axis. Varying degrees of pituitary insufficiency are being seen in these patients, the correction of which has resulted in restoration of energy, stamina and libido, and resolution of persistent hypotension. Unfortunately, not all specialists recognize pituitary insufficiency, partly because of the difficulty in making the laboratory diagnosis. However, the potential benefits of diagnosing and treating this justify the effort needed for full evaluation. Interestingly, in a significant number of these patients, successful treatment of the infections can result in a reversal of the hormonal dysfunction, and hormone replacement therapies can be tapered off!"

    I thought that last sentence was particularly interesting.

    Wayne: Perhaps if you treat the infectious disease first...the lyme....then your adrenal problems will more easily resolve.

    Greatgran: Perhaps your adrenal problems and sinus infections are a result of chronic lyme. I know we have talked about that before. Just giving you more to think about.

    Better health to both of you!!!
  12. Waynesrhythm

    Waynesrhythm Member

    Hi Greatgran,

    I continue to do well with my low-dose cortisol (Cortef) supplementation. After 10 years, I’m able to adjust dosages quite well to suit my circumstances.

    I also tested negative in the past for Lyme (at least 2-3 times). Didn’t realize how unreliable the conventional Lyme testing is until I got educated on this board. I ended up getting testing through a lab called Neurosciences. Medicare covered the whole bill.

    I’ll check with my sister on the nasal spray she used. Ironically, she had tried the neti pot at one point and felt it actually pushed the infection deeper into her sinus cavities. So it seemed particularly miraculous for her that she was able to get such good results from the nasal spray.

    Nanie, thank you very much for sharing the information on pituitary insufficiency. Really caught my attention, and will keep it in mind as I move forward. I feel my adrenal insufficiency is a result of the stress caused by CFIDS and any resulting infections, including Lyme. At this point, I believe successfully addressing Lyme could very well go a long way toward normalizing my endocrine function.

    Greatgran, the ND I’ll be working with apparently does not like to use antibiotics for treating Lyme. He seems to have gotten good success using other approaches. I’m hoping alternative approaches will work well for me, as I am quite concerned about what long-term antibiotics could do to my fragile system.

    Slowly but surely, step by step will likely be my motto. It took a long time to get where I’m at, and will not likely be easily overcome in short order. But I do feel improvements could start to happen quite early on. Ever the optimist! :)

    And Nanie, thanks much for your well wishes! :)

    Best, Wayne