Scary Attack Right Now What Is This?

Discussion in 'Fibromyalgia Main Forum' started by joeb7th, Nov 10, 2006.

  1. joeb7th

    joeb7th New Member

    Oh boy....moaning here.


    Can't go to ER as they just check blood, pulse rate, never see anything,keep me laying by myself for hours, give me atavan, send me home. Half the time call in Psych ward.

    But right now, this is what I am feeling and it is scary and horrible.
    Insides feel haywire, out side chilled prickly, bladder,penis feel pressure but can't pee.

    Neck feels warm , prickly, back feels tight, when I breath in air feels cold and bone dry all the way down throat.
    Inside nerves feel like they are under attack and
    going haywire. Tremoring, shaking inside, tightness in chest but deeper like lung area. Just insides and nervous system going berserk. Again chilled but neck and ears feel hot. Very difficult to describe...but feeling under attack internally but can't really describe it any better. Penis feels so weird. Oh, please excuse my repeating myself but my brain is in confused, panic mode. Breathing trying to breath normal but this doesn't help insides going crazy.
    Feel so cold, prickly shakey. All I can do is moan.
    What is this...anybody?
  2. cma331

    cma331 New Member


    Not being a Doc; i would not try to answer . Just want to be here for you.........

    Have you had anxiety attacks before?

    Has it eased up?

    I hear you about the probs in ER; I feel the same........but if you can't get in touch with your Doc,
    you know you will feel better if you are checked out.

    Hope the feelings have passed. Carole
  3. Kryssie

    Kryssie New Member

    I hope you are doing better.. I was going to ask the same thing, have you ever had an anxiety attack? It makes you feel so wierd.. like someone plunked you in an atmosphere you cant live in... hope your okay.
  4. joeb7th

    joeb7th New Member

    Hands cold too. Can't get warm.
    It's like an eletrical current is being sent into my nervous system and it is making everything go haywire.

    Now feeling a little fainty, tight in neck. Moaning in short gasps. My penis feels so weird as does my insides.
    This is the kind of stuff that when I tell a doctor this is what I am feeling right now and for last hour that they call in the psych ward.

    That is why I am posting this...to see if any of our thousands of readers know that this may be some real internal system problem . I was actually taking or trying to take a nap when this kicked in...so don't think it came from stress. Shaking inside but this is not like panic attack shaking. I have had that and it is different. This is like something inside of me is having an attack and it is affecting my nervous system. Could any of my organs be causing this? Adrenals, Pancreas? How about cancer? In this state your mind is reaching out and considering anything no matter how carzy it may be. Especially when you are feeling so unprecedentedly internally haywire and stressed.
  5. cma331

    cma331 New Member


    Joeb...Did you read redwillows post? It is about the 12th post after yours. It is about anxiety.

    Carole
  6. joeb7th

    joeb7th New Member

    Carol, I have had many classic panic attacks. This is not a panic attack.

    I am almost an expert on those now.

    This is much more internal feeling.

    The bladder thing and penis thing is always one of the signals for these. I don't have the outside shaking that I normally do in a panic attack.

    This is like my insides are going haywire and also in a panic attack I don't get those chilled, prickly feelings all over like I do with these.

    It is about the same since start 45 mintues ago. if I had one of these before 1 year ago when all my problems started I would go to an ER immediately. But have been left on too many beds with just atavan to go now. I don't know when this will pass. I don't know any more today what it is than when I got my first one almost 1 year ago.

    My best guess has always been that a ne week course of an anti-biotic called Levaquin soemhow effected my nervous system or some other part of my body internally. Within the first 24 hours of taking that stuff my shoulders, arms, hand and insides went crazy and I had burning pain in shoulders, arms hands and stomach. Have some damage to middle intestine starting that first week on levaquin.
    Now I am getting sweaty.

    Doctors get mad at me if I even bring up the levaquin subject. Seriously, they refuse to talk about it. I just don't know what else to do. Hope I don't go into fainting stage and have to go to ER anyway. It's getting tougher to stay on line here but desperate for maybe some clue or answer. Carol, thanks, JB
  7. Kimba4318

    Kimba4318 New Member

    Joeb - are you sure you shouldn't give the ER another try?? I just thinnk you need to get looked at. I know how bad the ER is, but are you sure you cannot give it another shot.

    I found when I was so frustrated with the same one, I found another one (a little farther) and went there and was treated like a "New" patient.

    Any other ER options?

    Hang in there. Let us know,
    Kim
  8. joeb7th

    joeb7th New Member

    Almost a year ago they did a blood test for thyroid..said it was okay...but maye you have a point there.

    Again, unlike a panic attack, this whatever it is makes me extremely chilled, then occasssional sweats, penis, bladder go crazy, prickly feelings all over, sometimes extremely itchy feeling on arms and behind elbows, sometimes scalp.

    About my insides ....this is the hard part....doctors wanting you to be more specific about what you are feeling inside...and they get upset when I can't describe it any better...but my insides feel like they are just going haywire..I even gets those heart jumps when I have these.

    All I can do is lay down and shake and moan....but please...

    Believe me when I tell you this is not a panic attack. If anything it feels more like some internal part of my body is malfunctioning or going into attack mode and when it does this it affects my nervous system. Not a doctor so my guess here is never taken seriously. My goal in life now is to get doctors to "re-do these same big tests like CT's and inside looks at things that may look okay in general x-rays. Yes, check thyroid again...but problem is no doctor in my smaller community will order these again. I believe I need special university hosptial work from ground up. But without a referral you can't get in let alone get all these tests redone. I am stuck in this horrible twilight zone of unreferring and disbelieving doctors.
  9. NyroFan

    NyroFan New Member

    Joeb;

    Hey...you have had bad experiences with ERs, but maybe a close caring doctor may help.

    I have found the most luck with my rhuematolosgist, many who treat people like us.

    I hope you feel better soon. I hate it when people are suffering from these diseases.

    nyrofan
  10. joeb7th

    joeb7th New Member

    Unless you pass out it better be something they can see clearly.

    Mine is so internal and not easy to see.

    I have thought about prostate cancer, testicular cancer , you name it...but can't get any other areas checked now because supposedly 10 months ago most of these were checked...and didn't show anything.


    That is what is hurting my chances of getting another major ground up evaluation again.

    I still think that the right doctor ( endocronologist or somebody ) will someday find something that will expalin all of this. Another problem is one doctor does one test, another does another test, and they don't really connect all of these together. In my case my PCP has missed so many of these. He didn't even know I had a fractured vertabrae when I told him of pain in that area. Said I was in bed too much. And at that time another doctor had an Xray of this but never sent it to this PCP. When he finally got it he just barely mentioned it. But for weeks I had to think I was crazy, feeling all that pain in that area and it wouldn't go away.
    I'm telling you...medical care in this country san be so bad or hit and miss at times. My dream is that some university hospital would take me in and do every test within one week and cross check all the results right there and by more than one doctor. But unless you are rich, this just doesn't happen.
  11. joeb7th

    joeb7th New Member

    From those who have also suffered and cannot get help.


    I have called the only endocrinologist in my area that takes my insurance and she is booked until late December. That is my story...months and months of waiting to see the few doctors and specialists that are here and take my insurance. I have waited up to 6 months for some tests.

    Tuesday I go to San Francico to see a GI doc and it took me 2 and 1/2 months of waiting and literally crying calls of dispair and desperation to get this appointment and I live 135 miles away from the city. And all he can do is consult from what I understand. What I am going to beg him about is to get me in UCSF and go back and look at everything inside of me. My wife says he won't do anything like that but I am going to sure try.

    One ER doc here said that our hospital just isn't a specialized one in this area and when the only GI doc in the hospital refused to look at me again since he last saw me 5 months ago I just asked this ER doc what the heck I was supposed to do?

    He said I should go camp out on the steps of University Of California San Francisco Hospital to get them to take me in and go in there . I said " are you serious?"

    He paused a long time and then said no...not serious.
    But I think he was. But couldn't have it on record.
  12. homesheba

    homesheba New Member

    and i also started taking that levaquin
    and since you said it-
    i put 2 and 2 together@!!
    and i also have been getting these wierd feelings
    when i lay down and its almost like
    i want to hallucinate but i wind up saying out loud-' stop' make it stop'
    and wierd stuff cause
    its like my insides are wanting to flutter
    and i have this alful almost nauseous feeling
    or fear or something
    that i just do not have the words either
    to tell a dr.
    there is no describing it at all.
    i thought also i was having a panic attack
    when it starts
    but i also know them and its not one.
    i dont know what it is
    unless it is related to the medicine.
    i am taking it for a kidney infection.

    i hate this.
    i dread laying down...
    if this is the same thing,
    good grief!!
  13. joeb7th

    joeb7th New Member




    homesheba , that is very close to describing this suffering.


    I can lay down to nap or go to bed and both times this often starts then. Won't let me sleep. Almost sends a shock like signal to my brain when I start to fall asleep preventing this. But these feelings...like you said...not panic attacks. I have had enough of those to know. Unless there are two distinct types of panic attacks. My classic panic attacks are mental panic and tremendous shaking of the hands and the whole body. Clammy feelings, feeling of dread. Short breathing, etc.

    But these attacks are different...I almost start feeling them in my penis and bladder and then it feels as if every other organ is starting to go haywire at the same time and then I get the prickly feelings all over, also immediate cold sensitivity and incredible itching on my arms and in back of the elbows and then maybe sweats and crawly feelings on scalp too. I can get hot in the neck are and ears and sometimes sweats but not panic attack increased heart beat type weats...these are just sweats. Very short. But I just feel in my gut that something is affecting my central nervous system when I get these. Making this go hay wire. But it isn't mental stress or worry that triggers these. They just come and weirdly many time when I am laying down. Like you said. Could Levaquin affect our central nervous systems and damge them? Could "Flourine" be the cause of this damage? You know,, the potent chemica in "flouroquinolones" antibiotics?


    i am praying for you now! its alful!!!! 11/10/06 05:38 PM

    and i also started taking that levaquin
    and since you said it-
    i put 2 and 2 together@!!
    and i also have been getting these wierd feelings
    when i lay down and its almost like
    i want to hallucinate but i wind up saying out loud-' stop' make it stop'
    and wierd stuff cause
    its like my insides are wanting to flutter
    and i have this alful almost nauseous feeling
    or fear or something
    that i just do not have the words either
    to tell a dr.
    there is no describing it at all.
    i thought also i was having a panic attack
    when it starts
    but i also know them and its not one.
    i dont know what it is
    unless it is related to the medicine.
    i am taking it for a kidney infection.

    i hate this.
    i dread laying down...
    if this is the same thing,
    good grief!!


  14. cma331

    cma331 New Member


    Joeb....To just try to calm down; have you taken any med? Try deep breathing. Any thing that will tranquilize you right now. You are not going to get an immediate medical opinion.
    Do you take a sleep med? If you do; i would take it and try to sleep this off.

    Wish i could do more to help you. At least you are not alone there.


    Carole
  15. cma331

    cma331 New Member


    Joeb.....Just thought of this. When i get a reaction from a med; i get the craziest things happening to me........Are you on absolutely any thing new? Even Aspirin?

    You said this started about a year ago. I am sure you have been thru much testing.

    Can you take some solice in the fact that so far nothing dangerous has been found.

    I really think ; you need to use; any method that works for you; to relax.

    ((((Carole)))))))))
  16. TKE

    TKE New Member

    I did a search for Levaquin & the symptoms you describe came up over & over. Sure sounds like you're having an allergic reaction to this med. It's in the same class as Cipro...my Huz is allergic to it.. It's very chemical sensative & has severe side effects to most meds.

    If you go to "askapatient" (put in the rest) & type in Levaquin in the search, wait for page to load & then scroll to the right, click on view responses ...read down thru the posts...more towards the bottom & you'll find allot reported the same symptoms you are having.

    Any time you have serious reactions to a med you should never take it again. Your doc should put it in your med file & red flag it.

    Hope you're OK by now.

  17. joeb7th

    joeb7th New Member

    I have taken some Valium in the last 3 days. 2 pills of this 2 days ago and one pill of this yesterday.

    Other than that...no, no other medicines.

    And that Levaquin I took back in December of 2005!

    Carol, this isn't something that goes away by just "calming" oneself or taking a sleeping pill.

    That's my point. I know how to do the breathing, the visualization and all the other measures to get through a panic attack. I have read books, searched the internet and asked so many poeple in the medical field already about panic attacks that I know what they are, and I know how to deal with them. My whole point about posting here today is that what I am experiencing is not a panic attack and actually is more disabling in certain ways. It's scary because it is emanating from within and it is not emotionally induced. So what is it?

    Yet, something is definitely affecting my nervous system and in a way that just throws you into a frightened state.

    When your sense of temperature is changed, your skin itches, and feels prickly and you bladder is affected...these are areas that are highly effected by the nervous system.

    And the other reason I post is just to vent the huge frustration of the obstacle of getting the best medical treatment in this country. I am still holding out hope that with the most qualified doctors looking at me and testing me at the best facilities that they can maybe identify whch part of my body is damaged and or causing all these weird symptoms. But getting this kind of treatment is almost beyond reach if the money to buy it isn't there.

    One of my goals in life now is to try to get this highest qulaity care despite the fact that I don't have these kinds of funds.

    I feel I have choice but to try to find a way to get this care and it may take my whole life to achieve this goal. But I hold out hope that somehow I can do this.

  18. STARSTAR

    STARSTAR New Member

    DID YOU KNOW THAT VALIUM HAS SOME THE SAME SIDE AFFECTS THAT YOUR DESCRIBING.I WAS LOOKING IT UP ON THE INTERNET...AT WWW.DRUGS.COM I HOPE YOU START FEELING BETTER.VALIUM AND ME DON'T GET ALONG I HAD BAD HALLUCINATIONS AND CONFUSION I COULDN'T SEE. MY EARS WHERE RINGING. I FELT LIKE I WAS GOING TO BUST OUT OF MY SKIN. A REALLY BAD TRIP... COULD YOU BE HAVING A REACTION TO VALIUM?
    SORRY I WROTE IN CAPITALS I SEE IT BETTER THAT WAY.I'M NOT YELLING...


    STARSTAR
    [This Message was Edited on 11/10/2006]
  19. Blood sugar problems...however,

    I have no *penis* but, can tell you, that my bladder, urethra, etc can feel pain (sometimes so bad I cannot stand, sit, anything it is so knife-like!--Haven't had it THAT bad, for yrs though, thank god) but, anyways, I was dx'd with NEURO-genic bladder. another word for it is bladder spasms. At first, (back in HIGH SCHOOL! wasn't dx'd til 23 or 24 yrs old) I would just feel like I was about to PEE MY PANTS! I had to leave class, or wherever I was, right then & there......then....in the bathroom..either NOTHING would happen, or a few drops, and I would still be in AGONY feeling like I really really had to go!

    Like the dumb commercial 'gotta go gotta go, gotta go right now" that's NO JOKE!

    I did not realize, (and at first, was a bit untrusting of the doctor--or at least, not sure he understood* the amount of pain I had with them) I did not know how horrible the pain could be along with, because for yrs, I just had the horrible irritation/urgency.

    You say you feel pressure in your penis/bladder, but can't pee...have you not peed at all? Or just can't go at times...if you are not urinating- YOU NEED IMMEDIATE MEDICAL ATTENTION. It could be (especially with chills, sweats, prickly feelings, etc) a bad kidney infection, or bladder infection, Interstitial cystitis, another bladder condition, causes urine retention, bladder doesn't empty all the way, and in some cases the bladder stretches out, quite large, & sometimes surgery is done to correct it..

    The other/majority of your symptoms sound a LOT like bloodsugar problems too---these are JUST suggestions.

    Please, I feel how frustrated you are, but, know that *everyone* here is just brainstorming, trying to help, but, your post does* seem awfully frantic/panicky.

    None of us here, would ever want to make you feel the same way doctors have made all of us feel. Just concerned...

    Have you checked your temperature at all? You ought to monitor it, every couple hrs, maybe even every 30 minutes, just for an hr or two...my body temp bounces like MAD causing me to sweat. It's horrible. My body has lost all ability to regulate ANY hormones, adrenals, body temp, etc.

    this internal tremor, you describe...does it feel like your insides are hooked up to a car engine, idling? Anything like that type of description?

    I've had tightness, dryness, burning, difficulty expanding lungs before....many things are very annoying, but, it is awful to not be able to take a full breath (smoking really helps--duh! It's my vice...trying to go gluten & casein free diet again, since I am realllly supposed to, regular" food tears my stomach, pancreas, & bowels up. Big time..but, it's hard. when I can't prepare (even cut vegies just to juice/blend!) my food. hubby takes care of me, then sis when he works most of the time, or it's the fattening finger foods, microwave dishes, etc.) Ugh. I have no discipline..


    Have you tried (re: the bladder/penis/potty prob) drinking a TON of water? Just another try. When my bladder, etc act up and burn, feel like I have to go sooooo bad, it's so hard for me, but if I drink tons of water, that horrible feeling goes away within the day or the next, ? flushes out irritation, calms spasms, I guess. Works better than Detrol--can say that much.


    Well, I've given *my* go at it, tried to address as much as I could, with just some *ideas*, questions, etc.

    I'm truly sorry you're in such agony, whatever the cause of it...

    Is levaquin (I realize u took it in 05') just a general question---was that one of the drugs that has had a class action lawsuit filed? Anyone know? Several did, we have an attorney commercial with several drugs on it.. I don't remember..


    I wish you peace, asap.


    Laura
  20. elliespad

    elliespad Member

    Offering up another possible cause and a doctor recommendation. I think it sounds like you have been exposed to something causing 1) Neurological disruption and/or 2) Overstimulation of Nervous system.

    Have you been around any chemicals, like pesticides, flea bombs, nutrasweet, splenda, solvents, ant treatments, morter, thinset, workshop type chemicals?

    Also, people with Hyperthyroid can have what is called Thyroid Storm, PRETTY SCARY WHILE IT'S HAPPENING. Beta blockers are usually prescribed to get through the storm. Can often be caused by infections, (esp. lung), surgery near the gland, treatment with Radioactive Iodine, too much thyroid hormone. I'm sure other events could trigger a storm also, but that is what comes to mind.

    I would strongly consider a kidney infection or stones. And a urinalysis is certainly an easy test to do. I have had kidney infections that cause not only the obvious urinary symptoms, but bursting/pressure feeling, going to pop out of my skin pressure. Affects blood pressure.

    You are SO RIGHT about the Levaquin. Floxins caused similiar problems for me, with extreme tendon buzzing and pain. Many products to treat skin problems, like eczema, cause me horrific urinary pain and spasms. So, that may be another possibility.

    I have a friend who takes Rozerem for severe sleep deprivation. She can only take it every few days, as it causes her extreme bladder, urethral pain and blockage. She finds she cannot empty her bladder. It causes some sort of temporary neurologiscal dysfunction. But, because it gives her such effective sleep, she uses the drug only every few days when she just can't get by without it. Her doctor has also taught her a technique to stimulate bladder release, for times she cannot go naturally.

    I also know these bladder issues can be associated with MS. Just trying to think of everything I can for you.

    Your body has 4 main routes to detoxify, 1)Liver (then poop it out), 2)kidney (you pee it out), 3)Lungs (you exhale it out) 4)Skin (you sweat it out). You may be going through an intense period where your body is detoxing a particular chemical, and is using the Kidney, and the byproducts are irritating to the urito-genital tract. Just a possibility I wanted to put out there.

    Now, you mentioned having trouble getting in to see an Endo or a compationate/knowledgable doctor. I once treated with a doctor in California, about 5 or 6 years ago. His name is David Gersten, in Solona Beach. He is an M.D., a Neurologist and Psychiatrist. He is a CFIDS sufferer, and specializes in Amino Acid Therapy. He is BRILLIANT. He knows his stuff. He takes only difficult cases. Not someone who has seen 2 or 3 doctors. He used to treat Gulf War Vets for free, don't know if he still does. He is worth looking up. He will do more extensive testing than you or your doctor ever heard of. He treats using mostly nutritional supplements, but does prescribe drugs, if needed. He requires payment upfront for each visit, all my labs were covered through my Blue Cross/Blue Shield ins. and they paid 80% of my out of network visits. If you're able to see him, you will not be disappointed. He has an extensive website at aminoacidpower.

    I hope you can get some relief soon, in the meantime, by all means moan loudly and keep us informed how you're doing. I will say a prayer that God would give you wisdom and peace and healing.

    elliespad
    [This Message was Edited on 11/10/2006]