Scoliosis and fibro?

Discussion in 'Fibromyalgia Main Forum' started by xphile, Jun 15, 2008.

  1. xphile

    xphile New Member

    My sister had scoliosis so badly she had to have 3 steel rods put in her back to keep it from crippling her. I have it also; not enough they'll operate but enough to cause excruciating neck and back spasms. Weird thing is that nobody else in the family seems to have it and it's supposedly a hereditary disease. My whole family had my sister's surgeon from Johns Hopkins take blood from all of us for testing but we never heard anything back. I'm just curious as to how many of you fellow fibromytes have scoliosis or have someone in the family with it. It could just be an odd coincidence then again there could be a link. Just wondering. Thanks!

  2. TXPeach

    TXPeach New Member

    My mom has severe scoliosis. She also has fibro. My back and neck have been causing me lots of problems lately so I am going to get checked.

    Sorry to hear you have it too. Take care and God bless.

    [This Message was Edited on 06/15/2008]
  3. marti_zavala

    marti_zavala Member

    I have all three. The scoliosis is mild but lately have been having spasms so went to have it checked out. No sign of scoliosis. I think they got my MRI mixed up.

    Now I have to track down my previous xrays - sigh...

  4. jaded_lady

    jaded_lady New Member

    I need to have the scoliosis 'measured'. A physical therapist said it looked like 40 45degrees.

    I think they will only do the surgeries on younger people. I don't know what they will do for us older people.
  5. PainPainGoAway

    PainPainGoAway New Member

    I do tooo-- wore a boston back brace as a teen in the 80's. I didn't need surgery but it has gotten worse.
  6. xphile

    xphile New Member

    I know that occasionally I'll meet someone who has scoliosis, but they're few and far between. It seems so far to me that not all of the people with scoliosis I've met have FM/CFS, but a lot of people with FM/CFS have scoliosis or some other type of spinal problem. My curve is 35 degrees in my upper back and 40 something in my lower although my upper back curve gives me more trouble because the C-1,2,3, and 4 vertebra are twisted(not curved, but twisting sideways and I have a bit of arthritis in it too as well as my upper back) Anyone else with this please reply; it may be a symptom we didn't know existed or at least associated it with this dd Just a footnote, I'd be at least an inch taller with a straight spine.

    Hugs all,
    [This Message was Edited on 06/16/2008]
  7. glenda2

    glenda2 New Member

    i have scoliosis also and i have fm. my daughter has scoliosis but no fm (yet) her legs are starting to bother her and she has rls i am afraid that someday they will tell her she has fm. i pray that doesn't happen.
  8. ginlyn07

    ginlyn07 New Member

    I have it too!
  9. jmq

    jmq New Member

    I was dx with scoliosis when I was 12. It is S shaped and pretty bad. I developed full blown symptoms of Fibromyalgia at age 50.

  10. jaba520

    jaba520 New Member

    Someone else or many who have the same thing. I was diagnosed with scoliosis at age 7 wore a boston brace or several of them since you outgrow them every 2 years, for 10 years.

    At first I wore my brace for 23 hours a day and after about 7 years I had to wear it 12 hours a day. I have a sister who was diagnosed at 13 but her milwaukee brace didnt help at all. she contemplated surgery but didnt get it.

    I was diagnosed with Fibromyalgia about 2 weeks ago and swore all my pain in my back and hips is from scoliosis. But the pain in my shoulders arms and collar bone I am not sure. I am so hopeful Lyrica will kick in soon.
  11. PainPainGoAway

    PainPainGoAway New Member

    Wow-- I've never known anyone else that wore a Boston Brace, other than one of the ortho patients my age that came from a different part of the country for treatment-- I wore mine from age 12 to 18, the first 4 years 23 hours a day, the last few at night. I went through four of them.

    I had one cousin in a Milwalkee, two cousins that needed surgery and my youngest daugher has it now...she's only 9 and they're watching it. They found mine at 10 but it's common in my dad's family.
    Sorry to hear about the FM diagnosis, but welcome to the board.
    Anyone else out there wore a brace? I've asked before but no one here did
  12. LindaH

    LindaH New Member

    After I had my first baby at nineteen I kept having back pains. My mom and dad took me to his chiropractor. The xrays showed I have it. Not sure to what degree. I am 57 now and have had back pain since and not just from the scoliosis.

    From what my mother told me of her childhood I believe she has it too. She tells of her mother making her dresses and having a hard time fitting her saying she was just one-sided.

    My thirteen year old granddaughter has it and will be going to LeBonheur Children's Hospital In Memphis, TN in December to be evaluated. Her pediatrician discovered it last year during her yearly physical and this year said it was worse. Therefore she wanted to refer her on to the specialists.

    There is definitely a pattern in our family.

  13. ulala

    ulala New Member

    I had to wear a Miluwakee brace when I was a teenager. i was so upset that I may have had to wear it to school I thought about jumping off a bridge. Being 13 years old and wearing a huge brace like that was too much. It ended up that I had to wear it at night and if I went to sleep at someone's house I had to bring it. OMG! Thanks for the (bad)memories- not really!
  14. eeyoreblue02

    eeyoreblue02 Member

    My scoliosis is very mild, but my fm can really get me down.

  15. jaba520

    jaba520 New Member

    I am just happy that I have found others that have scoliosis and FM, for the longest time I just said my backpain was from scoliosis, then when my shoulders and collar bone started hurting I was worried that it was something else.
  16. kking0412

    kking0412 New Member

    I had a friend in college with a severe enough case to wear what I think was a boston brace ~ pretty impressive piece of hardware, that.
    my pain dr informed me I also have scoliosis, much to my surprise. and mom said, oh, did I never tell you that? ( ! )
    not bad but I have started wearing a 'corset' (Giaim called it a back chincher) and lemme tell you it is a godsend. I actually felt better as soon as I put it on. an added plus? it forces my boobs, such as they are, back to where God initially put them! so its all good.

    ps: I also have fibro, cfs, chronic lyme & EBV.
    [This Message was Edited on 06/19/2008]
  17. ironspine

    ironspine New Member

    I had the back brace and the surgery for a bad "S" curve when I was 16. Now I'm 48 and have had fibro for at least 10 years. Everyone I've talked to with scoliosis has fibro. My sister has scoliosis too, it is hereditary, and has fibro. We need our own section on this site!!!!
  18. kel589

    kel589 New Member

    me too.fibro and scoliosis.
  19. jaba520

    jaba520 New Member

    where would one find this corset to wear, I have often thought that something like that would help my back pain.
  20. pjj

    pjj New Member

    First found I had something wrong with my back when the Home Ec teacher could not get the hem of a dress to hang straight on me. No brace but Osteopath suggested exercises for scoliosis. At 43, a ruptured disk, L4. Abt 8 yrs ago diagnosed with Fibro and also type 2 Diabetes, now Osteoporosis in left hip. Have pain in feet,hips, spine, shoulders, arms, more so at night or with repetative movements. It's hard to know whats causing what. Don't care for the hang-ove effect i get the next day from meds. I do take a quarter Trazadone at night bf bed which helps me to get to sleep--not necessarily stay that way. Once i wake up and move, it starts up.
    At age 70, I don't think things are going to change.