scubadriver, u can contact me re ciguatera at ....

Discussion in 'Fibromyalgia Main Forum' started by Trini, Apr 9, 2003.

  1. Trini

    Trini New Member

    my email holalfr@aol.com. I haven't gotten any definitive answers abt what to do abt ciguatera from the national cfids foundation who sponsored the study..they simply don't know yet. their winter issue gv an update and i thought they said cholestyramine was a possible binder but i asked their pres abt it the other day and she said it has proven absolutely unhelpful. so i'm discouraged abt not having any treatments esp bec she also said this thing can be passed gestationally and thru breatstmilk for those of us of childbearing age.