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Discussion in 'Fibromyalgia Main Forum' started by JP, Nov 4, 2002.

  1. JP

    JP New Member

    Seeking pain relief through possible back surgery..

    I have sought help from two back surgeons and a neurosurgeon. They have all said about the same thing. I have too much going on for a successful back surgery. Before I accept the rest of my life, at 42, with chronic 24/7 back pain and pain management, I would like to find another doctor who might have better odds of correcting some of my conditions and improving my pain condition. I believe that my FM and other health conditions are secondary conditions from my back injuries and long time pain condition.

    Here is my diagnosis from 2 MRI’s, CT, discogram and 3 specialists…I will keep it very short.

    I have a bilateral pars defect with fractures, 4 bad lumbar discs with annular tears, herniated nucleus pulpous and degeneration (3 causing discogenic pain), extensive degenerative facet changes with cysts, spondylolysis, spinal and bilateral foraminal stenosis, nerve root displacement, bone spurs, lumbar zygapophyseal joint syndrome with multiple tumors and extensive osteoarthritis.

    If anyone knows of a doctor who is in the “best back surgeon” category, please drop a name. I have good insurance too. I am doing all I can to live with this, exercise, good ergonomics, weight reduction, good nutrition and more. Would love a little help if it were possible.

    Too young to give up…
    Jan
  2. JP

    JP New Member

    Seeking pain relief through possible back surgery..

    I have sought help from two back surgeons and a neurosurgeon. They have all said about the same thing. I have too much going on for a successful back surgery. Before I accept the rest of my life, at 42, with chronic 24/7 back pain and pain management, I would like to find another doctor who might have better odds of correcting some of my conditions and improving my pain condition. I believe that my FM and other health conditions are secondary conditions from my back injuries and long time pain condition.

    Here is my diagnosis from 2 MRI’s, CT, discogram and 3 specialists…I will keep it very short.

    I have a bilateral pars defect with fractures, 4 bad lumbar discs with annular tears, herniated nucleus pulpous and degeneration (3 causing discogenic pain), extensive degenerative facet changes with cysts, spondylolysis, spinal and bilateral foraminal stenosis, nerve root displacement, bone spurs, lumbar zygapophyseal joint syndrome with multiple tumors and extensive osteoarthritis.

    If anyone knows of a doctor who is in the “best back surgeon” category, please drop a name. I have good insurance too. I am doing all I can to live with this, exercise, good ergonomics, weight reduction, good nutrition and more. Would love a little help if it were possible.

    Too young to give up…
    Jan
  3. JP

    JP New Member

    Thanks for your reply and care. I hope that someone might know the perfect doc or may have suggestions that I have not tried.

    Maybe there is a board like this for back injuries...I do know there are a number of folks here with back injuries.

    JP
  4. karen55

    karen55 New Member

    JP, I've had 2 back surgeries, and I truly believe they contributed to the FM. I also had 2 previous serious whiplash injuries, but no surgical intervention with those, although I have disc degeneration and 2 herniated discs in my neck.
    I had 2 ruptured lumbar discs with free floating pieces, surgery by a neurosurgeon on both, 1st one in 1996 and the last one in 2000. The pain from the compression on the nerve was excruciating, and yes, the surgery DID relieve that. But the recovery period for me after each back surgery took months. I still have lower back pain, but it's not the same pain as when the discs were ruptured. The key to recovery from back surgery is the recovery period, doing or not doing everything that is recommended for you to do or not do. I know for myself, slow and steady was the way to go, and exercise definitely helped by strengthening the supporting muscles.
    Now that I'm learning more about FM, I believe I started showing symptoms after the first back surgery, but the 2nd one seemed to really light a fire under them, and my "whole body pain" has increased drastically since then, so much so that for a long time I didn't really notice my back pain.
    I truly hope you find some relief.
    [This Message was Edited on 11/04/2002]
  5. JP

    JP New Member

    It sounds like your back surgery caused your FM. It is a tough call and I would not want a failed back surgery. The nerve compression is quite painful and I am forced (in a good way) to find many ways to help lessen the compression. I have a lot of discogenic pain too.

    I can also see from you response why you would not have surgery on your cervical spine. It would really need to be a good trade off to consider a repair.

    I spoke with my family doctor the other day...said, at this point, I would only entertain the thought of surgery if positive results were absolute. She laughed at and with me. She believes that I should continue to push forward.

    I went to a spine center in San Francisco a few months ago that has always taken on difficult cases. It appears that they are backing off from the more difficult cases, probably due to malpractice. They probably want a sure thing too, I guess. They gladly offered me pain control with nerve blocks and facet injections.

    Anyway, thanks again and I wish you many days with minimal pain...no pain would be ideal.

    Take care,
    Jan
  6. nancyneptune

    nancyneptune New Member

    thought about that implant in your spine that sends an electrical signal to your brain, blocking pain? You have so many different problems that I can't imagine surgery helping all of them. You'd have to have a spine transplant!
    I hope you find something. Hugs, N
  7. queenbee69

    queenbee69 New Member

    Dear JP...Reading your post this morning hit right at home. I am 46 and just found out 1 month ago that I also have a reason for my severe back and butt pain...I have stenosis, bone spurs,multiple bulging discs. I have other medical problems due to a car accident years ago. My orthopedist is going over my CT scan and other tests. I go back on the 12. He wants to weigh all of his options before he decides what to do....maybe even send me to a neurologist. The thought of surgery scares me to death. I dont think that I would recover from it. I'm sorry I can't help you with a Dr.,but I do feel your pain and worry. Please keep us posted on any further happenings. My thoughts are with you...queenbee69
  8. JP

    JP New Member

    Hello Nancyneptune and Queenbee69

    Thank you both for your replies.

    N: I do not know about the implant. I will do some research. It sounds pretty amazing. You have a point about a new spine. Even if they would do a 4 level fusion, the health of my spine is poor above the 4 bad discs. I am quite open to new ideas.

    Q: Sorry to hear about all of your back complications as well. I saw a neurosurgeon and went through new tests and a discogram. That was really painful, and about $6000.00 with the CT. I don't wish it on anyone and they discovered more important information during the test. If you have discogenic pain as part of your problem, the discogram will confirm more than you want to know. Hang in there. Just a wee bit of advice...if you do see a neurosurgeon, make sure they further specialize in backs...it makes a world of difference.

    Love to all,
    Jan