Sed Rate and CRP

Discussion in 'Fibromyalgia Main Forum' started by bmon, Apr 28, 2007.

  1. bmon

    bmon New Member

    I have had a high sed rate and C-reactive protein for about 15 years. I test negative for everything my rheumatologist has ever tested me for, but my sed rate continues to be 75-100, and my CRP is 25-50 on every test.

    Anyone else with fibromyalgia have persistently high sed rate and/or CRP?
  2. findmind

    findmind New Member

    My sed rate fluctuates; correlates with my pain levels it seems.

    Many studies have linked high CRPs to high inflammation and lately to heart disease (even more than cholesterol).

    Many other drs think it is overrated and pooh-=pooh the findings

    You need to get inflammation down: I was told to take Omega 3 oil caps and i do believe it has helped me to do so. COq10 is also recommended.

    Hope this helps....
    findmind
  3. greatgran

    greatgran Member

    Yes, I do..my sed rate is up and down but my crp stays in the 20's. It did get down to 15 once..

    My doc just ignores it and so does the rheumy..which makes me mad. If its that high there is something wrong..They say its just inflamation..

    I did mention it to my ENT and he said if it was him, he would have his heart checked out..So I did and was told everything was ok.

    I feel I am in limbo now, to ignore or search futher . I sure am sick of doctors with no answers.

    God bless,
    greatgran
  4. monkeykat

    monkeykat Member

    Hi BMon,

    A high sed rate can be or is indicative of some kind of infectious agent in your body. Have you seen an infectious disease doctor. You may want to think about it. Problem is that blood tests still suck at finding some stealth type infections...make sure you ask to have PCR DNA testing done as that is more sensitive for stealth type infections. Bring a list of typical stealth infections for these illnesses. I need to compile one of these and make another trip to an infectious disease doctor too. My sed rate fluctuates but I know I'm fighting something that they aren't catching...ugh! Your levels are extremely high.

    I also have a high C-reactive protein of 9.11 (normal range is 3 and under). Your CRP levels are really, really high if they are 25-50 on every test.

    My doctor put me on a restrictive diet to get the CRP levels down (limit or no intake of red meat, dairy, white rice, white flour, white pasta, sugar, etc). These things increase inflammation. My health is so inconsistent that I often just have to eat whatever my husband brings me or gets from take-out...I don't have a lot of control.

    Also, increasing Omega 3's really helps decrease inflammation...Barlean's Flax seed oil, Walnuts, Fish Oil or health fish...wild salmon, etc.

    Good luck getting answers,
    Monkeykat
  5. bmon

    bmon New Member

    Thanks for all your answers. I have never seen an infectious disease specialist so that is something to try.

    I just attended a conference on Women and Pain and they said there is some minimal evidence on elevated sed rates in fibromyalgia, but in general it is used to rule out FMS. They also talked about having success with Cymbalta (duloxetine) for pain, sleep, etc. in fibromyalgia patients.
  6. jake123

    jake123 New Member

    When I was first diagnosed with PM my CRP was near 1000. It responded right away to prednisone. I had to take 60 mg for about 9 mo. as I recall. (not much of a recall :)
  7. LouiseK

    LouiseK New Member

    I believe the inflammation can be more systematic than just a particular organ. I haven't read up on this but I just got some books about it. I think the inflammation can actually be at the cellular level. The popular diet book Ultrametabolism goes into this in depth as Dr. Perricone. Both those guys are sold-out book hawkers, true enough, but they do distill a lot of inflammation in formation and also how to lower it with food and supplements.