seeing hematologist on Thursday -- any advice appreciated

Discussion in 'Chronic Fatigue Syndrome Main Forum' started by Rebekah7, Aug 6, 2017.

  1. Rebekah7

    Rebekah7 Member

    Hi All,

    I'm brand new to this forum. I'm a low-income Medicaid patient so I've hardly seen any specialists. My GP has referred me to a hematologist/oncologist for the 1st time on account of my latest blood work showing all iron values low and that I am very anemic. She doesn't know why. Lately my general symptoms have been consistently bad, including consistent lymph node pain and overall pain, as well as severe and constant brain fog (which could be worse due to the anemia, I guess). I've had ME/CFS for at least 6.5 years following a bad case of mono, which was followed by other infections. I know my immune system is impaired and I had a dr wonder out loud if I could have lymphoma, but that was a few years ago and it's been so long I realize that's very unlikely.

    Any and all advice about what to tell/ask the hematologist/oncologist is greatly appreciated. It's so rare that I get to see a specialist, and my symptoms are so bad, that I want to take full advantage. Thank you!
  2. Nanie46

    Nanie46 Moderator

    Hi Rebekah,

    I'm glad you found this forum! There are lots of great people here, so please visit us often.

    So sorry to hear you are going through this.

    It would be helpful for you to learn as much as you can about different types and causes of anemia before you visit the hematologist so you can take a list of questions along.

    Functional medicine looks for the root causes of symptoms/illness like anemia and ME/CFS and addresses them to help the patient reverse the symptoms.

    There are lots of good functional medicine practitioner sites online where you can read about any topic.

    Here are some articles that you may want to read carefully and write down some questions before you go to the specialist.

    http://www.drnicoledinezza.com/doctor-dinezzas-blog/my-approach-to-anemia


    In the following link, you can either listen to the podcast or read the transcript. In the transcript, if you scroll about halfway down the page, you will see it says "Everything you need to know about anemia (and more)". There is tons of good info there.

    https://chriskresser.com/rhr-testing-for-sibo-graves-disease-and-all-about-anemia/

    Hope your appt goes well.

    Take care!
  3. Rebekah7

    Rebekah7 Member

    Thank you for the info. I'll look at those articles. I'm familiar with functional medicine, and am definitely interested in how my ME/CFS could be causing or contributing to my anemia (which, to be clear, is new as of this year -- I've had ME/CFS for 6.5+ years), but I'm also interested in any other non-anemia related questions I could or should be asking the hematologist as a ME/CFS patient (for example -- are there any tests related to blood volume or my immune system I should consider requesting or bringing up?). All advice appreciated! Thanks again.