Selfish Rant

Discussion in 'Fibromyalgia Main Forum' started by FibroAlien, Sep 8, 2002.

  1. FibroAlien

    FibroAlien New Member

    As it is a gloomy stormy day here in Tucson, thought I'd indulge in a wholly selfish, albeit cathartic, rant about FM, the current research, and maybe toss a jab or two at rheumies. My real hope is that you all have points of view that I do not; I could use the change of perspective.

    1) Alpha wave intrusion: if my alpha waves are intruding on my delta phase, why does the rheumy tell me that ibuprofen will take care of everything?

    2) De-conditioning: de-conditioning causes and exacerbates FM. Funny, I wasn't de-conditioned before FM started.

    3) Exercise: exercise relieves to eliminates FM. Please, exercise is a serotonin booster. Serotonin regulates mood and sleep. Therefore, my alpha waves are intruding because I'm de-conditioned and that can best be treated by a psychotherapist and a personal trainer named Hans, who wears little tiny shorts.

    4) Cytokines, Substance P, HPA-axis abnormalities: WHAT? Can you say, "Can't see the forest for the trees"? Despite normal labs, researchers are saying that some as yet undetermined sub-clinical state makes me feel this way? Maybe I should call Hans.

    5) Education: the first step in conquering FM is to educate yourself about the condition. Okay. Oh look, it took me five minutes to learn from the Arthritis Foundation that FM isn't fatal, progressive, or life diminishing. Right.

    All right, enough ranting. I seem to have depleted my serotonin levels. Like I said, I need a change of perspective: and tricyclics and Hans aren't what I had in mind! LOL

    Thanks all.
    Cyndi
  2. FibroAlien

    FibroAlien New Member

    As it is a gloomy stormy day here in Tucson, thought I'd indulge in a wholly selfish, albeit cathartic, rant about FM, the current research, and maybe toss a jab or two at rheumies. My real hope is that you all have points of view that I do not; I could use the change of perspective.

    1) Alpha wave intrusion: if my alpha waves are intruding on my delta phase, why does the rheumy tell me that ibuprofen will take care of everything?

    2) De-conditioning: de-conditioning causes and exacerbates FM. Funny, I wasn't de-conditioned before FM started.

    3) Exercise: exercise relieves to eliminates FM. Please, exercise is a serotonin booster. Serotonin regulates mood and sleep. Therefore, my alpha waves are intruding because I'm de-conditioned and that can best be treated by a psychotherapist and a personal trainer named Hans, who wears little tiny shorts.

    4) Cytokines, Substance P, HPA-axis abnormalities: WHAT? Can you say, "Can't see the forest for the trees"? Despite normal labs, researchers are saying that some as yet undetermined sub-clinical state makes me feel this way? Maybe I should call Hans.

    5) Education: the first step in conquering FM is to educate yourself about the condition. Okay. Oh look, it took me five minutes to learn from the Arthritis Foundation that FM isn't fatal, progressive, or life diminishing. Right.

    All right, enough ranting. I seem to have depleted my serotonin levels. Like I said, I need a change of perspective: and tricyclics and Hans aren't what I had in mind! LOL

    Thanks all.
    Cyndi
  3. Allen2

    Allen2 New Member

    in Phoenix. Don't blame you for being dispirited. The woods are full of folks who have the final, golden procedure, approach, to conquering FM. I believe the research is important in sifting thru the BS to find what is helpful. What many forget is that FM is individual: a hint from someone that helps you feel a bit better may do nothing for me. Wholesale condemnations of one approach or another do nobody any good. I wish there was a cure for FM(there isn't), but it can be treated. It's worth the effort to find a rheumie you respect and other specialists as needed. Hope life gets much more pleasant for you, Al
  4. Shirl

    Shirl New Member

    Hi Cindi, that was quite a vent you had!, do you feel better now getting it all out?? It sure does help sometimes.


    Glad you found our board, and hope we hear from you often.

    I know how you feel, I have had FM for 20 years, I have been to many doctors, but in the end I have learned to treat myself.

    I am only taking one prescription drug, Xanax for my 'racing brain' 0.25 milligrams at 6pm, so that my supplements can help me sleep.

    By the way, it has been 'gloomy' for five days here in Louisiana, rain, heavy winds, and a treat of more to come. But I love this kind of weather, so I don't mine, at the least the humidity is not smothering me, and the temperature has dropped from the high 90's to the 70's, so thats a plus too!

    Again, welcome to the group.

    Shalom, Shirl

  5. MicheleF

    MicheleF New Member

    First of all my apologies--I welcomed you in a thread & did a lol at your fibro alien s/n, but missed totally the fact that you did say you were unhappy w/ your rheumy. After reading this post I see why. The 1st thing that struck me was that he told you Ibuprofen was answer to everything...that was one of the 1st things I got when I started researching this & other official sites...that ibupr. was not recommended for fms, as it really didn't help (not to mention the long term complications). Now, I still take it if I get a headache, but not for the aches/pains...I realized myself that it didn't seem to help.

    Go to the dr. referral section on the homepage. There's some great tips on how to find a good dr. Then choose the link to the co-cure.org good dr list for cfids & fms patients. If nobody near you, post where you're from (& there are several or more members from AZ that may be able to help you. You could also do a search messages on Arizona.

    We're here to support, so vent when you have to, & get ready to learn lots!!! There is hope. Take care..Michele
  6. dlizard

    dlizard New Member

    I hear you loud and clear all the way from tuscon to columbia sc LOL>>>>>>>> just remember that. Can you pass me Hans phone number honey???? LOL I do in my heart believe we are at the forefront of doing somthing about this disease. Remember that clinically.. it didn't* exist until the 90's soooo we ARE the test group. I have 0 faith in research conducted prior to these days cause it simply put didn't exist...I'm here to tell you that I think and feel like my disease has* in fact progressed but I'm one of those had it since a child ppl. I've had things this year that I've never had before. I too have been conditioned and had problems and unconditioned and had problems but I do feel better when I am able to get out and do some real exercise. I never take tylenol or ibuprofen. I exclusively use aspirin. Think about this this way... aspirin is old as the hills, really it is. I'm trying to go natural since nothing else has worked and I too have a wierd rheumie but I personally think every single rheumie I've ever met and that's quite a few over the years is strange and wierd anyway!!! It's like they think... I'm the only one that can solve your problems but I don't really have a clue or am scared to give you what you need little lady! LOL LOL>>>> I doubt any of this helped but maybe I needed to just spit it out LOL>>>>> Good luck!
  7. FibroAlien

    FibroAlien New Member

    Allen,
    Your point is well taken. And, please note, no wholesale condemnation of one set of theories or another was intended. I would never attempt to steal neither help nor hope from anyone.
    My frustration arises on two fronts: no research has demonstrated to me to the level of cellular response just what occurs in FM/CFIDS; and, secondly, rheumies I am finding are incapable of saying, "I don't know". From that I can only determine that rheumies have the highest income to knowledge ratio of any job on the planet.
    And take care to notice, I speak with tongue-in-cheek a great deal. Helps me understand that FM is just that: Freakin' Make-believe. LOL
    But you points aren't lost on me, Allen, thanks for taking the time to respond. Stay cool and dry.

    Cyndi



  8. FibroAlien

    FibroAlien New Member

    Hey all,

    Thanks gang for your understanding and input. We are all in the same boat and its nice to know, if nothing else, that others are quite strong emotionally and mental to see the whole bunch through the fog to the other shore.

    Gentle hugs to all,

    Cyndi
  9. Suz15

    Suz15 New Member

    Now that post, I really needed to read this morning. Im finding that laughter does help. Im new to the board, but, Im learning a whole bunch. Welcome

    Hugs to ya
    Suz