Severe head and face pain

Discussion in 'Fibromyalgia Main Forum' started by Michelle_NZ, Jun 13, 2006.

  1. Michelle_NZ

    Michelle_NZ New Member

    Help! I've been experiencing some of the worst pain I've ever felt in the last 2 months and I'm struggling to cope with it, and my doctors wont give me any decent pain meds.

    The pain starts with a feeling of numbness in my head and face when I wake up. By lunchtime the pain is starting. It's intense around my eye, forehead, cheek, jaw, my teeth feel like the nerves are exposed. Its mostly on the left side, but the last week its coming on the right now too.

    The pain is an intense burning ache, sometimes with waves of more intense pain. It has me in tears sometimes.

    One of the many health professionals I am seeing has suggested something called "central sensitization" - a kind of hypersensitivity of the CNS. I am waiting for a referral to a pain clinic here in NZ, but I was wondering if anyone here is experiencing this, and can you recommend something that has helped with this type of pain. Normal pain meds dont seem to help at all.

    Thanks everyone
    [This Message was Edited on 06/14/2006]
  2. KMD90603

    KMD90603 New Member

    The only thing that really comes to my mind is possibly a sinus infection. Just from the area you describe, it sounds very similar. Have the doc do a CT scan just to be sure. If it's not that, then I'm not really sure what it could be. But, I hope the pain clinic can help you get rid of this pain.

    About a year ago I had what I thought was a migraine. It was very painful and I felt it on and off over the period of a few months. Then, the pain became so bad I ended up going to see my doctor. He said it could be a sinus infection, and he sent me for a CT scan. He called me the night before Easter and said it was a sinus infection and he was calling in an antibiotic. I was on antibiotics for a month, because it was a very bad infection and he wanted to be sure it was all cleared up. Even my infectious disease doctor commented on how bad this infection was.

    So, what you're experiencing may or may not be this. However, it's worth checking into just to be safe.

    Gentle hugs,
  3. painache

    painache New Member

    Dear Michelle
    This is my first time posting.I have experienced the same type of pain you are describing.I have been to my doctor many times because of this complaint. Pain in my cheek, teeth, eye, nose,back of my head and ears. Eventually I had pain on the whole left side of my head that spread down my neck into my shoulder and back. My family doctor sent me to an neurologist and he prescribed a tricylic antidepressant for pain and sleep.He also referred me to a doctor which here is consider a specialized dentist.The practice is in Temporomandibular disorders and orofacial pain. The specialist sent me to physio and there they tried accupuncture which I could not tolerate and made my pain worse. The nerves I think were just so over sensitive any stimulatiion aggravated my condition . He also did ultra sound which I think did help in combination with moist heat after the ultra sound.I couldn't tolerate touch let alone massage either. I would swell on the left side of my face and the pain would increase making sleep almost impossible. Also a splint was made for me to wear at night. I would clench my teeth because of pain during the day and night which put added stress on my joint and muscles causing more strain on my nerves as well.The burning in my tissues gums teeth and skin is one of the worst pain experiences. Try eatting only soft foods and applying moist heat to your face.The next line of treatment that the doctor wnted to try was trigger point injections . I was afraid to try this because it is very painful and I Know what just touching me does to my pain level. It is also very costly and is not a cure just a treatment but it might be something you wish to try. Also a tens unit was tried and I felt relief from my pain with this treatment.I hope this was of some help.Take Care Pain
  4. gymmbabe

    gymmbabe New Member

    I also have pain and numbness on the left side of my face. I do believe its a myofacial point. I went to pt yesterday and today my face feels like I have been beaten. Moist heat and rest seem to be the best treatment for me. You are not alone...this is just another symptom of this awful disability.

  5. Adl123

    Adl123 New Member

    Dear Michelle,
    I'll tell you what happened to me. I had (and still have) a red face, swelling, pain in my head, and aches in my gums, as if I had an infection. The truth is, that I do have an infection, namely four bone marrow infections in my gums..

    I went to a Dr. who said that he had over 70 patients who's CFS/Fibro had been triggered by such infections, caused by root canals. It is almost iimpossible for dentists to get all of the bacteria out of the bone when doing a root canal, and it just continues to grow, until the system is poisoned.

    Why don't you go to an oral surgeon and ask about this? Mine ordered a nuclear scan (bone infections can only be spottted by a nuclear scan), he did a biopsy, and his fears were confirmed. I would be a whole lot better now if I could take antiiotics , but I can't.

    If you have ever had a root canal, or even if you haven't, I think this would be a good step to take. My oral Surgeon's name is Dr. Swann, and he is in Milpitas, California. He is very nice and I think he would be more than willng to speak to your Dr.

    Good luck,
  6. Cromwell

    Cromwell New Member

    I think I have said before about how similar our pain is. The thing that helps me is physical therapy where they use trugger point massage and gentle stretching of the neck. I am also about to post as what has been happening to me of late is that as the pain and numbness/tingling subsides in the neck I get these small zaps all over the place, not just on the left. Feels like I am being stung by nettles. It can last anything from a few seconds to most of teh day whereas the head face and neck stuff is permanently there.

    Loist heat wraps also help for daytime. In the eceving, ice pack then waearing a soft neck collar to bed and only one firm pillow. I had been wrapping two pillows around my neck but this was apparently making it worse.

    I am so sorry. Look for my other post in case there are replies there too.

    Michelle I am just editing to add that I started taking some Zithromax today as I think I have sinus infection as my son has the exact dizziness and head pain due to one, so I think this may be adding to it all. The trouble is wiht the head pain, we tend to forget we can be having a sinus infection too, as I did.

    Love Anne Cromwell

    [This Message was Edited on 06/14/2006]
  7. Michelle_NZ

    Michelle_NZ New Member

    More questions for me to ask my doctor about!

    Thanks again
    Take care
  8. pammy52

    pammy52 New Member

    and if you haven't been to a dentist you definitley should include that as part of your search for an answer.

    An absess or failed root canal,TMJ,etc. can cause the kind of pain you are describing.
    Trigeminal nerve pain can also be at play.

    Depending on your ins. you might not be able to see an oral surgeon, as suggested, unless you have a referral from a dentist.
    An ENT...Ears,Nose and Throat doc may be in order also.

    Good luck and keep us posted.


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