severe vertigo

Discussion in 'Fibromyalgia Main Forum' started by boho, Mar 10, 2007.

  1. boho

    boho New Member

    HI is anyone been suffering from vertigo lately? My balance has been way off course.I see new rheumatogist this week.
  2. sfrazier

    sfrazier New Member

    I've never really put a name on it but yeah i'm constantly tripping over things that aren't there and just kinda running into the corners of my walls. i just for some reason keep running in to them. standing is not the easiest always either. I also get the dim hearing when i stand up a lot of times.....SueF
  3. boho

    boho New Member

    THANKS Suef,i was just wondering if anyone else had this problem
  4. Slayadragon

    Slayadragon New Member

    Can you describe your vertigo? There are all different kinds.

  5. Slayadragon

    Slayadragon New Member

    I bumped up a couple of threads on dizziness to the top of the board.

    One is called:

    mezombie (bppv)

    The other is:

    dizziness/labyrinthis

  6. Shalala

    Shalala New Member

    So who do you go to for vertigo? hmmmmmmm Sure isn't my PCP ... lol. An EAR/NOSE/THROAT Specialist or NEURO? Gosh all of this makes me even more dizzy (yo yo-ing with thesse dern doctors).
  7. clerty

    clerty New Member

    Hi

    I am not to sure what this means I have been having dizzy spells also and I need to go back and see my ENT consultant
    this week he just said it was negitive era pressure in my left ear
  8. boho

    boho New Member

    MY VERTIGO MAKES ME EXSTREMELY DIZZY,I HAVE FELL A FEW TIMES,THE DR SENT ME FOR TEST BUT IT WAS NOT AN INNER EAR PROBLEM,ALSO HAD MRI ON BRAIN.
  9. lillyrose33

    lillyrose33 New Member

    this has been a bad month for me and vertigo. I go to see my ENT tomorrow.
    I was diagnosed with Menieres in 2004 and have been in remission for two years when out of the blue the vertigo and tinitis started. With the Menieres and Fibro I have some really bad days.
    Good thing you are seeing doctor. Good luck.

    Lillyrose
  10. spunky1717

    spunky1717 New Member

    I have a whole lot of extreme dizziness in the spring
    and fall. I've had to go to ER several times because I
    could not stand up. They could never tell me what it was.
    They gave me motion sickness medicine, so I just keep it
    around now and take when needed. Teresa
  11. monicaz49

    monicaz49 New Member

    currently this is my worst symptom. its life altering for me and i can not do much other than sit at home. I feel like im on a boat moving..plus my balance is wacky.
  12. blkkat

    blkkat New Member

    I GET IT ALL THE TIME, BUT IVE ONLY HAD IT REAL BAD 1 OR 2 X WHAT HELPS ME IS EIGHTER TAKE MOTION SICKNESS MEDS. OR SUDAFED- THE CHEAP KIND. HOPE THIS HELPS . GOD BLESS- BLKKAT
  13. desertlass

    desertlass New Member

    I do feel kind of a general dizziness at times, but the vertigo is so much more sudden and severe-- it feels like my brain has done a somersault, my eyes kind of roll backwards, I lose control of my hands (drop whatever I'm holding) and lose my balance. I feel like something is trying to push me down and backward. Even if it hits while I'm lying down, it kind of makes my head rear back and my arms flop down to my sides. I've told my husband that I have no idea what a seizure would be like, but this feels like a mini version of one.

    After it's over, I feel kind of "swim-headed" for a while, as my mom would say, and I can read or talk if I force myself to, but it feels really difficult and awful to do it. I might get over it in a few hours.

    Sometimes this happens more often when I'm having a separate but concurring problem with my heart being off-kilter. I don't know if they're connected, but i think they both might be tied into nerve impulses as a regulation problem-- i have a lot of ringing in the ears as well, but my blood pressure is normal. So, who knows... just info that might help someone else in the same position.

    Also, Laura Hillenbrand (Seabiscuit) seems to have vertigo as one of her main complaints.

    Thanks for the thread
    Lisette
  14. boho

    boho New Member

    THANKS FOR ALL THE HELP,THIS VERTIGO AND DIZZINESS RULES MY LIFE AS IF HAVING FIBRO AND CFS WERE NOT ENOUGH! I HAVE TO STAY IN BED ALOT,CANT GO ANYWHERE LIKE THIS CANT EVEN DRIVE TOO DANGEROUS>TAKE CARE.
  15. elizajane40

    elizajane40 New Member

    My vertigo and ear pressure is helped by taking a dirurectic every day.

    It really helps this problem on a long term basis. I used to have to worry about driving and no longer have that issue.
  16. elliespad

    elliespad Member

    I used to get it several times a year. Had a spell 2 weeks ago while visiting my daughter. Was horrible! Dizzy, head spinning, nausea. I learned from one of my doctors that it is often caused by reactivation of certain herpes viruses, usually Cytomegalovirus,(CMV). Interestingly, I had a GIANT painful THING. Like a ZIT but NOT a ZIT on my forehead, that I was saying buzzed and itched. (Had thought initially that it was a spider bite, was REALLY painful) But, AAha, made the connection, it was a herpes outbreak and probably linked to my VERTIGO. So, took 1,000 mg of Lysine 3 times a day. Was gone in 2 days.

    Usually I tell people to take Turmeric (the HERB, not the SPICE) to combat herpes viruses, but I was away from home and Lysine was available at the local Health Food Store. They didn't have Turmeric, go figure.

    So, either Turmeric, or Lysine might just fix you up quickly and cheaply. Both cost less than $10.
    [This Message was Edited on 03/14/2007]
  17. boho

    boho New Member

    thanks for advice,i have seen several drs including ent,hearing centers,neuro and they cant find the problem,my blood pressure meds have diuretic in them.They also did mri on the brain.
  18. kjfms

    kjfms Member

    Sorry you are suffering from vertigo. Have you considered asking your physician if you can take an antiemetic such as Meclizine (Antivert)?

    If your physician gives the OK -- it is cheaper to get it over-the-counter (OTC is 12.5mg) most Rx is for 25mg.

    It makes me very sleepy so you want to be careful and follow your physicians instructions -- best wishes.

    I use it for motion sickness as well.

    Hope you feel better soon,

    Karen :)
  19. balletdancer74

    balletdancer74 New Member

    Hi,

    You're not alone. I have M.E., FM, etc., and when I first started to develop FM unbeknownst to me, I felt "dizzy" and off balance. My equilibrium was way off and people would laugh at my tripping and stumbling. As a former professional ballet dancer, being "clumsy" was nothing new, but this sort of off kilter behavior was different even for me.

    When I than fully collapsed with M.E. and got properly diagnosed with both, I had my first bout with true vertigo. The room wasn't spinning. Instead it was like a ferris wheel as opposed to a carousel/merry-go-round which is more dizziness. There's a difference.

    I had both my neuro and ENT look at me, and it wasn't an inner ear virus. It was an "episode" of M.E. and/or FMS. I had ten days of insane pressure in my head and the inability to keep my eyes closed for too long...

    Eventually, it just went away, but I'd suggest seeing both and ENT and neuro.

    I hope it goes away completely very soon. You got some very good advice on this thread.

    Warmly,
    LB32 (Leeza)
  20. Shalala

    Shalala New Member

    There are three types of treatment given to patients with BPV: medical care, surgery, and home treatment.

    Medical care (office treatment) consists of either the Semont maneuver (also referred to as the Liberaroty maneuver) or the Epley maneuver, named after their inventors.

    The Semont maneuver (a series of head-turning exercises) involves a rapid shift from lying on one side to lying on the opposite side.

    The Epley maneuver involves sequentially moving the head in four different positions and waiting for 30 seconds on each turn.

    These maneuvers are effective in approximately 80% of patients who are diagnosed with BPV, although symptoms may reoccur after initial improvement in a substantial percentage of patients.

    If office medical treatment fails, patients can continue treatment at home with the Brandt-Daroff Exercises, which are difficult to perform, but effective in 95% of cases. These exercises are time consuming and done in three sets per day for two weeks.

    Medical treatment with medications is not recommended since they do not help relieve symptoms.

    A surgical procedure called posterior canal plugging can be utilized in patients who had no response to any other form of treatment. With this procedure, there is a small risk of hearing deficit (usually less than 20%), but it is effective in most patients. The posterior semicircular canal is excised, exposing the membranous labyrinth with floating otoliths. The canal is patched off with tissue so otolith particles cannot move into the canal to stimulate the hair cells within this area. The canal is sealed and the incision sutured. Typically, the patient will stay in the hospital overnight and return one week later for suture removal.