For 12 years I've suffered from terrible shooting/burning/achy pains and sometimes numbness. I've had all the tests for MS and all come back negative. My symptoms all seem to be related to the quality & hours of sleep I get. Less sleep=intolerable pain to the point where I'd rather not live that day (no,I've never been suicidal) but it's just an awful existence. I'm 33 and have been to rhum dr who says it's fibro, but I don't have any trigger or tender points. All neurologists say don't know what it is. Physiatrist says need to exercise more. I've tried, paxil/elavil combo, lyrica, neurontin, ambien, lunesta, tramadol, trazadon and nothing works.The only med that helps me sleep is xanax which I know can be addictive, but it's the only thing that helps me fall back asleep. I've been tested for Lyme which is always negative, but I've heard that there's a more specific test but my neurologist doesn't know what that test would be. Do you? At this point I'm so desperate. I was also diagnosed with Interstitial Cystitis (IC) of bladder 10 years ago and and have to pee all the time, but I've never had any pain with it. Last year a new urologist did a distention of my bladder and she sees no evidence of IC. I tried at least 3 drugs to help with frequency and nothing helped. I'm am so desperate and am losing hope. I’ve also been tested for vit B1,B12, D deficiency. I was low and not take supplements but still no relief. I also had 2 miscarriages in 4 months last year which OBGYN said would have nothing to do with my other medical symptoms. I'm almost 34 and want so much to be a mother, but no that I could never do it with the bizarre condition that I have b/c the only way I'm able to make it thru the pain is by getting sleep. And baby=not much sleep and I would be in so much pain. I feel like I am the only one of the 6 billion humans on earth with my symptoms and I am so tired and at my wits end of 12 years of suffering with no help. My neurologist is now suggesting gabatril. Does anyone have a similar story who can help me get some help. Please, I am so desperate and sad.