Should I ask to go to pain management?

Discussion in 'Fibromyalgia Main Forum' started by Iam1ShadyLady, Aug 8, 2008.

  1. Iam1ShadyLady

    Iam1ShadyLady New Member

    I am so afraid to ask my doctor because I have had such bad experiences with doctors in the past. I am so tired of suffering though!!! My doctor currently has me on Lyrica 300mg a day, Darvocet 100-650mmg 3x a day, seroquil 100mg at night for sleep, and zoloft 25mg for depression. The seroquil and zoloft are prescribed by my mental health dr. The rest are from my regular family dr. He has me scheduled to see a rhuemy in December but I am nervous about it cause the last rhuemy I saw asked me first thing if I was seeing a shrink cause FM is a mental disorder, needless to say I got up and walked out right then.

    I am struggling with asking him to go to pain management because I don't want him to think that I am just seeking drugs, but I am so sick of living with this pain. I am not working anymore so I won't hurt anyone by taking meds. I am only 34 and I cannot imagine living like this for the rest of my life. I am a Christian and that is the only thing besides my love for my family that keeps me from ending it when it is really bad. I would never kill myself but if God were to take me when I am in my worst pain, it would be a relief. I am just so tired! Even though I am sleeping the pain is wearing me down physically and emotionally. I need help but I am so afraid to ask for it.

    Any advice would be greatly appreciated. I so want relief, I just want to ask for it in the right way. I can tell you right now he won't go up on the Lyrica and he doesn't want to run a mercury test because he doesn't believe the fillings can cause it even though I have read studies on the internet that say it does. He said the rhuemy could run it, but he wouldn't. I just don't feel like he is aggressive enough. He is a family dr and a Christian and he is sympathetic but I think he thinks all I do is feel sorry for myself because the one time I've seen him and not his PA I broke down in tears and totally lost it. I go back to him on the 14th and I am so nervous about it. Help me please!!!!
  2. dragon06

    dragon06 New Member

    I would explain to him how debilitating the pain is to you. Tell him how much it controls your life and how much pain you are in constantly. Tell him you need something to help that.

    As for pain management doctors...the jury still seems to be out on them. Some people go to them and have great results, other go to them and end up worse off then they were before. Use the search feature at the top of the page to search what other people have had to say about pain management doctors/clinics.
  3. hermitlady

    hermitlady Member

    I think if you don't feel comfortable enough to talk this over w your dr, then you should find another dr that you do feel comfortable with.

    I've run into a few drs that made me feel like a worthless complainer. I didn't return to see them very many times needless to say. The doctors work for us, so if you don't feel like you're getting the right treatment and attitude from him, move on to someone else.

    I've thought about seeing a pain mgmt dr, but haven't really looked into it. Good luck to do not need to live in pain like you are, it is not fair!
  4. Iam1ShadyLady

    Iam1ShadyLady New Member

    Like I said I've only seen him once. I've been seeing his PA and was comfortable with him, but he wanted me to start seeing the doctor. So I saw him last month and had a total breakdown. I hadn't had any sleep the night before cause I was worried about seeing him. I've had bad experiences in the past with drs. He took me seriously I believe because he gave me 5 refills on the darvocet and told me that he would like my depression med and sleep med changed but I would have to clear it with my mental health dr first since she prescribed it. He made recommendations of Cymbalta and Abilify instead of Seroquil and Zoloft. He told me to tell her I wanted to change to these but if she wasn't comfortable doing it then he would be happy to take over for me. He said not to burn any bridges cause I might need her again. He also witnessed to me, which surprised me. I am a Christian so I wasn't offended at all, just surprised, cause most dr's don't bring up religion. He told me that we don't know what God's plan is. He said there may be someone sitting in the lobby with me one day that might need to hear my story and what I've been through and how I'm dealing with it. He said that no one asks for a chronic illness or anything. He said look at Christopher Reeve, he didn't ask for what happened to him, but he made something positive out of it and touched alot of people's life. He told me that I have FM and I have to learn to deal with it. I told him that I thought I had, but I am having to start all over again since I lost another career. He really made me think. I think that he is a good dr, but he is not a specialist. He is a family dr. He wouldn't even talk to me about Prednisolone or any steriod treatment or cortisol treatments. He said it would burn up my adrenal glands even though I took studies from the internet with me to support low doses, he wouldn't read them. He also wouldn't do the mercury test because he doesn't believe that almagams can cause mercury poisoning, and I had printouts to support that it does. He wouldn't read them. He said that he would refer me to a rhuemy and if they wanted to do the cortisol, or run the mercury test they could. I just don't think he understands FM. I think he is doing the best he can to his ability, but he is closed minded on new treatments.

    I am going to go to the rhuemy and see what happens. I just wish it wasn't so far away!!! I even called them and asked if they had an earlier appt and they said nope, they are booked up. I guess I'll just have to wait.

  5. jenn_c

    jenn_c New Member

    Hi, I too was afraid of being thought of as drug seeking. I have a wonderful Primary Care doc, but he was not well versed with pain meds. After we tried several different meds I asked him if he wouldn't mind referring me to a pain doc. I explained that I completely trusted him and wanted to keep him as my PCP. He was very understanding and referred me to a wonderful pain doc. It took a little time ,but now I think my meds are pretty well set. I take 450 mg. lyrica, 100 mcg fentynl patch, 750 robaxin 3x daily, 400 mg celebrex. I also have my mental health ones that are done by my nurse practitioner at my therapists office. I still have flare ups but have noticed that the intensity has lessened. Now I have tennis elbow which the meds don't help because fentynl is for chronic pain not acute. But I am getting some help with that. Please ask your PCP. If he is worth your trust he will understand. Hope this helps. Jenn
  6. Iam1ShadyLady

    Iam1ShadyLady New Member

    It does help tremendously. I guess I am still gunshy because when I was first diagnosed I lost the dr that diagnosed me cause I lost my job and lost my insurance at the time. I got on state insurance and ended up seeing some really bad drs. At one point I was on 13 meds, only one of them for pain. They did not help me and I ended up being treated like a drug seeker and a mental case. Now I am finally getting good drs, but I am still nervous because of the bad treatment from before. I just want to have some kind of life. I will talk to my dr and give it a shot.

    Thanks again,

  7. jenn_c

    jenn_c New Member

    If he gives you an issue then look for another PCP. Does your insuarnce require a referal from PCP to go to a pain doc? If not then you can go with or without your doc's blessing. You are not drug seeking, but rather you are seeking quality of life. Everyone deserves that much.

  8. Iam1ShadyLady

    Iam1ShadyLady New Member

    Unfortunately I am on state insurance and I have to have a referral.. and I also can't just change drs. They appoint you a dr and you are supposed to keep that same dr for the whole year. It will be January before I can change if I do, and then there's no guarentee I'll get a better dr because they appoint them. This is what I went through before after I was first diagnosed. I had private insurance till I lost my management job because of FM, then I had to go on state insurance and it did not go well for me. That is why I am trying so hard to give this dr the benefit of the doubt cause at least he acknowledges FM and is trying to help me. I think I am going to talk to him about pain management but if he balks or gets a negative attitude then I'll tell him I'll wait to see what the rhuemy says. Just keep me in your thoughts, I see him on the 14th. Thanks again.