Sinus Problems Anyone???????

Discussion in 'Fibromyalgia Main Forum' started by pumy, Dec 30, 2002.

  1. pumy

    pumy New Member

    Happy New Year Everyone,

    I have been having tremendous sinus headaches and facial
    pressure. I suffer with migranes, tension and sinus headaches. 8 weeks ago I received cortisone injections
    at the base of my head for tmj and migrane pain, it helped
    so much, however in the past couple of weeks I have had
    such bad sinus headaches. I have once again started antibiotics thinking it was a sinus infection. I seem so prone to sinus problems. I regularly take claritin d for
    allergy symptoms which usually helps with sinus pressure.
    I have read barometric pressure rising and falling plays
    havoc with some with folks sinus problems. Does anyone else
    experiance this???????????? Pumy
  2. Lilac42

    Lilac42 New Member

    I also have this problem,I also have Fibromyalgia.I have tons of pain in my hips and groin area,pain in my knee's ,the muscle in my fingers some days is unreal.I take Flexril so I can sleep, but I wake up and my hips still hurt like hell.There's days I can barely light a casserole dish from my oven.And,yes I have found that the weather does play a big roll with my pain.Alot of times,I can sit only for a short while and have to get up and do something,then to only have to sit back down again.My doctor asked me how long have a been having these problems,I told her for the last 3 years.I use alot of heat,for not only my sinus's,but ,my hips to.There is days I have to take naps in the afternoon.I may have not done anything,but,felt like I put in a 20 hour day.I have told my b/f,that he needs to read about this,so he will know what I"m going through.He hasn't read anything yet.I go this friday to the doctors to have a lump removed from my back,and my left arm.(both lumps are on left side)I have had lots of operations,but,I hate the thought of this one.I live in small town,and we don't have ANY doctors who really deal with this.I have a RA,doctor,and shes the one who told me whats wrong with me, she has taken the time to have x-rays done,to help me find out whats going on with me.I love this site and I"m so glad I was told about it,I sometimes feel like I"m dealing with this by myself.I hate it that I have to tell the doctors whats wrong with me, and then they go looking into it.This RA,doctor told me she was glad I looked up on the internet what might be wrong with me,and then I tell her,yeps thats how I feel.My prayers are will ALL of us,I know how most of you feel,your NOT alone.Take Care & God Bless Lilac42
  3. fibolady

    fibolady New Member

    told me the weather causes many headaches, the changing of. the weather has changed this week, and yes i awoke yesterday with the beginning of a migraine. my son also suffers terribly and was fine sunday (warm) and sick with terrible sinus yesterday.

    here is what is working for my migraines now. i have tried everything. the nasal injections of imitrex, as soon as i awake with the headache. then i take torodol during the day (anti-inflammatory), seems to work better than taking the pill imitrex. at least it worked this week, but next week it might not.

    do you have a night splint to wear for the tmj? i just got mine yesterday. they are expensive, haven't had it long enough to say if it helps with my tmj, but others might.

    warm regards, fibolady
  4. pumy

    pumy New Member

    Yes I do have a tmj appliance custom made from my dentist.
    It does help with my jaw and back of my head pain,especially early am. My dentist adjusts my tanner every 3 weeks. It does help and I noticed results quite
    fast. So relief is on it's way for you. Cortisone injections also helped me. Wishing you a pain free holiday. Pumy
  5. fibolady

    fibolady New Member

    how does your dentist adjust your retainer. maybe mine is different, it is like a soft plastic orthodonic retainer for the top teeth. dentist never said anything about having it adjusted. just wondering.

  6. griswoldgirl

    griswoldgirl New Member

    suffered with chronic infections that lead to bronchitis at least once a year if not twice. Anytime I get a cold it turns into infection.

    i have found zycam very helpful--I feel a cold coming on I put the zycam in my nose, take ibuprofin, and a anthystimine immediately and usually it does not getme.

    Right now though I have been sick for about a month, first a cold, sinus infection now bronchitis-I smoke though so it is some of my own fault, need to quit. smoking wrecks havic with sinuses.

    i use flonaise year round to keep me clear, it helps. I have delt with the sinuses for years and it is a pain in the u know what!

    happy breathing

  7. pumy

    pumy New Member

    My appliance is called a tanner. It is made of what feels to be very hard plastic. It was made from a impression of my top teeth, every 3 weeks I go in to have the fitting checked. Evidently during use at night it must change how it fits,and that is the reason for the adjustments. It does help quite a bit, though quite costly. The price of the adjustments are calculated into the price. Hope that makes some sense. Pumy
    [This Message was Edited on 12/31/2002]
  8. nancyneptune

    nancyneptune New Member

    one of those soft silicon bite guard thingys, and it helps not at all because i still clench my teeth all night long. I have small holes starting in parts of it where my teeth are sharp. It's just an added piece of stuff to bite on. I wish it worked but it doesn't.
  9. Mikie

    Mikie Moderator

    I every got was from reading a book by the head of the ENT Dept. of the Univ. of Colorado School of Medicine called, "Sinus Survival." Denver is the sinus capitol of the world.

    Make your own saline solution with sea salt and warm water and sniff up your nose several times a day. Hold your head slightly forward and hold one nostril closed while sniffing the solution up the other. Do not use the prepared sprays you can buy. They contain a preservative which is harmful.

    Love, Mikie
  10. Kim

    Kim New Member

    Neuro diagnosed me with migrain (classic and common), sinusitis (just since October), tension headaches. I have FM, CF, clinical depression. Can't take meds due to heart arrhythmia. In October I developed dizziness which doctor's can't trace. I've had MRIs CTs blood workups, vestibular testing from two very good neurologists. Had neck injury in car accident two years ago.

    My question (after all that) is does anyone else have dizziness day in and day out, fluctuating intensities? Not the fibro-fog or lightheadedness, but pressure in your head accompanied by dizziness. Mine worsens when I'm on the computer or shake my head, bend over, etc.

    Thanks, kim
  11. lucky

    lucky New Member

    I just like to share something with you. Having suffered every 2 to 3 months with chronic sinus infections for the past almost 15 yrs., and a ton of antibiotics, I believe that my doctor and I have found the answer to this problem. With CFS/FMS a lot of us tend to suffer from candida overgrowth because of many antibiotic treatments for various infections.
    It is unbelievable how fast my sinus problems were clearing up after I took an antifungal med 'Nizoral' for 3 weeks. This drug has to be monitored because it can be toxic to the liver. Not only has it helped my sinuses, but IBS, fatigue, etc. as well. I am on a 2 months prescription now and will add grapeseed as well. I have done all the other recommended alternatives which did not help, they are just not strong enough in many cases.
    If any of you would like to know more about fungal sinus infections, the mayo clinic is a good source.
    Happy New Year to you all, Lucky
  12. Shirl

    Shirl New Member

    This is going to sound very silly, but I suffered with sinus, allergies, cluster headaches, migrains etc. for 15 years. I took a literal drugstore, prescription as well as OTC's.

    Then I read a book called; 'ABC of Asthma, Allergies & Lupus' by F. Batmanghelidj,MD.

    According to this doctor, we, in America are for the most part dehydrated. He recommended drinking half your weight in ounces of water per day, along with a quarter teaspoon of Sea Salt.

    I did it, its been about 8 months since I started drinking water, I did not drink any water before this. The only just water I ever drank was to swollow a pill.

    I went from having headaches, sinus attacks weekly, to almost none now. If I do get one, it does not last but a couple of hours instead of days at a time.

    Here is a site you can read about the water drinking, and what it helps, you will be amazed what water can do for your body!

    By the way, I do have Fibro, and the 'fog' has lifted a great deal since drinking water and taking the sea salt too. My skin also looks great (I didn't notice this, my husband did)!

    I did have a problem with a bottled water, tried most on the store shelves, and finally decided on 'Evian', its light and goes down easy, regular water choked me.

    Its a little expensive, but if you quit drinking sodas, you would come out spending about the same amount and be a whole lot healthier!

    Shalom, Shirl
  13. healing

    healing New Member

    I echo the experience with candida -- when I frequently have overgrowth, I have sinus pain (and my ears itch!). But I also have found that sacrocranial manipulation can relieve intense sinus pain when I don't have candida, overt infection, or allergies, and when the barometer is stable. There is a little funny-looking device (looks like a baboon's fanny) called a stillpoint inducer that can help a lot with sinus pain and tension-type headaches, both of which can be caused by muscle tightness in the upper neck and scalp. You just lie down, rest the back of your head on it, and close your eyes for a while. I recommend it to you.
  14. karen55

    karen55 New Member

    with sinus infections or sinus problems for most of my life. I would get 2 or 3 a year, usually they would turn into bronchitis. I have noticed for quite a few years that when the barometric pressure changes (as in when a storm is approaching) I get some awful sinus headaches and have sinus problems. But I've also noticed that cutting out or severely limiting sugar in my diet has improved my sinus problems greatly. The other thing that I swear by is sea salt water. When I was on a cruise on my honeymoon I got sick the first day (actually before we boarded the ship) with a cold or sinus thing and finally ended up seeing the ship Dr. The first thing he told me to do was use sea salt and water in my nose as opposed to a prepared solution. I use sea salt and water for sore throats and soaks for skin infections too.
  15. lucky

    lucky New Member

    When I was reading about your intake of water for your sinus problems, I like to add that over 15 yrs. of being ill with CFS/FMS, unfortunately drinking water is not solving a lot of sinus problems. If people suffer from acute infections, like many of us do, the reasons for these are much more serious and should be looked after by health professionals. Water and a proper diet will help, but they are in many cases not the answer, I am sorry to say.
    Happy New Year, Lucky
  16. Shirl

    Shirl New Member

    For your information, I have had Fibro for over twenty years, the sinus problems for 15 years or more.

    I have been to many doctors, specialist, etc. I have taken half the drugs on the market for sinus, migrains, and cluster headaches, all the meds did was cover the symptoms. Then the headaches came back frequently, not to mention what other illnesses I got from taking the meds.

    I have had headaches for weeks at a time, with little or no let up from them. The meds did no good. I refused surgery for the sinuses.


    Medical professionals do not have all the answers, even though some think they do.

    I do not tell anyone to stop taking their medication, I simply stated what worked for ME.

    If they were so good, why are so many of us suffering from these illnesses that most refuse to believe exist, much less heal?

    You will have to excuse me, I am not one of those people who think doctors are 'God's', if you found the honest ones, they would no doubt tell you as much themselves. I have several friends that are doctors, and they are honest with me, and hopefully with their patients too.

    I take supplements, herbs, etc. I am more healthy now than when I was taking meds for both Fibro and headaches.

    Different strokes for different folks, but do not tell me what I take does not work, if it didn't I would not say it did, nor do I think it will work for everyone.

    But it sure is something that is harmless, as well as cheap enough to give it a try, don't you think?

    Shalom, Shirl

    [This Message was Edited on 12/31/2002]
    [This Message was Edited on 12/31/2002]
  17. LisaMay

    LisaMay New Member

    I have been prone to sinus infections since I was a teenager. Headaches have been haunting me for years. I tried bio-feedback back in the 80's. I thought my sinuses were stirring up trouble again, only to be told my cavities are clear as a bell. What a surprise that was. Now I have nothing to blame my stuff on. I do find that the weather plays a big part in my suffering or not.

    Here's to a sinus pain free new year. Lisa
  18. fairydust39

    fairydust39 New Member

    I have had sinus problems for years!!! I have been DX with LeakyGutSyndrome,Fibromyalgia,Ulcerative Colitis,Candida,and Arthritis!The only things that helps me is Protease enzyme taken on a empty stomach at night( no food in your stomach at all.) This helps to detox your blood ,which is effected by the leaking toxins from your colon into your blood stream.So you get infection all over your body from toxic blood.(causes muscle aches,sinus problems,joint pain,hearing problems etc.I also take Guiafenesin 1200 mg. twice a day. It helps the sinus and also the tight muscle pain in neck,back,shoulders and restless leg syndrome.You can read about Leaky Gut Syndrome by just typing it in your search engine. I find Google to be the best serch engine for medical research.Lots of magnesium,zinc and B-12 helps too.I take Vioxx if the pain get unbareable,but it's not good for you.Hope this helps.
    [This Message was Edited on 01/01/2003]
  19. Jaysea

    Jaysea New Member

    I've been taking sudafed and snorting nasal sprays for yrs. That sea salt and water is worth a try. I've got nothing to lose. Thanx for the tip !
  20. Jaysea

    Jaysea New Member

    May I ask how much sea salt and how much water is used for that nasal spray concoction ? Thanx !