SLEEPING ALRIGHT BUT GETTING UP TIRED?

Discussion in 'Fibromyalgia Main Forum' started by tanu, Oct 28, 2005.

  1. tanu

    tanu New Member

    HOW MANY OF YOU ARE SLEEPING 6-8 OR MORE HOURS BUT GETTING UP TIRED?WHAT MEDICINES HAVE WORKED FOR YOU.EVERY DOCTOR TELLS ME I HAVE SLEEPING DISORDER INSPITE OF THE FACT I SLEEP ALRIGHT.NONE OF THE SLEEP MEDICINES HAVE WORKED FOR ME .I HATE THESE SLEEPMEDS AS THEY ONLY MAKE ME WORSE.I HAVE FINALLY DECIDED TO SEE A SLEEP SPECIALIST HOPING HE WILL KNOW WHAT HE IS TALKING ABOUT.
  2. Empower

    Empower New Member

    I feel I sleep okay, but still wake up tired!

    I am taking Cymbalta and sometimes Klonopin to help me sleep

    I agree, the sleep meds make me feel worse

    Maybe we are not entering into the right STAGES of sleep.

    I am taking part in a fibro study. I have to wear a monitor that among other things, measures how many hours I am sleeping.

    The monitor indicates that I am getting 8-9 hours of sleep a night, without much interruption, but it is not showing the stages of sleep.

    I am thinking of asking my PCP to order a sleep study for me
  3. tngirl

    tngirl New Member

    I always wake up tired. I do have a sleep disorder, I have recently been taking Lunesta and it has helped the quality of my sleep. It does not make me feel hung over in the morning.

    Perhaps you need to have a sleep study done.
  4. NyroFan

    NyroFan New Member

    tanu:
    Although I do get a good nights sleep: I have a hard time getting out of bed due to pain. Once or twice I will wake up and sometimes take some Advil just to help me in those next few hours until getting up.

    I have trouble walking due to pain in the heels of my feet and also my ankles. It passes when I start to walk around, but I immediately take my pain meds.

    So, yes: I do, too. Maybe a sleep clinic is the way to go.
    Hugs,
    NyroFan
  5. tanu

    tanu New Member

    I read that Acupuncture helped someone with heel pains.Look under the topic "Acupuncture" in the message board.
  6. tanu

    tanu New Member

    Thanks for the reply.I just wanted to confirm whether you sleep through the night?You said that you had a sleep disorder.How do you know,and what disorder isit?I kow they all talk about the quality ofMy doctor at the FFC also asked me to start Lunesta but i am apprehensive a sleep ,but whats he proof.Why do we get up refreshed on some days.Why do we then get back if we exert ourselves? i dont want to unnessarily medicate myself and become drug dependant.Did you suffer from insomnia.How has this drug helped you please specify,did it help you go to sleep or did it make you refreshed in the morning?Do you also take rest and restore?
  7. schaken

    schaken New Member

    Hi Tanu,

    I used to take ambien and couldn't sleep. I have been taking lunesta for about 2 months now. I fall to sleep within 10 to 15 minutes wake up at about 4 1/2 to 5 hours to use the bathroom then go right back to sleep for about 2 to 3 more hours.


    I wake up feeling well, but I do tend to get tired after working 4 or 5 hours. I am lucky that the job I have I can close my eyes for about 15 to 20 min. Then I feel ok for several more hours.

    I have fibro and cfs.

    Leslie
  8. LittleBluestem

    LittleBluestem New Member

    I can take up to half an hour to get to sleep, which the sleep drs. say is too long (they say max. 15 minutes), but I don't see as a problem. Once asleep, I sleep like a log for hours. It would take a minor nuclear conflagration to wake me up. In the morning I am still very tired and have difficulty getting/staying awake.

    I have had two sleep studies, neither of them very satisfactory. Both of my ‘sleep doctors’ were pulmonologists. I have since learned that pulmonologists are usually only looking for sleep apnea and know nothing about sleep cycles. If you want to find out if you have an abnormal sleep cycle you need a neurologists who is also a sleep specialists.
  9. paulwin

    paulwin New Member

    Hi tanu,

    I go to sleep fine, but like you often do wake up not rested. Recently I have been using an ancient chinese meditations to do right before going to sleep. They help me get a much deeper sleep. If you are interested I can tell you where to get the CD. All the best, Paul
  10. tngirl

    tngirl New Member

    Sorry it has taken me so long to reply.

    I did have a sleep study and I have sleep apnea and use a cpap machine every night.

    I also have insomnia, trouble going to sleep and then trouble staying asleep.

    Lunesta works on me about an hour after I take it. It helps me go to sleep and sleep deeper. I now dream for the first time in years. It does not make me feel dopey the next morning.

    I don't sleep all night without waking up, but I can usually go back to sleep fairly quickly.

    While I am stil tired when I wake up, it is much better then before. I get a better quality and longer sleep time.

    I have something new going on which the sleep doc says may be a rem disorder, if it keeps up I'll have to have another sleep study.


    [This Message was Edited on 11/02/2005]
  11. renae1979

    renae1979 New Member

    I also had a sleep study and while I didn't have sleep apnea they did discover that I wasn't achieving the restorative (dream) stage of sleep that is needed. So, even though I might get 6 hours of sleep (which is rare anyway) it is restorative so it isn't doing much good anyway!

    I also have terrible insomnia too, so I am just so fatigued all the time. I am hoping to get a new bed soon which I hope will help with me waking up several times a night due to pain.
  12. diva2mi

    diva2mi New Member

    and it worked for awhile. But the doctors wouldn't let me stay on it for a long time. I do seem to have sleep disorders as I feel the same... sleep alot but it doesn't help me. Doctors seem to agree that I need a sleep study, but no one will order it for me as they say it is an expensive study. Does anyone have any advice on how to get a sleep study done?
  13. busybusymom

    busybusymom New Member

    It's just part of the disease. I have CFS - no matter how little or how much sleep I get, I alway wake up exhausted. Not only that, I am ready to go back to bed an hour or two after getting up. Now, that sucks!!

    Jennifer
  14. caroleye

    caroleye New Member

    There are studies coming out now that if you take the QEEG test (brain waves),it tells where you're brain is misfiring or not firing enough, etc.

    Then they give you a way to do neuroback based on the results of that test.

    They're claiming help w/insomnia, depression, ADD, anxiety; well most of the symptoms we all experience.

    This started when kids with ADD were doing the EEG test & then the neurofeedback. That has the most historical backing.

    Since I can't tolerate most drugs, or they just don't work, I'm going to once again try something new.

    LIGHT************carole
  15. ntlov

    ntlov New Member

    its a tuff goal to find what will work for you but after years of tests,meds,sleep studys and talking to many others i think u will get some good results if u try some or all of these easy treatments.

    Get your Dr to do a serotonin test on you, simple blood test, mine was so low it was scary...many of our bodies dont produce enough, most Drs dont run these tests...

    even if the test comes back normal go to the next step, the best book i found was "Boost your serotonin levels 5-HTP" by Michael Murry,ND-$12 bucks...

    its a simple read, easy to understand and tells you how to build up your serotonin levels with over the counter supplements. 5-HTP you can buy at the health food store, the book tells you how much to take, the book breaks it all down in detail.

    People forget that low serotonin levels cause, Insomnia, pain syndromes, weight gain and headaches to name a few!

    I hate taken the medications the Drs give for sleep since I am useless the next day I call it a "drug hangover"...

    but the 5-HTP works, I also take "adrecor", "excitaplus", 'Travacor". You may not need anything more than 100-300mgs of 5-HTP 1 hour before bedtime.
    It takes a few weeks to find out the levels to take.
    No side effects for me either!



    [This Message was Edited on 11/03/2005]
    [This Message was Edited on 11/03/2005]
    [This Message was Edited on 11/03/2005]