sluggish thyroid maybe??

Discussion in 'Fibromyalgia Main Forum' started by dollinitup, Sep 1, 2008.

  1. dollinitup

    dollinitup New Member

    I have had fm/cfs for more than 30 yrs. I am 61 now.

    In the last few months I have gotten so much worse.

    My skin is awful looking, my mouth is so dry it is driving me crazy.
    My fingernails are like paper, my toenails are very brittle and seem to be lifting at the free edge. It is as if I could store something between the nail and my actual toe.

    I am not looseing hair(I don't think) but my hair is so limp and I can't seem to do anything with it.
    My eyebrows are disappearing and what I do have is growing in all directions.
    I have little to none when it comes to pubic hair and very little under my arms.

    My pain is totally out of control. I am barely getting around I feel as if I'll never feel better again.
    I have "0" energy and I can't focus or remember anythingand this has gotten so much worse in the past yr. it is unbelievable.

    I have always been able to ignore the pain and stiffness so that people would'nt notice but I am now to the point where I can't hide it anymore.

    I guess I just need to whine. If this is all there is to life why bother.

    Every blood test comes back normal. I have gone to the same rhuemy for over 20 yrs so I am certainly not a Dr. hopper. Maybe I need to change but there are so many Drs. out there that don't have any compassion for us I am afraid of loosing what I got. This Dr. was so helpful to me with getting ssd, I feel as if he is one of the best.

    right now I am on prozac, elevil, methrotxate injections and ultram and vicodin for pain. I still feel like life is slipping away. I am not asking for a miricle I just want to feel half human. Right now I feel as if making a pot of coffee would be like climbing a mountain.

    Sorry to whine but I just needed to vent.I wish I could have back the energy I have spent all these yrs trying to look normal. Hiding this has done me no good. opening up to people won't help either. but it is good to have someplace to go and just let it all out. Thanks to all!
  2. sydneysider

    sydneysider Member

    I'm not so sure that all your symptoms sound like thyroid. However, it sounds like you need to get some investigations done.

    As far as the thyroid tests go 'normal' isn't necessarily normal. The basic test for thyroid is TSH (thyroid stimulating hormone). Get a copy of this test. The medically accepted normal range will be written on the test result. However, my investigations have made me conclude that a 'healthy normal' is 1. or slightly under. Over 2. will be classified as 'normal', but may be an indication of problems. Also get thyroid antibody tests.

    The other thing that I thought of when reading your post is whether your other hormones might be out of whack.

    If you're not already taking digestive enzymes, then I would suggest that you take these as well as supplements such as multi vitamins. This will probably not fix the problems that you describe, but will give your body more nutrition. One of theFM/CFS problems is not absorbing enough nutrients from our food.

    The specialist that deals with thyroid is an endochrinologist. You will find that medical doctors usually only recognise fairly advanced thyroid issues. For many of us our issues fall into 'sub-clinical', and we are told that everything is normal. For this reason it is important to ask for copies of all tests. Some people get help through alturnative therapists.

    I strongly suggest keeping a good relationship with your rheumy. You don't have to tell him that you are making other investigations through other doctors, if you think that would upset him. We have to look after ourselves.

    Good luck. I hope you can get to the bottom of some of these issues, and get some improvement.
    Robyn