I have had fm/cfs for more than 30 yrs. I am 61 now. In the last few months I have gotten so much worse. My skin is awful looking, my mouth is so dry it is driving me crazy. My fingernails are like paper, my toenails are very brittle and seem to be lifting at the free edge. It is as if I could store something between the nail and my actual toe. I am not looseing hair(I don't think) but my hair is so limp and I can't seem to do anything with it. My eyebrows are disappearing and what I do have is growing in all directions. I have little to none when it comes to pubic hair and very little under my arms. My pain is totally out of control. I am barely getting around I feel as if I'll never feel better again. I have "0" energy and I can't focus or remember anythingand this has gotten so much worse in the past yr. it is unbelievable. I have always been able to ignore the pain and stiffness so that people would'nt notice but I am now to the point where I can't hide it anymore. I guess I just need to whine. If this is all there is to life why bother. Every blood test comes back normal. I have gone to the same rhuemy for over 20 yrs so I am certainly not a Dr. hopper. Maybe I need to change but there are so many Drs. out there that don't have any compassion for us I am afraid of loosing what I got. This Dr. was so helpful to me with getting ssd, I feel as if he is one of the best. right now I am on prozac, elevil, methrotxate injections and ultram and vicodin for pain. I still feel like life is slipping away. I am not asking for a miricle I just want to feel half human. Right now I feel as if making a pot of coffee would be like climbing a mountain. Sorry to whine but I just needed to vent.I wish I could have back the energy I have spent all these yrs trying to look normal. Hiding this has done me no good. opening up to people won't help either. but it is good to have someplace to go and just let it all out. Thanks to all!