So I got my records from neuro doc..

Discussion in 'Fibromyalgia Main Forum' started by mom4three, Apr 26, 2006.

  1. mom4three

    mom4three New Member

    He basically said all my new sx were like I faked them???

    I was so mad..
    He said my hands only tremor ed when we did the exercise but did not any other time.. I had my hands clasp or under my legs to keep them from shaking.

    He tried to get me to lift my foot with his pressure and I couldn't he said if that was true I could not walk??

    How many of you walk with someones hand pushing them down?

    He said I had so many sx and they are all subjective??

    His words...

    There are a number of inconsistencies on her exam and many, if not all, of her symptoms are subjective.

    Her EMG exam is normal although voluntary motor unit testing was incomplete due to incomplete activation by the patient, inconsistent with her ability to function.

    (that was the same thing he wanted me to do lift my foot while he was pushing. If it is inconsistent then why was it consistent with the prior exam I supposedly faked)

    I am so upset.. This is my medical record.. I have met this guy times only to go over what was the problem which was numbness in my hands, tremors and leg weakness. He just took everything out of context and put this down...

  2. claudiaw

    claudiaw New Member

    Sound's like a bit of a jerk to me.

    Can you find another doctor?

    Are these record's for disability case?

    I'm sorry you were not believed, it is very frustrating, I know.

    I wish you the best in all this,
  3. amymb74

    amymb74 New Member

    for my disability case one doc said I had doctor induced anxiety, that I was fine until he came into the room & then got upset. For one, he wasn't there before he came in the room so how does he know how I was and second, I used to get very upset talking about my cfs because I felt so hopeless. I had just given up my job & college.

    And, another doctor, who I concluded was crazy, diagnosed me of having an emotional disorder due to losing weight. I gained a lot of weight w/my son & lost it all. She thought I actually, subconciously, enjoyed being over weight & missed it. She was a rhuematologist. I should go see her now, as after many years of being out of commision I have put weight back on and am still not cured. AMY

    [This Message was Edited on 04/26/2006]
  4. Jeanne-in-Canada

    Jeanne-in-Canada New Member

    It is amazing the lengths a narrow minded person will go to to fullfill their own agenda and to keep from being convinced of something they already have a set opinion about.

    I've always heard neuros are horrible about our illness. And I've rarely heard of a decent rheumy who deals w/ FM/CFS in a respectful way. I had a bad experience w/ rheumies too.

  5. mom4three

    mom4three New Member

    Thanks for replying guys..

    Claudia: yes these records go for my disability. He knew nothing about that but this does not go in my favor.

    amymb74: can you believe these people. I am floored still today.. I just don't get how they can right their "opinions" when we are there on facts??

    Jeanne: I don't know where this quack came from but I can honestly say he is the first quack I have dealt with grrr...

    So I called his office spoke with the manager and she is sending me a rebuttal form so I can state what I do not find correct. He does not have to change my medical record but at least I get my "opinion" of his work in there too.

  6. suzette1954

    suzette1954 New Member

    If you can get another dr. do it now. If you are trying for SSDI, do not use his records for it. My advocate who is working for me says we only use the good stuff when we are applying.

    Its things like this that makes us want to give up!


  7. mom4three

    mom4three New Member

    they made me fill out a form of upcoming appts and test. He was the listed on there so they will get these records.
  8. julieisfree05

    julieisfree05 New Member

    The first doctor who dx'd me with FM was at Loma Linda. He was a Pulmonary Specialist, and they are usually knowledgable about sleep disorders (sleep apnea?) so he knew what I was describing. He was also the FIRST doctor to actually read the three page "health diary" I had been keeping for the nine months prior to finding him.

    I'm so sorry to say that he died far too young, just a few years after I met him.

    The neurology department at Loma Linda is NOTORIOUS for their disbelief in FM. The Rheumy at LL that the Pulmonary doc sent me to for confirmation of his dx told me to take Elavil, do aerobic exercise (I did and it threw me back into bed for months), and "learn to live with it".

    Once I had a dx, I went back to the neurologist that treated me for migraines, and he started treating me symptomatically and trying treatments that we researched. Nothing really helped significantly until the Xyrem, which that same neurologist convinced me to try.

    He's told me that he believes FM is a mostly neurological illness, but until the eitiology is confirmed most neuros won't accept that or want to treat it.

    Sad, huh?

    julie (is free!)

    I believe that
    love can heal
    what nothin'
    else can heal.. - Radney Foster
  9. sueliza

    sueliza New Member


    I just don't understand some doctors! I currently see a PA and my dh gets on me about switching to a "real" doctor. I have tried to tell him she understands FM and believes me!I am scared to try and switch.

    I have seen a rheumy and he told me she was doing everything right in the way she is treating me. So I am staying put!

    I was lucky the first neurologist I saw was very nice and helpful - he must have been a rare breed. At the time I only had low back pain, numbness in the saddle area and my hips were tender to the touch.

    After all the test results came back negative, he sat there shaking his head in bewilderment. He said the only other thing he could think of was that it was the beginning of fibro and I definitely did not want that illness.

    So I guess he understood and believed in FM - and unfortunately he was right.

  10. lovethesun

    lovethesun New Member

    She was so nice and as I've said about Vandy before,didn't push me out the door.Linda
  11. mom4three

    mom4three New Member

    another neuro who is nice but would not due any test. So we went to this guy just for test to make sure everything was fine. Boy was that a mistake.

    My other neuro is nice, his wife has fms and is a PA so he is sympathetic. he just keep telling me to exercise and I tell him ever time I try to and even do PT my sx get worse. I have done this off and on since 98 and every time I start doing it I flare really bad.

    I guess I just can't believe could right that yet give me a dx so who is inconsistent now??
    He dx with disorder of the muscle/ligaments/myofascial and numbness and tingling??
    what a jerk.

    Thank you all for your responses.. I really appreciate them and it helps me feel not so alone..

  12. mariee

    mariee Member

    Hi all,
    I am glad I saw this thread. Was thinking of going to Loma Linda for a consult w. the head of rheumatology.
    I will think again.
    Really, I wish we had a list that told us to be cautious of docs.
    I feel very alone in my search.
  13. mom4three

    mom4three New Member

    I know what you mean. I would just call Dr and ask the person answering the phone if the Dr
    1. has any patients with this
    2. does he treat them and if so how?

    Maybe that would help in your search.
    good luck to you..
    just don't go to a neuro yet. We have to wait for some ground breaking info to get them to notice us.

  14. Adl123

    Adl123 New Member

    Dear Tracy,
    What a frustration! The same thing happened to me twice. Once, in the hospital, when I had ananaphlectic reaction and nearly died (I had already passed out and my blood presure was dangerously low. I was just about dead), and the other time when I recently saw a Rheumy. I don't have the energy to get mad anymore. I just put them out of my consciousness. I've learned that I can't control that, and so I try to just let it go.

    Take care,
  15. mom4three

    mom4three New Member

    Terry thanks for sharing that info.

    It helps to know I am not alone.

    I just got my rebutal form and I don't even know where to start..

    There is not even enough room lol.

    Should I get records from primary to attach and show that these sx are real??

  16. bct

    bct Well-Known Member

    You made me so proud of you!!!!!!!

  17. Cromwell

    Cromwell New Member

    Those neuros I swear they are nazis in disguise. Take no notice of the jerk. I cannot see why they all seem to be this way, except we had a great child neuro in Seattle who was wonderful. Why cannot they all be wonderful as neuro diseases are the pits and surely they understand this?

    I have been suffering a year due to neuro refusing to see me a second time, and now the heart doc told me she believes I have carpal tunnel. This has gotten worse and worse when it could have been see to a year ago.

    We believe you. What is that guy's problem?

    Love Anne C
  18. mom4three

    mom4three New Member

    wake that is a great approach. I will furnish him with my other documents and then ask him if these are all fake symptoms then tell me why he thinks I am faking, and why if I was faking would I agree to have a needle jabbed in my leg???

    Cromwell, Thank you so much for believing in me:) I only need this to be changed for SSI reasons. I am only 30 and have fms this is an uphill battle and I need ALL of the docs to say this is bad and if they have his report then i am done before I even start.

  19. hopelessmc

    hopelessmc New Member

    I've been to internists, family physicians, homeopathic practictioners, rheumatalogists, neourologisits, physiologists - none of them seem to get it and at 33 yrs old and 21 years into fibro I'm worse than ever. I'm still working, but at this rate I don't see how I can do this much longer. I'm single with no other source of income and becoming very hopeless!!! Any suggestions?
    [This Message was Edited on 04/30/2006]
  20. mom4three

    mom4three New Member

    Where are you located?
    up at the top is a doctor page that might help you find someone near you.

    I am so sorry. I had great doctors that dx me. One was actually a neurologist. I remember very well because it was 1998 and FMS was still kind of "in your mind" faze.
    I went to a neuro for my headaches and he had an attending with him and felt my back and said here feel this that is fibromyalgia. I had not even said I had it.

    This is the first time I have ever had someone say I was faking my symptoms.


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