So TIRED of DOCTORS - I wish they would make up

Discussion in 'Fibromyalgia Main Forum' started by lovinlifeinAK, Oct 31, 2005.

  1. lovinlifeinAK

    lovinlifeinAK New Member

    their minds!! I was told I had classic physical looks of someone with cushings syndrome... but of course test came back normal!!!! When I asked about being bloated up like a balloon - he said fibro. When I asked why is my estrogen level 3x normal level - probably to epidural shot I had for my back (????).


    When I asked why did my thyroid change out of the blue?? Why is my suger level all of a sudden high and my cholestral as well. His answer - it is just fibro related. It does not get progressivly worse....so I say, I am worse than I was a year ago and it IS getting worse as more time goes on.....no answer!!

    I needed to vent that out. I am so frustrated I think I am going to get all my medical records from all the doctors I have seen and just foot the money out to go to the Virginia Mason center!! I do not doubt I have fibro, but there are just some things that don't add up to fibro.

    I think the doctor doesn't know so he just said that. Now mind you all these new things, including a 50lb gain all happened in a matter of 3 months - a year ago!

    Sorry so long I know it is hard for some of you to read long posts.
  2. alaska3355

    alaska3355 New Member

    and just got back a bunch of "normal" results. I'm not sure it was worth going..except to know Lyme could be ruled out. We saw an internist, and he said, "I don't treat chronic fatigue." So we knew we were only seeing him for diagnostic reasons. Maybe if you go, you'll have better luck. The good thing is that insurance (if you have it) will cover almost everything...just not the plane ride.

    Sorry I didn't have a better report.... Take care, Terri
  3. lovinlifeinAK

    lovinlifeinAK New Member

    do not look at fibro at all. Think of me with no dx at all. My ex-husband had very good luck. The doctors here could not figure out what was wrong with him. He left the center with 7 dx's, that no one had picked up on.

    I jsut really want to figure out what wiring went haywire starting last year, and is making my fibro in a constatnt flare!! My labs have always been normal - so something is going on.

    Of course with everything medical in my life I always baffle the doctors. It took them 6 months to figure out that I had Grave's disease and andyomyosis (spell?? endo on the inside of uterus on removal of uterus can verify)

    Sorry yours did not go well. Hopefully mine will.
  4. lovinlifeinAK

    lovinlifeinAK New Member

    for anyone that has more answers
  5. TexasFaith

    TexasFaith New Member

    However, we need to keep fighting for our lives back! There has to be a reason/cause.
    TF
  6. lovinlifeinAK

    lovinlifeinAK New Member

    he is sending me to the Virgina Mason center!! He always listens and he believes that there is something else going on with me.
  7. poodlemommy

    poodlemommy New Member

    Your post sounded like me over a year ago. I had my thyroid out due to cancer. I was pre menopause, on antidepressants and ballooned like the Micheline man. My pain was over the roof from the weight gain and I was on asthma in halers from the extra weight. When I hit 160 pounds( most I ever weighed even at 9 months pregnant) that was it for me. First thing I did was get off the antidepressants and go see a doctor who specialised in womens hormones. He did the blood work and started me on progesterone, testosterone and dhea. I am not 138 pounds, pain levels down, no depression. I got on the right balance of thyroid med due the fact I no longer have a thryoid. I started back to exercising on a tredmill. I also try to eat better. I hope this helps.
    hugs, poodlemum
  8. lovinlifeinAK

    lovinlifeinAK New Member

    but I have been on an antidepressant for 4 years now. Would that really be the cause of me ballooning up?

    I have thought of the possiblity of pre menopausal, as my estrogen level is so off the charts!! 2600, when it should be between 400-800....or a possibility of estrogen dominance. Those are the only things I have found symptom wise on the internet.

    But at least (I hope) I will get some ansewers, instead of blaming everything on fibro.

    Thanks for the food for thought
  9. poodlemommy

    poodlemommy New Member

    I was on antidepressants for 2 years. What really triggered me to the weight gain was when they increased the dose. With in a month of that I put on 10 pounds. When I went off them the weight started to fall off. I did this under doctor supervision. Its never a good idea to just go off them. When I saw the hormone doctor and got the hormones balanced I no longer needed antidepressants. My mood swings were highly hormone triggered. I still have small bouts of sadness but thats because sad things have happened . We have had 3 deaths and my marriage broke up. But in spite of that I dont feel depressed. I felt like an 80 year old woman a year ago and then the hormones lifted that. I feel like Im young again. I still battle pain and fatigue with the fibro but nothing like I was when my hormones were all out of whack. Too much estrogen is a big weight gain problem too. The antidepressant I was on is zoloft. I was crying for about 3 weeks after I totally went of it. I felt like a mental case. But I rode it out and now Im so glad Im not on them. I feel alive again not like a zomby. Suzanne Summers has a good book out called "The Sexy Years" Thats how I educated myself about the bio identical hormones. Then I found a doctor who prescribed them and my life improved greatly. good luck
    hugs poodlemum
  10. lovinlifeinAK

    lovinlifeinAK New Member

    Last year I had no med changes. I have been on the same dose since the rheumy rx me after my dx. You defiantly deserve a congrats puddlemum....that is a lot of emotional things to go through. I am taking effexor and the thing it does for me is actually give me energy when I have none.

    I never had a depression problem. But he didn't want me to become depressed and the doc said that the effexor was highly recommended for fibro patients. As it boasts your energy.....because your body is exhausted from the pain we endure.

    But I think I will have to look for that book. Thank you for responding, someone else that has been through this!! I totally think my hormones are out of whack. And the doctors here are just not looking in the right area. Maybe because I am only 31...who knows. I just want ANSWERS!!!

    Oh yeah and puddlemum, glad you were able to find a doc to "cure" that problem. Also I would NEVER just stop taking my meds - ran out of effexor once and OH MAN withdrawl symptoms were horrible.
  11. lovinlifeinAK

    lovinlifeinAK New Member

    for replies - maybe ???
  12. lovinlifeinAK

    lovinlifeinAK New Member

    maybe for more replies...............pleaaase