So upset and tired of this numbness! Have just been crying.

Discussion in 'Fibromyalgia Main Forum' started by meowchowchow, Nov 26, 2005.

  1. meowchowchow

    meowchowchow New Member

    I'm at my wits end. About a year and a half ago I started having numbness on the left side of my body (left side of face, left arm, left leg) and a wierd, thick feeling tongue and it felt difficult to talk.

    I went to the neuro who ran an MRI and EMG and who knows what else and said everything was normal. Thinks it's anxiety. He said the nerves "cross over" at the neck, so if it was nerves or whateer then it would be the left side of my face and the right side of my body. Well it went away after 3 or 4 months. I thought it was gone for good.

    Well it's back, has been for about a month. It comes and goes but mostly stays and varies in it's intensity. I'm so sick of it. I avoid talking. My tongue is even feeling numb now. My fiancee and family think I'm a nutbag I'm sure.

    I just don't know what else to do. I'm so frustrated. I'll be the first to admit I have anxiety problems but this is just too much.

    Thanks for listening,
    Meow
  2. Sheila1366

    Sheila1366 New Member

    SOrry about what is happening to you.It sounds like a pinched nerve but then again it can be nerves.Is there something new really stressing you out right now?Anxiety can cause weird things to happen to your body.If it has been awhile since you seen neuro. maybe you need to go back in and have it checked.
    Take care,
    Sheila
  3. seveneyes

    seveneyes New Member

    I am very sorry this is happening to you. Hopefully it will go into remission like the first time. :) Have you explained to your fiance what is happening to you? It might give him a chance to show you how supportive he can be. It would also dispell any fears your future inlaws may have of any insanity on your side of the family:) If you haven't done this, sit down with your man and tell him. Explain to him your fears and your anxieties. Maybe go to a Tai Chi class together so you can learn to relax. I find the deep breathing exercises very helpful. I hope the best for you.
  4. millennia

    millennia New Member

    Maybe you should try getting a second opinion, if you can. For years my doctor told me my problems were all in my head, I changed doctors and was diagnosed with fibro. It felt so good to finally know what was wrong, even if the future seems bleak sometimes. If your neuro has decided it is all in your head, he may miss symptoms that are right in front of his face. With all that being said, I would never underestimate the power the brain has over the body.
  5. TwinMa

    TwinMa New Member

    So sorry you are feeling so poorly. Have you had any massage therapy? I'm not talking about the fancy spa type massage. Those are usually Swedish massage and good for circulation and relaxation, but don't really get at the root of the problem. I'm talking about myofascial or deep tissue massage. Many times they work on trigger points.

    You could have some soft tissue problems that could be helped by this type of massage.

    If you have a reputable massage school in your area, they usually offer discounted rates. Or ask around for referrals. A reputable chiropractor will often know of a good masseuse.

    I've been going to a massage therapist for almost a year, and it has helped my general health. It is not a quick fix or a miracle cure, but it can help.

    Personally, I think everyone could benefit from massage. I know the cost is usually an issue, but I think it's worth it. Many will work with you on cost.

    Katy
  6. getfitat40

    getfitat40 New Member

    Meow,
    I am so sorry you are going through this, but I wanted to let you know that you are not alone. I had a very similar frustrating couple of weeks ago about 5 years ago. The whole left side of my head would go numb and tingle. Then my arm would be next. They found that I have a herniated disk in my neck (which did not even hurt) but seemed to manifest itself on my left side causing the numbness. It is scary and awful.

    Regarding your tongue and its numbness, I find my tongue to be a barometer of my current state of health. I get really painful sores on the back of my tongue whenever I get a virus. I get a burned feeling when I am on the verge of flare. And I've caught a cold this weekend and my tongue feels swollen. I know it seems weird but I wonder if the stress of everything else is causing your tongue numbness.

    Good luck...Nancy
  7. karatelady52

    karatelady52 New Member

    Have you been tested for lyme yet since lyme has a lot of neuroological disorders associated with it.

    Also, have you thought about getting an anti-anxiety med like Xanax? These viruses and bacteria can cause a lot of anxiety that we normally wouldn't have.

    It's helped me quite a bit. I have anxiety that really isn't me so I know it will be temporary until I kill off some of the bacteria load with abx.

    Sandy
  8. meowchowchow

    meowchowchow New Member

    Thanks for all the replies so far. I do have some xanax that i take for some "emergencies", i took one this morning and it did help some.

    it's just so frustrating. i do go to the ffc so hopefully this next time i go this week i'll get tested for lyme. i just want to scream from the top of a mountain, "I'M NOT CRAZY"!

    Meow
  9. moaningmum

    moaningmum New Member

    Your symptoms sound familiar. Ive been there too, and can really sympathise.

    Mine comes and goes too, here for a month or two, then goes. Only to come back again when I relax and think its gone forever.

    Your doc said nerves cross over at the neck?????That simply not true. Each side of the brain controls movement in the opposite side of the body, including the face.

    I work in a specialist neurology rehab unit, and many of our patients have completely one sided problems, that involve their face too. I occasionally have numbness that involves the right side of my face, and right arm too.

    Does your numbness get painful?
    My doctor told me you cant be numb and hurt at the same time!!Id like him to experience it for just a few minutes so he believes me.now I feel mean for saying that.

    Sorry I cant offr any explanations. Ive had a normal MRI too, and loads of other test.

    Hope your having a better day,

    Moaning mum