Some advice please!

Discussion in 'Fibromyalgia Main Forum' started by nicolebr, Nov 25, 2002.

  1. nicolebr

    nicolebr New Member

    I have been stuggling with fibro for years...nothing like the past year when I became sick with flu like symptoms...went to doc...put me on antibodics...many health problems including a masss or cyst on my ovary that different doc's say should be removed or some just put me on the pill....To make a long story short I have tried everything...now losing my hair and extremely depressed...lost my boyfriend as all I can do is be up for maybe two hours...can't work....sold my condo to pay for medical bills...been to lots of doctors who mostly don't believe in Fibro....feel totally alone, hopeless....can't sleep no matter what sleeping pill I take...now in my 30's came to my parents in Mass. only to see that they too think it is all in my head...even though I was given this diagnosis ten years ago by Mayo Clinic....

    I feel so very alone, almost suicidal. It seems that every organ in my body is just shutting down....i can't sleep and feel so hopeless..I am too young to be living this way.

    At this point I am afraid of Doctor's and shocked at what a toll this year has taken on me....

    Please some support or help!
  2. nicolebr

    nicolebr New Member

    I have been stuggling with fibro for years...nothing like the past year when I became sick with flu like symptoms...went to doc...put me on antibodics...many health problems including a masss or cyst on my ovary that different doc's say should be removed or some just put me on the pill....To make a long story short I have tried everything...now losing my hair and extremely depressed...lost my boyfriend as all I can do is be up for maybe two hours...can't work....sold my condo to pay for medical bills...been to lots of doctors who mostly don't believe in Fibro....feel totally alone, hopeless....can't sleep no matter what sleeping pill I take...now in my 30's came to my parents in Mass. only to see that they too think it is all in my head...even though I was given this diagnosis ten years ago by Mayo Clinic....

    I feel so very alone, almost suicidal. It seems that every organ in my body is just shutting down....i can't sleep and feel so hopeless..I am too young to be living this way.

    At this point I am afraid of Doctor's and shocked at what a toll this year has taken on me....

    Please some support or help!
  3. karen2002

    karen2002 New Member

    Hi hon, first, I would like to say how sorry I am that you find yourself in the place that you have no support, and feel so depressed. Please do not ignore any feelings you may be contemplating about suicide--if you seriously are having these feelings reach out and get help, immediately.
    That being said, I know how distrusting and frustrating you have become with doctors---I have been there. In my opinion, it would make such a difference for you emotionally and physically to find a Doctor to act as your advocate. They are out there--I finally found one--but it does take some searching. Search for a doc who specializes in Fibro---it can make all the difference in the world. There is no point in seeing the "other kind". Check out the Doctor Referral's here, or ask Support Group Members in your area who they use. You can also type "Massachusetts Fibromyalgia Specialist" into one of the popular search engines. There will be a large list to go through, but write the good ones down, and call and interview the receptionist or office manager, as to how long the doc has been treating FM, and how many FM patients he/she has. That's usually a good indication. Support and treatment, are so important, we all need hope.
    Best wishes,
    Karen
  4. pepper

    pepper New Member

    I am so sorry for your predicament. You will find many on this board who share much of what you are going through. I too have had suicidal thoughts over the years due to what these illnesses have done to my life. Anti-depressants have literally saved my life. Medication and/or therapy is necessary when you are going through such a traumatic time. I have been to a couple of understanding therapists who helped me tremendously when I first became ill.

    Please listen to Karen and search for a doctor who understands and who can explain your illness to your parents. Meanwhile, try to share some of your research on FM (and CFS - do you think you may have that too?) with them. Maybe they would be open to learning about it.

    There are things you can do to make your life more tolerable and to feel a little better. Just remember that you are not alone. Come to this board any time for support.

    (((HUGS)))Pepper
  5. LauraLea

    LauraLea New Member

    Find a Dr. who will work with you first. If you realy are at the end of your rope see a therapist or call a hotline. There are many places out there that can help with the depression and they are free or low cost.

    Look into a refferal service to find the right doctor. I know it's so hard if everyone thinks you are lying or think it's all in your head, but there are lots and lots of us to tell you YOU ARE NOT ALONE and it's real what you feel. Don't let anyone tell you otherwise. If a doctor says it's in your head tell him/her goodbye.

    Sleeping pills usally don't work for FMer's try a pain reliever or anti-depressant that causes drowsiness.

    It will get better for you emotionally when you find a good doctor to assist you

    Big hugs..
    Laura