SOMEONE PLEASE HELP

Discussion in 'Fibromyalgia Main Forum' started by PattyMelt, Nov 17, 2002.

  1. PattyMelt

    PattyMelt New Member

    I would like to know what the ESPSTEIN BARR TEST IS AND WHAT DOES EBS STAND FOR IN A BLOOD TEST. is this ebs something I need to request from my dr to include in my blood tests? I don't believe they have ever done it. I am extremely tired, weak depressed and have no motivation to go anywhere or see anyone. the drs don't seem to think I am tired I guess, all they say is get plenty of exercise. I don't even want to get out of bed let alone exercise. someone: any advice????
  2. PattyMelt

    PattyMelt New Member

    I would like to know what the ESPSTEIN BARR TEST IS AND WHAT DOES EBS STAND FOR IN A BLOOD TEST. is this ebs something I need to request from my dr to include in my blood tests? I don't believe they have ever done it. I am extremely tired, weak depressed and have no motivation to go anywhere or see anyone. the drs don't seem to think I am tired I guess, all they say is get plenty of exercise. I don't even want to get out of bed let alone exercise. someone: any advice????
  3. PattyMelt

    PattyMelt New Member

    FOR ANSWERING MY POST. I will do what you said. I have had all kinds of blood tests but I guess this one has to be requested. tks again dear
  4. Rozmund

    Rozmund New Member

    In this article EBV is short for Epstein - please read this article carefully - there are many tests that you may request - take the article to your doctor and have a serious discussion with him...then draw your blood and
    test, test,test.

    Many Chronic Fatigue Syndrome (CFS) patients are taking [undenatured whey protein]
    based on the recommendation of nationally known CFS specialist Paul Cheney, M.D., Ph.D.
    These "undenatured" whey products are processed at lower temperatures than typical
    powdered whey protein. This requires a meticulous filtering process to maintain purity. The
    lower temperature preserves the fragile, but powerful, biologically active proteins,
    lactoferrin, and immunoglobulins in whey.

    What are the benefits of undenatured whey? It can address the glutathione deficiency
    that is virtually universal in CFS patients. Deficits in glutathione functionality show up as
    elevated lipid peroxide levels on the Great Smokies Oxidative Stress Test (www.gsdl.com),
    and also as elevated citrate and alpha ketoglutaric levels on the Great Plains Organic Acids
    Test, 913-341-8949.

    Glutathione deficiency has two major implications: detox failure and viral/microbial
    activation. Glutathione plays a major role in detoxification pathways. This deficiency impairs
    the body's ability to get rid of toxins, whether environmental or by-products of cellular
    metabolism. CFS patients slowly become toxic, storing away poisons in fatty tissue,
    muscles, organs and the brain. This cellular detox failure can make CFS patients "canaries
    to their environment". Detox programs that have been successful in other conditions can
    actually put some CFS patients in the hospital if their glutathione deficiency is not first
    addressed.

    Glutathione is also a powerful antiviral and anti-microbial weapon. Glutathione deficiency
    not only compromises antiviral and anti-microbial defenses, it also has a potent pro-viral
    effect. While the presence of glutathione inhibits viruses and intracellular organisms, its
    absence stimulates them. Glutathione deficiency actually augments viral replication.
    Anthony Falci, the top HIV researcher at the NIH, has shown that HIV growth can be
    completely stopped by raising glutathione levels in-vitro in cell cultures. If glutathione
    levels can be raised, the replication of almost any pathogen inside the cells can be
    stopped. Given the widespread reactivation in CFS of viruses like EBV, CMV, and HHV6, and
    the activation of microbes like mycoplasma, chlamydia pneumoniae and candida, finding a
    way to raise glutathione levels inside the cells has been a top priority of the Cheney Clinic.
    No treatment prior to the whey seemed to successfully address this deficiency.
    Supplementation, injections, and other interventions failed to significantly affect the
    glutathione levels inside the cells, where 90% of the body's glutathione is needed.

    Cheney found undenatured whey protein was the best way to increase glutathione levels
    and function. The clinic conducted a six-month study of the first patented bioactive whey
    product, and discovered it significantly improved glutathione function. Though it was a
    small study (eight patients), the results were consistent with the feedback from Cheney's
    patient population as a whole. Seven of the eight study participants finished the study.
    They all began by taking two packs a day. At the three-month point, half the group was
    switched to one pack a day. One patient had received so much benefit from two packs a
    day that he refused to take the lower dose and dropped out of the study.

    Five of the seven patients who finished the study had positive responses. The two who
    felt no benefit were the least ill to begin with. Cheney speculates that their healthier
    digestive systems might have more fully digested the whey, making it less effective. It's
    very important that all whey products be taken on a completely empty stomach so that no
    acid or digestive enzymes are present to break it down. Some patients even take an
    antacid 30 minutes before taking whey to reduce that possibility.

    Patients in the study were allowed to choose which tests would be run, since they were
    paying for them. Each patient who tested positive for mycoplasma and chlamydia
    pneumoniae at the beginning of the study tested negative six months after treatment,
    regardless of whether they finished the study with one or two packs a day. This suggests
    one pack a day will wipe out intracellular bacteria.

    Three patients were tested for HHV6. Two were positive. The patient who stayed on two
    packs a day the entire six months was negative at the end of the study. The patient who
    dropped to one pack a day remained positive. This suggests that at least two packs a day
    are needed to neutralize viruses. There is a "dose response" issue with [undenatured
    whey protein products].

    Some who did not respond at two packs a day noticed real benefits at three. A few
    patients have even gone to five or six to reach maximum benefit. However, Cheney's
    recommended starting dose for [undenatured whey] is two packs a day. Increase the dose
    only if minimal or no benefit is seen, and give it a six-month trial. Each packet contains 10
    gm, or 1.75 Tbsp. [Editor’s note: Of course, each patient is different and should discuss
    appropriate dosage with their health care provider.]

    Go to the www for immunesupport and you will find many current articles to help you help
    your doctor. Forget the exercise - would you chew a steak on an abcessed tooth, run a marathon
    on a broken leg - if your doctor is uncooperative, find another. But to get out of bed you may
    have to take a chance and start taking some of these items. Type in any key word into googles
    or even search this site - it has a ton of credible information.
  5. lucky

    lucky New Member

    I am sorry to read how fatigued and depressed you are and those were the same symptoms before I was tested for the EBV many years ago (these symptoms are still there, however, with meds and alternatives they are bearable and mostly under control). I wish you well and also that you have a doctor who will be helpful and supportive. Lucky