something i wrote about CFS/FM. =].

Discussion in 'Fibromyalgia Main Forum' started by dani78xo, Apr 5, 2006.

  1. dani78xo

    dani78xo New Member

    just something i wrote a few minutes ago.
    since the withdrawal this week i really have nothing to do.
    it's not real good, but it's how i'm feeling.
    and really how i've felt since i first got sick.

    i double spaced every few lines incase people had trouble reading the whole thing, so it's still all one poem, just broken up.

    you probably won't ever know who we are.
    the fibromyalgics, the ones with chronic fatigue syndrome, the "invisible diseases."
    you wouldn't think we're sick, but i'd bet you we beg to differ.

    we're the people who spend most of their life just trying to get out of bed.
    the ones who drag ourselves through the day,
    then take numerous pills just to get four hours of sleep.

    you won't ever know who we are,
    because "but you look healthy," is an everyday sentence in our lives,
    and because we don't want to be pitied. we just want to be recognized.

    we hear people complain about how their muscles hurt from exercising.
    you want to scream at them,
    tell them they DON'T really and truly know the meaning of pain.

    we get bombarded by doctors,
    half of them telling us that these diseases are psychosomatic,
    and if we just got up and exercised, we would be cured.
    but if you have one of these diseases, you know better than to listen to them.

    i don't think you could ever know what a chronic disease feels like,
    living your life day by day, WISHING that what you had would just kill you.
    but you won't get that reprieve.

    so you sit back, take the insults and the "are you contagious?" remarks.
    and hope someday they come up with a cure.

    though i guess the disease would have to be considered real to be worth a cure.
    but we'll wait. we're always waiting.
    after all, we're the victims of chronic disease.

    like i said, it's not great.
    just thought some people might feel the same way.
  2. neen85

    neen85 New Member

    This ought to be e-mailed to EVERY doctor holding a license.....what a wonderful poem! Daneen
  3. ruru1992

    ruru1992 New Member

    Thanks for sharing that! I enjoy coming to this board so much cause people here really do get it.
  4. Fibrolady37

    Fibrolady37 New Member

    Hello dani i hope you are as well as you can be as like others with cfs & fibro we are all sufferers & certainly victims.
    Your poem is brilliant so dont put yourself down girlfriend
    you should be very proud that you managed to write this inspirational poem.
    I will be praying for you & yours ive come back onto the site after quite a lengthy period of time.
    Always remember we are all here to help & support each other you will always have friends here.
    Take care i hope my words have helped you.
    Best wishes & very gentle hugs to you.
  5. Shelbyeatenton

    Shelbyeatenton New Member

    Don't be so hard on yourself danielle,

    You write beautifully,

    Its a great way to express yourself!

  6. Nakomis

    Nakomis New Member

    That's awesome, Danielle ... IMO you write very well and expressively and most importantly, from the heart. This should go to all those "doubting Thomas" drs and shrinks out there. Maybe if they heard it often enough it would *sink in* and we could at least retain a bit of our dignity while dealing with the indignities of this disease.

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