Something's weird and just plain wrong...(dizzy)

Discussion in 'Fibromyalgia Main Forum' started by TerryS, Sep 7, 2006.

  1. TerryS

    TerryS Member

    This is week #3 of my being out of work. Initially, it was extreme fatigue and pain in the extremities with a little intermittent dizziness. (Currently undergoing workups for suspected CFS...awaiting neurology appt/rheumatology appt, etc.)

    Anyhow, the fatigue is a little bit better, the pain is no longer 24/7...rather it's intermittent throughout the day and no longer is as extreme.

    THE PUZZLE IS that my dizziness has gone from a few times a day to almost constant. It doesn't matter if I'm sitting, lying down, or standing up. It just hits me every few minutes. Sometimes I have "electric-like" sensations run from the front of my head to the back. Also have tingling INSIDE my's hard to explain. Kind of feels like when you have a high fever and someone touches you...ultra sensitive in other words.

    Plus, I've noticed some stuttering (never, never done this before), saying the wrong word or pronouncing my words wrong, and what seems like memory issues such as losing track of my conversation, etc. The stuttering is scary.

    Has anyone experienced this acute/chronic dizziness before and the stuttering?

    Thanks in advance for your input!

  2. TerryS

    TerryS Member

    Thank you. The stuttering was really getting to me...all kinds of crazy thoughts running through my head about what might be wrong with me.

    Have you ever had the severe dizziness like this...100 times in a single day? (No, I'm not actually counting...just keeps coming on so often it must be 100 times!)

    [This Message was Edited on 09/07/2006]
  3. painintheeverywhere

    painintheeverywhere New Member


    I did have all of that as well. My family just looked at me and laughed. I couldn't help it so I laughed with it, but it doesn't stop you from wanting answers. I actually went through a period of time that I was always dizzy and actually fainted several times. It happened at the Post Office when I was alone, but my son was with me most of the time (now 19). I was afraid to drive when I felt that way, so I usually had my son run errands at that time.

    I now experience dizziness a few times a day, but nothing like before. I also have not fainted since March 06. It seems for me anyways, that there may be phases to this FMS. I was diagnosed in July, it only took 3 yrs for a diagnosis. I also have a few other things going on. You can check out my profile if you wish, it lists my symptoms, diagnosis and meds. I hope it gets easier for you. My advise is to keep insisting for answers through your doctor and have him send you to every specialist he has to until you finally get to see a Rheumatologist who will bring all the documentation together and finally give you a diagnosis. A Cardiologist and Neurologist needs to check you now to rule out heart problems - and the nervous symptom which is probably related.

    This is only from experience, you may go a different route.

    Good Luck, Stay close to home and take care of you!

  4. greenpastures

    greenpastures New Member

    My fibro doc told me it was hormonal but prescribed fludrocort. It helped but I stopped it a few days ago because something is causing increase in panic attacks and I always question any drugs when that happens. The dizziness has not returned so far. I also stopped the fungal drug Nizoral so don't know which was causing the increase in anxiety. Hope you get to a doctor who can get to the bottom of this asap.
  5. TerryS

    TerryS Member

    I've been really getting concerned about the chronic dizziness. How can a person effectively function like this???

    Jane - I read your profile. You're blowing my mind!!! I don't know how you keep up with all your meds!

    I just want my life back. I've had a few "exotic" illnesses in my life (see my profile), maybe I'll be adding CFS or FM to the list. I just pray I'll come out of this "flare" or whatever soon. Don't know what's going to happen with my job. They brought a temp in for the time being...


    FOYBOYFOY New Member

    good moring
    ive been sick since feb but only a few months ago i started getting dizzy/headaches/ and can lay on the couch for hours on end. i really get dizzy when i read,computer or take off my glasses. it is kicking my ace !!!!!!!!!
    god bless and good luck
  7. TerryS

    TerryS Member

    is tearing up my nervous system.

    The dizziness is ridiculous...and the zips and zaps running throughout my body. The fatigue and pain was enough!!! CRAZY!!!

  8. painintheeverywhere

    painintheeverywhere New Member

    If you meant I was blowing your mind because of my home pharmacy (just kidding) or if it was regarding my message. I hope you meant the first. I know, it seems I am on a different chemical for every little thing to function in my body. I am tired of all the medications. I remember the days when I wouldn't take tylenol or advil unless a headache became severe. Go figure.

    Anyway, I am not ultra-sensitive, I just wondered what you meant by me blowing your mind. I truly hope your answers come faster and easier than mine. I also hope you have tremendous support!

    Take Care,

  9. TerryS

    TerryS Member

    all the meds you're blew my mind!!! I don't know how you can keep up with it. I can barely remember to take my Zoloft and my vitamins each day, and I only take them once a day (all at the same time)!

  10. Adl123

    Adl123 New Member

    First of all, I'm Terry, too. May I sk that you keep the "s" at the end of your name? That way we won't be confused.

    I can really identfy with the synptoms you describe. In my case, I think I went through a "let down" after stopping work. I was very weak, uhnsteady on my feet, dizzy etc.... I couldn't even read a map! Sometiimes the relief of stress is, in itself, a cause of stress.

    Mine got better after a few weeks. I hope you don't have some thing neurological. It's good theat you are investigating it. I just thought I would put my 2 cents in.

    Good luck,
  11. mrdad

    mrdad New Member

    So sorry you are having such disturbing problems! Do hope
    they can figure things out soon and that you get better
    sooner! I'll keep you in my thoughts for a rapid improve-

  12. TerryS

    TerryS Member

    I feel a little better (so far) today as far as the dizziness. I didn't even start until about 1:00, and so far, it's just intermittent here and there. Yesterday was REALLY bad. I noticed that the worst time was when my sister came by for about an hour and my dogs were barking, barking, barking wanting attention.

    Wonder if I've gotten that sensitive to noise and that exacerbated the dizziness. I also noticed I'm a lot more "jumpy" lately!!!

    Oh, well...

  13. TaniaF

    TaniaF Member

    I have CFS and sometimes I get dizzy for no reason. Yes, and I'm lost for words at times as well.

    The past two months I have had dizzy spells and a queasy stomach. Went to three MDs and they couldn't find the cause. Thank goodness my DO doctor that treats my CFS gave me a complete physical and said I have fluid in my left ear and a swollen gland right underneath. He is integrative, but this time ordered an abx (Ceftin). Wish me luck, but day two on this abx and no dizzies.

    My advice--always get your ears checked out when the dizzies are ailing you.

  14. TerryS

    TerryS Member

    The ENT checked out my ears and could find no reason for the dizziness. My PCP can find no reason for the dizziness. My CT scan came back normal the other day (thank you, God).

    I guess it's all related to my undiagnosed disorder...whichever one it turns out to be. ENT thinks it's CFS...the more I read about it and the symptoms, the more I think he's right.

  15. saphire27

    saphire27 New Member

    yes, i had that vertigo for along time on 2 separate occasions,

    1st Dr said it was part panic attacks, and put me on ativan. which i tried, but no relief, it did help my moods etc though.

    the next episode, i went to my regular family Dr, and she checked out my ears, & made a guess..
    she said i had a tiny cyst or what she called tumor in my ears & showed me a diagram, the cyst can get knocked around and be in a position that brings on the vertigo..

    she saif i need not worry about it, it would stop in time, and if not to come back, after a couple more weeks feeling sick from that, it just stopped, don't know how or why.

    I still don't know what to think of that.
    Take care!
  16. painintheeverywhere

    painintheeverywhere New Member

    Thanks for the note back. I use a weekly reminder box that I fill once a week and always keep my meds with me. I have learned to be very consistant taking them, because I have felt how they effect me. Many people here feel like they take way too much and many of them start taking natural remedies to keep the chemicals out of their bodies. I am soon to follow. I have started on the "Raw Diet". I will do anything to feel better.

    Thanks and have a better week.


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