SPACEE...How was the appointment (red eye)

Discussion in 'Fibromyalgia Main Forum' started by CanBrit, Feb 3, 2007.

  1. CanBrit

    CanBrit Member

    Hi All:

    I seem to have this lovely red right eye every day now. It used to come and go but this last stretch has gone on way too long.

    I've seen my eye Dr. twice and he put me on some steriod eye drops. That seemed to work but then it always returns in a couple of days.

    I've wondered about sjogren's? I do have trouble with my eyes being really dry but the right one is always a litte more sore. It doesn't seem to affect my vision though.

    Anyone else with this problem?


    [This Message was Edited on 02/07/2007]
  2. spacee

    spacee Member

    I think that is a possiblitiy. I am having a red right eye with pain. So, I am doing steriod eye drops and drops that dilate the pupil (that stops the pain).

    I am seeing a iritis specialist on Tuesday. I am pretty lucky to have one an hour away. I will let you know what he says.


    [This Message was Edited on 02/07/2007]
  3. Adl123

    Adl123 New Member

    Good Gravy! I never thought that it might e a condition or illness. My red eye is red almost daily, when I get up, and sommetimes during the day. That is also the eye that usually has hemorrages when I have them. Think I'll ask my eye doctor the next time I go.
    Thanks for this post,
  4. nightngale

    nightngale New Member

    I started having itchy real red eyes last February and went to Dr. first said conjunctiviitis, then allerie eyes, then eye doctor said chronic conjucnctivitis. Well after spending 35 dollars a pop on little tiny bottle of stuff, I quit. Then it got worse, waking up with gooky eyes, swollen, red, itchy, etc. I got stuff for dry eyes over the counter. At my physical I bought it up again and my doc sent me to another opthomologist. He did the schirmer test and said I had severly dry eye, consistent with possible Sjogrens. He put me on some cortisone drops another tiny little bottle for $25 to use for 3 weeks and something called restatis. My eyes still sting and burn , I still use my otc drops and will ask about a otc gel. The rx are so expensive! Anyway the rheumy is doing a batch of tests to rule out Sogrens and other things...sometimes dry eye is caused by other things. Sometimes not. He is a new rheumy for me, I did mention I had heard the only real way to test for Sjogrens was lip biopsy and he disagreed.

    well i am getting somewhere....after 5 appointments re: my eye! It only takes 5 minutes for the test, I would demand it! I am getting tired of doing my self dx. Doctors must be over whelmed to overlook these things. This one wants me back in 12 weeks for full dilation. Just a regular check. Btw, untreated dry eye can damage your cornea.

    If you have dry eye and have a rheumy he should ckeck for Sjogrens. I had to be very proactive with my pcp to get these referrals, for the rheumy and I said I was concerned about Sjogrens. She is very good at pointing me off in the right directions if I say something. She seems a little overwhelmed by my constant sympoms but hey so am I! Now I have to get all kinds of records from docs for the new rheumy. I hate that. phone calls and phone calls and follow ups.

    Good luck everyone!
    [This Message was Edited on 02/04/2007]
    [This Message was Edited on 02/04/2007]
  5. CanBrit

    CanBrit Member

    I had the conjunctivitis diagnosis and did the routine stuff to clear it. It did get rid of the discharge but that's about it.

    It's certainly not work related (I work on computers) because I get it on weekends too. Strange stuff. I think when I go to renew my prescriptions, I'll talk to my family Dr again. He's pretty good about investigations.

    My rheumy blew me off last time saying he doesn't treat FM patients any more because all he can do for us is prescribe pills..... Nice!!

    Let's keep in touch on this and see if anyone gets a better response.

    All the best

  6. mujuer

    mujuer New Member

    myself because if I am not having such a bad day and not on as much tramadol then my eyes are fine. If I am on tramadol 24/7 then I get the dry red eyes. I notice that I don't blink as much either. I have used steroidal eye drops also. I have noticed that since I got fibro (2 Years ago) that I have a real sensativity to my masscara now and hardly ever wear it. Just thought I would throw all of that in the mix.
  7. ayhatch

    ayhatch New Member

    You must have positive ANAs, which you may have anyway if you have Fibro, BUT you must also have positive SSAs in your blood work. I have had severely dry eyes and mouth for quite some time, but didn't meet the typical Sjogren's criteria enough with my eye and saliva tests. However my positive ANAs and SSAs were very obvious.
  8. spacee

    spacee Member

    Ultram was the only pain med I have left to use. Can't use asprin, advil, aleve, tylenol. I did just notice that I had "cotton mouth" sometimes after someone posted about it.

    I don't know if it is the only thing going on. I have had some positive ANA's in the first 10 years but the doc's got tired of testing. Guess they were waiting for something like this to show up.

    Learn alot here, thanks.

  9. nightngale

    nightngale New Member

    Yes, My rheumatologist ordered about 12 tests, including ana, anit-ana, sed rate, ENA, SSA/SSB, C3/C4/CH50, CK, COMP metablic, random corisol (?), TSH, RF CC3, SGL-70. I spent a lot of time looking up online these things, couldnt find the last one. Most tests I have had several times, including sed rate and RA, thyroid, but all these combined look like they would catch sjogrens,lupus, ra, mixed connective tissue diseases. My blood work always comes out so darn good! I guess I should be happy anyway he seems to be taking a very proactive approach. I heard him talking about fibromyalgia twoice to other patients. Then I mentioned that I didn't seem to have the trigger points and he pushed on some spots and asked if it hurt and I said yes, but it seems like you are just pushing hard, and he touched my leg lightly and said no, this is what I did. I swear it was weird. Though the old rheumy never even did that. He just said I had fibro and did help with rx. Also new rheumy said you don't have to have the trigger points. ok i am on a ramble and should be in bed. Good night all please keep posting...
  10. nightngale

    nightngale New Member

    Well it seems like right before I went to the Dr. for my eyes, they started stinging and burning, esp. at computer, now the drops aren't seeming to help and they were 55$! I am going to see if I can just take otc stuff. It has gotten very cold and dry here, like everywhere I imagine! Maybe thats why?
  11. spacee

    spacee Member

    It has only been cold here in Florida for the last couple of weeks, so that isn't causing my eye problem. I see the specialist tomorrow. Hope I know more.

    If this eye is damaged because the local opthamologist thought that "chronic fatigue syndrome" meant I am a little tired all the time, I am going to be really mad at the people who gave this DD this STUPID name.

    Thanks, needed to vent.

  12. nightngale

    nightngale New Member

    Please let us know what the doc says. I hope he gets it right. Maybe you could say, could you please test me for dry eye? It could just be plain old dry eye, as my mom has it and can do five times more than me, she is 70 and can walk real fast for 1/2hour and just pops out of bed in the morning. I don't know where I get all this from.
  13. spacee

    spacee Member

    Is this plain ole dry eye? I hope it is!


    PS It has been on my mind tonite how weird this DD is. How tired I am of being misunderstood ALL the time. Cause I look so healthy and I am so not.

    A round of HUGS!!
  14. rubyart

    rubyart New Member

    This is concerning. I'm in week 4 Valcyte and woke up today with a bright red (right) eye. Completely bloodshot. It abated as the day went on.

    I've never heard of Sjogrens (am usually told I'm in "the Lupus family") as I always have a positive ANA.

    I don't know what SSA means. Anyone?
  15. CanBrit

    CanBrit Member

    Good luck today. I hope they can figure something out for you. My eye is even worse today. I only take 1 pain med a day, so I don't think it's that.

    It is sore and dry and I get pain behind it on and off. I know what you mean about these DD's. It's so darn cold in Eastern Ontario this week. My body just hates it. I feel 90!

    Well....all the best.

  16. nightngale

    nightngale New Member

    Is some kind of antibody that would test positive in your blood if you have Sjogrns or other problems. I did a google search that would probably give you alot more info. I just searched all those tests I'm getting.
  17. CanBrit

    CanBrit Member

    How'd it go at the specialists?
  18. spacee

    spacee Member

    but I think they won't tell me the truth. Maybe because they won't know what is going to happen.

    He said that he thought it is just a one time occurance and come back and see him if I have any more problems. (The local opthamologist is taking care of weaning me off the steroid eye drops and the drops that keep the eye dilated to control the pain.)

    I asked if it could have happened from "dry eye" and he said, "Maybe." (Don't you just love it.)

    I wrote my medical history out and gave them a copy. He was interested in the EBV and said, "if this turns out to be an infection, we will have to treat it with AV's (antivirals). That was after he said it was a one time occurance.

    So, he wrote my pcp a letter and requested that he do a sed rate (looking for inflammation in the body...but not specific to an area), a chest xray (looking for sarcoidosis), the gene test and a sysphillis and gonorrhea(?) test. All of that is routine and didn't surprise me.

    I know he thinks this is a one time thing but it started on Dec. 15th, simmered down and then flared really bad on Jan 17th. To me that is already twice that it has happened.

    Only time will tell.


  19. CanBrit

    CanBrit Member

    I went in to see my family Dr yesterday and he's referring me to someone else, likely an opthamologist. He said he'd try to get one as soon as possible, but up here in Canada, that could take months!

    He said he didn't want to give me anymore steroid eye drops because if the risks with them? The last guy never said there were any issues. Figures!

    All the best....


  20. nightngale

    nightngale New Member

    Did they ever do the Schirmer test. They stick liitle pieces of paper in your eyes and have you close them for five minutes. The amount of moisture on the paper tells if you have dry eye! It is so fast and easy. They can also do a slit lamp test with rose bengal stain to see if there is damage on the cornea. Though my doc did not do that. He said he could but he could tell I had dry eye, it was severe from the paper test. Only now I realized with the slit test they check for damage. He did say he could do it, so maybe I will ask when I go back for my full eye exam I think he said 3 months. Are you saying these docs don't even know if you have dry eye but aren't doing any test for it? Or did they already do that and it was inconclusive? Ach!
    [This Message was Edited on 02/08/2007]

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