spasmodic torticollis

Discussion in 'Fibromyalgia Main Forum' started by NewEnglander, Jul 19, 2006.

  1. NewEnglander

    NewEnglander New Member

    anyone here of this, or cervical dystonia?
    it involves neck pain.

    also wanted to ask if anyone else experiences this.
    when diagnosed with fibro
    it seems that doctors will do less testing.
    I often wonder if maybe there is something wrong with my spine becuase it hurts so much. or the bones in my back.
    I know I have had thyroid problems in the past and really had to fight to be tested.
    I just think sometimes that telling doctors your diagnoses of fibro causes them to do nothing.
    okay if I have the flu I get treated, but as far as anything else (pain related) its considered simply fibro.

  2. Cromwell

    Cromwell New Member

    I had med induced torticolis and it was dreadful, just the one time and they gave meds immediately to counteract.

    I have the same feeling that something must be wrong witht he spine due to pain and esp neck but down the whole spine, not as in backache either. They say no. Check for srynx probaably not thois but my rheumy mentioned it once to check then didn't.

    I agree best not to mention FM. This is why I am awake at 4.00am due to neck pain I am so tired yet there is no sleep coming. Love Anne Crom
    [This Message was Edited on 07/20/2006]
  3. NewEnglander

    NewEnglander New Member

    so sorry that your neck has kept you from sleeping.
    I understand that.
    take care