spial tap for lyme???

Discussion in 'Lyme Disease Archives' started by boscosmom, Sep 13, 2007.

  1. boscosmom

    boscosmom New Member

    what if the spinal tap i had for MS was neg....and neg for lyme...
    can that still mean i have lyme giving me neuro symptoms or is that difinitive???
    ty all, sc
  2. mollystwin

    mollystwin New Member

    I don't believe that any lyme test is definitive and that there are many false negatives. I think it can still be the lyme giving you your symptoms.

    Can you find a LLMD to help you? That would be best, but it can be difficult to locate one.

    dar
  3. munch1958

    munch1958 Member

    My neuro wanted to do a lumbar puncture to look for sarcoid. No thanks. It would be just another useless invasive test since technology doesn't exist to find spirochetes.

    I developed chronic pain at the site where I had a bone marrow biopsy done in 2003. It frosts my rear end, both figuratively and literally, that they didn't even pull out enough material to get a diagnosis. They admit there is something wrong but they don't know what it is.

    Any where they do invasive tests or I have an injury turns into a mini-Lyme-fibro-pain-factory. No need to add chronic spinal pain to the list. Oh, and the doctors said I was "crazy" for saying that the BMB site hurts.

    Then how come homeopathic doctors have a remedy for puncture wound pain? One article on eMedicine says "Chronic pain at the site of the bone marrow aspiration and biopsy is very rare". So that means it DOES happen.

    This article has some stats on spinal taps and Lyme disease:
    http://www.lymenet.de/labtests/workup.htm
  4. boscosmom

    boscosmom New Member

    thanks so much for the info...would you mind telling me what you think of my story..when symptoms began and what they are???
    ty, sc
  5. munch1958

    munch1958 Member

    Personally, I'd find a LLMD if I were you. Have you done a trial of ABX? I think I read somewhere that spinal taps are something like 7% accurate for Lyme.

    I have white matter lesion on my head MRI. After 1.5 years on ABX I'm curious if the lesions have gone away. I don't think it's MS in my case. I think there are some other markers with MS.

    Besides some on the MS groups are using long term ABX protocols -- http://www.roadback.org protocol and http://www.cpnhelp.org protocol.

    There's also the Wheldon protocol for MS which uses long term ABX. http://www.davidwheldon.co.uk/ms-treatment.html

    I am not a doctor. Just someone who has health problems and am searching for possible answers. I'm tired of doctors laughing at people like me. They need to figure out what's wrong instead of labelling me a nut job.
  6. Hope4Sofia

    Hope4Sofia New Member

    I'd be happy to read your story but I don't know where it is. Did you post it somewhere?

    Sofi