I was finally approved for SSD, my disability acknowledged from Sept. 2004 (including 5 months waiting period, backpay to Jan. 2005). As my case progressed over the last 3 years, it was complicated by a diagnosis and treatment, under Medicaid, for late-stage ovarian cancer. I have just finished my 6th out of 9 anticipated months of chemo (the fatigue and sickness from that makes it look like the fibro was just playing with me). I spend a lot of time in chemo-induced confusion on top of my other symptoms. Ok, that's the picture, here's the question. I drained my own and a good part of my parents' retirement savings to support myself. I've paid them back, but I'm afraid Medicare will change the rules on my care (Medicaid covered the cancer treatment wholly) and that I will end up using this back pay not to get back to some level of dignity, but have it grabbed once again by the government. I was hoping to get myself into a stable housing situation, in a small house or condo where I won't be at the mercy of a landlord. I don't qualify for SSI. I've heard exceptions can be made for catastrophic illness, but I suspect they pick you clean first. I don't even know how they change me over from Medicaid to Medicare, and no one I ask (social workers at the cancer clinic, state aid workers, SS people etc) seems to know anything either. Even my disability lawyer doesn't know, she's never had a case like this before! I feel so in the dark and so scared the government is just waiting to screw and rob me again. Anyone have any knowledge or can point me in the right direction for some easy-to-understand answers and advice?