Discussion in 'Fibromyalgia Main Forum' started by paige51, Dec 21, 2006.

  1. paige51

    paige51 New Member

    Just received letter from ssdi that I have to take an examination paid by the government . This will be the second exam I have taken. The first was a mental exam.

    When does it ever stop? I am willing to do whatever they ask me to do.

    I am just tired. Been fighting this for over three years now.

  2. shar6710

    shar6710 New Member

    I just started the process. I've had a telephone interview which was pretty easy and the lady was very nice. I don't really have any advice and I don't know if having to see another Doc is a good sign or not.

    There are a lot of folks here who have been through the long process like you maybe they can help.

    I'm hoping I don't have to fight for years like you.

    Good luck,

  3. swedeboy

    swedeboy Member

    I applied for disability in Jan. 2005 and I was approved in August 2005. I Live in california and I receive SSI and SSDI.

    I submitted a daily journal that I kept for 30 days detailing my symptoms. I also was evaluated by both a SSDI state appointed doctor and pyscologist, which I think helped my claim. I also submitted a detailed list of my immediate symptoms and limitaions listed below.

    There is an organization if you need an attorney called the National Organization of Social Security Claimants’ Representatives you can reach them at They are a non-profit/non-commercial organization. There phone number is (800) 431-2804

    Limitations from Chronic Fatigue Syndrome:


    -Overwhelming fatigue, exhaustion, weakness, persistent flu-like symptoms and postexertional malaise lasting more than 24 hours.
    - Persistent intractable muscle and joint pain
    - Headaches of a new severity
    - Unrefreshing sleep
    - Sore throat
    - Impaired short term memory and concentration
    - Visual impairments such as focusing
    - Lightheaded and increased fatigue from prolonged standing
    - Dizziness and vertigo
    - Nausea, bloating, indigestion, loss of appetite
    - Confusion
    - Anxiety, and episodes of sadness/ depression.
    - Decreased libido


    - stand or sit upright for more than a few minutes on relatively bad days.

    - perform activities with a schedule, maintain regular attendance, and sustain an ordinary routine.

    - complete a normal workday and workweek without interruption by symptoms and perform at a consistent pace without an unreasonable number and length of rest periods.

    - stand, sit upright, and or concentrate for more than three to four hours on relatively good days. (I have had an average of about 10-12 good days per month for the last 12 months)

    - walk consecutively for more than 15-20 min. on good days

    - walk consecutively for more than a few min. on bad days.

    - drive far distances such as 50 miles or more on good days.

    - drive at all on bad days.

    - lift and or carry heavy objects such as gallons of water or bags of groceries on bad days.

    - see clearly for short moments from dizzy spells on both good and bad days.

    - perform cognitive tasks, such as things involving simple and detailed verbal and or literary instructions on bad days and frequently on good days.

    - focus and concentrate, limiting my ability to read for more than a half hour to an hour on a good day, and no more than a few min. on a bad day.

    - maintain attention and concentrate for extended periods of time.

    - to understand and remember simple and detailed instructions, work procedures, and conversations on bad days and frequently on good days.
  4. Hootie1

    Hootie1 New Member

    Were you examined for the memory loss? I'm curious because my attorney omitted memory loss because of the requirement of a bran scan.

    Also, what caught my eye about your profile is that you said that you have progressively gotten worse with exercise. I, too, was athletic and an avid long distance runner, but over time I have not even been able to take long walks much less exercise without the flare and fatigue.

    What can you do now- if anything in the way of exercising? I'm wondering if I will ever be able to exercise and I am very concerned because of the balance of the body. I think of this lack of exercise on an almost daily basis.
  5. swedeboy

    swedeboy Member

    Umm...I was never tested for memory loss. A brain scan can prove it? I must have forgotten that, ha ha!

    Yeah about exercise, I wish so much that I could exercise. I miss my athletic days incredibly. Now all that I can do is moderate walking on good days, gentle yoga, and ocassionally aqua therapy. Anything else sends me into a bad flare up.
  6. paige51

    paige51 New Member

    They have more than enought information about my condition. That is not including all the surgeries I have already had trying to get my health and life back together.

    I do have a lawyer. Waiting for an examination by one of their doctors now. why?, I do not know, a doctor is a doctor.

    my condition is not getting any better. It seems like everyday something else goes wrong or gets worse.