starting new pain meds, would love advice

Discussion in 'Fibromyalgia Main Forum' started by NewEnglander, Oct 14, 2009.

  1. NewEnglander

    NewEnglander New Member

    I am trying to come off of methadone.
    its very painful for me to go down on my miligrams.

    right now I'm in a methadone clinic for drug addicts.
    what happen to me is a long story.

    after years of being on different pain medications and suffering.
    my doctor put me on kadian and perocet.

    this saved my life, I was bed ridden before this and now was so much better, I could go back to work.

    anyway, my doc went on maternity leave, and the covering doctor would not refrill my scripts.

    so I not only became bed ridden from pain again, but was going through horrible withdrawels.
    so I went to a rehab hospital and they gave me methadone

    after being released from the hospital I went to a methadone clinic so I could continue with the methadone to continue to be pain free.

    but I don't belong there, its a terrible situation, I can't even go out of town without their permission. I'm treated no better then a herion addict. but that's a whole different story.

    I saw a pain specialist.
    he told me he couldn't help me until I get done to 40 miligrams of the methadone.

    I was on 80 miligrams but have gone done to 73, now I'm in a lot of pain. it hurts more and more with each milgram I go down.

    he told me he would give me some medications to help me to go down on the methadone.
    I'm nervous about taking them

    First he gave me 750mgs of mehocarbamol, I didn't want to take it because I read that soma is better for pain, that's what I have now.
    now he gave me
    nortriptyline 10mg 3 x daily
    and baclofen 10mg tabs take up to four at bedtime.

    night time for me is so painful, I miss resting without pain
    the soma helps me to have this until around five in the morning, then I wake up hurting so bad.
    but the soma knocks me out, I'm hoping that when I go down off the methadone that this will not happen.

    I also gained 20 pounds since being on the methadone and wonder if these meds will do the same.

    any suggestions would be well appreciated
  2. AllWXRider

    AllWXRider New Member

    Dr. Teitelbaum says that muscle fibro pain is an energy shortage condition from damaged mitochondria. It takes more energy to relax a muscle than to relax one. Dead body is often refered to as a "stiff" rigor mortis.

    Ribose is a pentose sugar that helps feed the broken mitochondria. It doesn't cure but is a "crutch" if you will. It may buy you some time to get well.

    Dr. T recommends, 5 grams 3X a day, until it kicks in 4 days - 2 weeks, the 2X day for maintenance.

    Ribose does not support fermentation so it won't feed Candida.
  3. NewEnglander

    NewEnglander New Member

    I never heard of ribose,
    but will look into it thanks.

    I also forgot to say what my diagnoisis is, I don't know if that would make a difference or not but its fibro, plus degenerate disc disease in one of the disc in my neck and arthritis.
    anyway, that was what I was told after the examination and exrays.
  4. AllWXRider

    AllWXRider New Member

    For degenerative arthritis, my wife has had good success with Glucosamine and MicroLactin. The European studies had results starting with 3 grams of glucosamine. Walmart (Sam's) sells a liquid variety of it. It takes 4-6 wks to see results. It does rebuild the cartiledge. It is a glyconutrient so it may be stopping a virus that causes this form of arthritis.

    MicroLactin is new but a few pilot studies were encouraging.

  5. nah.stacey

    nah.stacey Member

    I read all I could find on Dr. Berkson and his LDN usage. Who is going to do this for you and how do you get started.
    I am very much interested in this as I am hoping it will regenerate the walls of my intestines like it does for other organs. When I had my hysterectomy it was because my uterus was attached to my intestines via adhesions from 5-repeat c-sections. Not a pretty sight. Anyway that is my hope.
    Please keep me posted.
  6. NewEnglander

    NewEnglander New Member

    thanks for all the imput