I am really upset about this...I was diagnosed 10 years ago. I know what it's like living with this and it kills me to know she is so young and will be living with this the rest of her life. I sent her information and I sent it to her mom too... I just hope she uses some of it and can feel better. It sucks to be so young and have this terrible thing. I just want to cry for her....it's going to be such a battle for her.