Still in Bed

Discussion in 'Fibromyalgia Main Forum' started by NyroFan, May 16, 2006.

  1. NyroFan

    NyroFan New Member

    I am still in bed. I have been there since Friday and am headed back there now. I think this is ending and will be up and running tomorrow. I just can not stay awake.
    It is working along with a FM flare and although the sleep is annoying I think it is helping with the flare. Can you imagine just getting up to eat and go back to bed?

    I am on a sleep marathon. I think this is the longest I have ever gone. Friday, Saturday, Sunday, Monday, Tuesday: please let this be the last day, not that I am going to do too much when I do get up and running. I do not intend to start flaring again.

    I am going to play it safe and stay on the heating pad for a while. I do not care if it takes all month to get over this bout: so be it.

    I hope all are as well as can be.

    Missing you,

  2. 69mach1

    69mach1 New Member

    maybe we can tell them to go away just like the ghosts in homes, like slvyia browne tells those people on montel show...

    sorry about your bout we have all been there done that...

    atleast it sounds like you are getting some sleep...

    klonopin has helped me...i started on that mid april..then ran out fro about 4 days and started back on has help some not perfect at all but better...


  3. Scapper

    Scapper New Member

    Hang in there!!!

    I have the same cycles of being in bed for days on end. While you're in it, it feels like it will never end, but it does.

    Some advice people give me, which I haven't mastered, is: try not to fight it mentally; make it as comfortable as possible, etc.

    My thoughts are with you.

  4. BlueSky555

    BlueSky555 New Member

    You have definitely been missed. Just think; I've been on the other side and couldn't sleep so enjoy it but come back to us soon!!!

    It's nice that you took the time through this flare to sign on and let us know.

  5. SandraJean

    SandraJean New Member


    So sorry to hear about the flare and having to be in bed. I hope you feel better soon. Take care of yourself.

    We miss you,

  6. tlayne

    tlayne Member

    I was just thinking about you. I am sending you prayers & hugs, Tam
  7. AbbeyMae

    AbbeyMae New Member

    Sounds like you were writing about me. I just got through the CFS flare with a die-off of the yeast with thrush. My fibro pain was doing well with the heavy sleeping w/ the exception of a painful mouth/tongue.

    The thrush went away not too long ago, than back again. However I have been treating the candida systemically. Now, once again the thrush is under control.

    In the beginning of the die-off(herxing), I was being too aggressive w/ the treatment and the fatigue was too extreme. So then I took on a more gentle approach and some of the fatigue lifted.

    It was ironic, but when I was sleeping alot and experiencing extreme physical and emotional fatigue, my fibro pain was better. Of course, I was hardly moving my muscles.

    Now, I am still treating the candida with the gentle approach, but the last two nights, I couldn't sleep very well. I have had hard time getting to sleep. I can't stay asleep and I have awaken too early and can't get back to sleep.

    Now my fibro pain is back and faring up some. But also I went grocery shopping and we have some wind coming our way and wind is in the near area(I live in a valley).

    Back to the pain meds(I actually hardly took any when I was in CFS flare). I just hope I can get in a nap today and a good nights sleep tonight.

    I can and do empathize w/ you. I send you Love and Hugs.

  8. mainerose

    mainerose New Member

    i have days and weeks when that is all i want to do. the pain hurts like heck and that heating pad is your best friend and you do not to let it go.
    i know that it is hard to deal with. if i knew you i would bring you some soup and coffee, and sit and talk.
    i hope that you are fealing better soon. i send you hugs and my love and support
  9. PVLady

    PVLady New Member


    I don't know what meds you are taking but I started taking Subutex almost a year ago. I have not had any flares like before since starting it.

    I still have fibro but it is different. I used to have the same flares and be in bed for days.

    Only certain doctors can prescribe Subutex - you dissolve it under your tongue. I believe it acts like a mild opiate but is much less hard on your system and does not make you feel drowsy, tired. In addition to Subutex I use Tylenol Gel Caps and rarely Ultram.

    Subutex is used alot by addiction doctors to help people get off opiates with no withdrawals however it is also used for pain.

    My pain specialist treats many fibro patients with Subutex and is happy to share his "protocol" with other doctors.

    Mostly, he transitions people off opiates with Subutex then they stay on a maintenance dose of Subutex. You never develop a "tolerance" to Subutex like other meds.

    I hope you feel better soon...


    BTANNER New Member

    Hello,Sorry to hear i'm not the only one.Couldn't figure out what i was doing different.I'm at work, been fighting to stay awake the last 5 days myself.It's very difficult to work like this.don't get alot done.Makes it hard to prove yourself worthly of climbing that corporate ladder.Hope today is better for you,Thanks for letting me know I'm not losing it.

    good luck

  11. NyroFan

    NyroFan New Member

    To all...
    of you who sent me warm thoughts and prayers: thank you.
    I am out of bed today and moving around a little. I even managed a hot shower. My bath chair was delivered Friday and I am just using it.

    You all were so nice to me and took the time to send me notes. I plan to stay on this message board for the next hour and a half to catch up on what I have been missing.
    I have missed you.

    Once again: thank you very much.

    hugs to all,

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