I can offer one sugesstion that really helped my situation recently at a time when I was becoming VERY frustrated with the lack of understanding I was getting from my docs. I spent a few hours and composed a letter addressed to 'All Physicians Responsible for my Care'. It included all symptoms I was having, drugs tried, preventative measures taken, allergies, etc, etc. I also wrote quite a piece regarding the pain I go through and how it has impacted my life, literally pouring my heart out. I got a sincere appaulogy from my own Physician upon my next visit, and it reallly helped busy specialists realize that I was serious about my health, and gave them an idea who I was. It also helped me to sort things out in my own mind. Mat not be for everyone, but turned out to be a really positive thing for me.