Suggestion for those having trouble with thier docs

Discussion in 'Fibromyalgia Main Forum' started by abcanada, Oct 13, 2006.

  1. abcanada

    abcanada New Member

    I can offer one sugesstion that really helped my situation recently at a time when I was becoming VERY frustrated with the lack of understanding I was getting from my docs. I spent a few hours and composed a letter addressed to 'All Physicians Responsible for my Care'. It included all symptoms I was having, drugs tried, preventative measures taken, allergies, etc, etc. I also wrote quite a piece regarding the pain I go through and how it has impacted my life, literally pouring my heart out. I got a sincere appaulogy from my own Physician upon my next visit, and it reallly helped busy specialists realize that I was serious about my health, and gave them an idea who I was. It also helped me to sort things out in my own mind. Mat not be for everyone, but turned out to be a really positive thing for me.
  2. homesheba

    homesheba New Member

    id love to do that but id be scared hed never read it... sigh.
  3. abcanada

    abcanada New Member

    The trick is to put it in a fancy looking envelope so it looks important. In big letters write:ATTENTION DR. SOAND SO.
  4. kjfms

    kjfms Member

    idea. I think everyone should give this a try.


    Karen :)
  5. maineweezie

    maineweezie New Member

    Thanks abcanada,

    This is an extremely good idea! So many times with the rush in and out medical practices of today this could really make a big difference. My DH told my doctor that he knew that just because I failed to mention all symptoms every visit didn't mean they went away ever.He always sits in on our appointments so if I can't seem to make the problems clear to the doctor or get blasted by fibro fog.For years I questioned if the doctor was using the same language as I was,therefore DH decided to join me.Good thing about your letter writing is the summary of all things pertaining to you clearly written so there's no doubts on either part.
  6. Redwillow

    Redwillow New Member

    Hi Abcanada

    I think you have a good idea. I found I had to keep track of everything especially when I was trying to get a diagnosis and then apply for disability.

    When I visit a new specialist I take typed lists with me which I keep on file in my computer and add too as they need to be updated.

    One list shows the name of all the specialists that I have seen, telephone numbers and the date I saw them.

    Next I have a list of all medications I am on and also a list of the ones that I have tried and a brief note afterwards about why they didn't work for me.

    The third list is the FM symtom list. I delete the ones that don't apply to me and write a brief remark afterwards each symptom that does. Not every doctor will read all of these lists but I have them with me at all times.

    If a comment is made about how organized I am I just say that because I get so tired and in pain (I often have to drive 1 1/2 to 2 hours to get to a specialist) I have trouble remember details like medications etc. So I need these notes to help my memory.

    After all I don't want to give the doctors the impression that I am so organized and in control that I am not sick when the exact opposite in true.

    hugs Redwillow
  7. marsupialmama

    marsupialmama New Member

    since all the dentists and doctors want a medical history at first visit, i wrote one up and print it out every time. If I didn;t do that I would forget something or else the space on their forms is too small, I had a ton of surgeries at one point... plus all the current probs.

    It blows their minds! I tell them that I would probobly omit something if i had to list everything there and then.

    I was a Girl Guide once upona time: Be Prepared!

    I also did a symptom list for my (newish) family doc and she asked if she could keep it in my file.

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