Suggestions for further tests?

Discussion in 'Fibromyalgia Main Forum' started by marcus1243, Jan 2, 2003.

  1. marcus1243

    marcus1243 New Member

    Hi everybody. Because I'm not entirely happy with my dx of Fibromyalgia (at least not as an explanation for every symptom I have), I'm going to arrange (if I can afford it!) every test imaginable to rule out other stuff. I've come up with the following list, which I thought I'd share, but if anybody has any other suggestions, I'd be very glad to hear them:

    Serum glucose, electrolytes, calcium, magnesium, free T4, TSH level, and myoglobinuria
    Serum B12, folate level, MMA
    Serum creatine kinase (CK) and aldolase
    Candida antibody titre
    ESR
    EMG
    CBC
    Lyme antibody titre
    RA factor & C-reactive protein, ANA tier
    Cervical Spine MRI
    Brain MRI
    Lumbar MRI
    VEP
    LP

    If I'm negative to that lot, then maybe I'll start to believe that Fibro really is what I have. I'll be broke but in a better state of mind..!

    --Marcus
  2. JP

    JP New Member

    I question FM as well.

    I have great insurance and have had a handful of tests with some on your list (some repeated). My ESR is always high positive; my ANA is always high positive; my CBC is neg and some of the low normal stuff is interesting; my Lyme test was neg; AIDS test neg; lumbar MRI a major mess; RA factor neg; THS and T4 were positive, now on thyroid meds; serum glucose neg and I think that covers the tests I have had on your list. I have also had others.

    I sure support your investigation and think you are doing the right thing. Even with all of this other positive test stuff going on, my specialist stills gives me the additional dx of FMS and he thinks there will be more positive tests as we explore.

    I also take some meds to help me with the positive stuff and I still have widespread pain every moment of every day with pain meds. I hope you are okay with this share...I still don't know if I have FM because I have a hard time accepting syndromes due to the amazing stigma in our society. I sure have the list of symptoms that define this syndrome.

    Supporting you on your journey and hoping that the funds are available for you to explore your health. Wishing you improved health and well being...Jan