Sure could use a kind word

Discussion in 'Fibromyalgia Main Forum' started by JP, Mar 26, 2003.

  1. JP

    JP New Member

    today. I can't seem to shake whatever it is that has me feeling so poorly. It's pretty extreme. It may just be the flu. It is hard to recognize flu or cold with these assorted autoimmune diseases and syndromes. It kind of freaks me out. I don't know if the fevers are my autoimmune disease or if it is something else because my symptoms are so different today. I found myself actually getting angry and tearful at the same time. I want my life back! I don't know the way back.

    Thank you for being here. I am so grateful that every moment that passes is new...there must be hope somewhere.

    Jan
  2. baby-bear

    baby-bear New Member

    I'm so sorry you feel bad....Could you go to the doctor? I know how you feel. I would try (if you haven't already) to not eat any sugars, carbs or starches. Definitely rest and take it easy. What is it you have? FM? CFS? I know...did you eat or take anything different? That got me last year when I did not know I had sensitivity to Lactose in the meds. My doc. gave me a laxative drink to take nightly and it had Lactose in it. What a trip!!!!...I never was so sick and fatigued in my life and I had to drive to work in the traffic 1 hour each way and work 40 hours a week. I was the crawling dead!!! Ha!! Finally I figured it out. Anyway, hope you get better...Pammy
  3. Harper

    Harper New Member

    Sounds like you are having a really rough time. I was just sitting at my house Sunday afternoon, when it seemed someone just "unplugged" my motor. I was so sick and tired just all of a sudden! It was like having the flu. The ironic thing is when I feel this way, my pain is not so bad. It's a different feeling from the fatigue. I often seem to have "fever". I'll tell you what's helped me is the fibro chat room. I've never visited within anyone before that room, but it really helps. I'm usually in pretty good spirits (although I suffer from depression and anxiety, too), but even when I'm down, this room really helps me.

    Of course we want our lives back, but that not be in the cards. Does that mean we won't have good days and times ahead? No, good things are going to come our way again, Jan. It's almost like I'm going through a grieving process for the old me. I refuse to give up because I want to get better!

    Hang in there, Jan. Blessings and prayers for you!
  4. PatPalmer

    PatPalmer New Member

    You poor love, you`re right, it is a truly horrible disease. - So damn frustrating, you`ve every right to be angry.
    One day you don`t feel too bad and the next it`s got you,- with so many symptoms that it`s impossible to remember them all. My brain always becomes vacant when i`m at the doc`s.

    What are you doing to help yourself at the moment with supplements? Are you on medication? And what illnesses have you had if any?

    Questions, questions, questions. I love this board too, it`s my life line.

    Love Pat.
  5. Mikie

    Mikie Moderator

    Sending warm hugs your way. I hope you are feeling better.

    Love, Mikie
  6. JP

    JP New Member

    your kind words and care have brightened my day.

    I am not doing so well today and these words touch my heart in a way that gives me hope. My level of function use to be a very high functioning professional woman in charge of my life and a boss to many. I was not able to find any redeeming self-value this morning in the midst of my fever, chills, body aches, anger, tears and the rest of my symptoms.

    I do have excellent medical help. I just don't know the extent of my illness at this point. I see another specialist next month. I keep testing positive for lupus, my endocrine system is an unexplainable mess, I have spine injuries that have me living with chronic pain, a thyroid disease and tons of arthritis! I know there are others out there in far worse shape and someday days I just have a hard time turning these feelings into something positive and hopeful.

    So, your words have given me the gentle loving push that I needed. Thank you all so much.

    Love,
    Jan