Discussion in 'Fibromyalgia Main Forum' started by Shalala, Mar 5, 2007.
OK ... a lot of seem to be getting basically "blown off" with SLEEP APNEA is your problem?
Count me in!!!
Yes, I've had a sleep study. Yes, I do have sleep apnea. And yes, my doctor keeps blaming all my symptoms on it even though I have FMS and I think CFS/ME as well.
I have FMS and i also have chronic insomnia, but as far as i know i dont have sleep apnea.
Had a sleep study, diagnosed with sleep apnea and mild alpha delta sleep wave pattern prior to onset of severe pain.
Use a cpap nightly, which does help.
The doctor I see for the fibro and degenerative discs doesn't blame all the problems on the sleep disorder.
He does feel (rightly) that sleep plays an important role in fibro.
However, the doctor I see for the sleep apnea (luckily only have to go once a year) thinks all my other problems are due to sleep disorders. I find that annoying but I don't have to see him often.
It will be interesting to see if the sleep thing helps our pain ;-) We will have to keep each other posted on it. I go in Thursday. It can't hurt to get checked. Good luck.
Thanks to all for posting. I guess only a few of us are getting the "sleep apnea is the root of your problem(s)" diagnosis? I agree sleep is a major player BUT I don't see how it can cause all of these other issues (including IBS).
I am taking my ambien anyway (for now). I can't sleep through the night w/out it. From what I am reading that sleep clinic will probably tell me to stop taking it (like the dippy Neuro did).
We hurt bad enough without being shoved off to another DR. I really think these DRs are totally baffled by "us" and don't want to admit it.
I was diagnosed with severe sleep apnea 6 years ago and I've used a C-PAP ever since. It does help but I'm still always tired and in pain. I haven't had a doctor try to tell me that all my syptoms are because of sleep apnea, but the last sleep specialist I saw just couldn't seem to wrap his head around the idea that I could still be exhausted while using the C-PAP. What can I say, I'm exceptional.
Have you had a sleep study? Many fms patients have alpha wave intrusion (found by a sleep study) and when I had mine, the technician told me (while they were hooking me up) that should they determine that I also had sleep apnea, they would wake me and do whatever they do for apnea folks.
I have sleep apnea and now use a bi-machine (I think that's what it's called - it's new) I told my Dr. last month when I was in that I was so exhausted I could hardly stand it, he didn't understand either.
Yes, I have a sleep apnea and use a C-Pap machine.
I have sleep apnea and they said that it was sever...I am on a c-pap machine...they finally have it set right....my doctor feels like once I can get use to the machine that alot of my symptoms will improve, not go away but improve.
I have Obstructive Sleep Apnea, Upper Airway Resistance Syndrome, the Alpha-Delta intrusion and FM. (& other FM-related stuff!) I use a CPAP.
I had obstructive sleep apnea and had the surgery in Nov 05. Although I no longer snore, I still have terrible fatigue issues and the ENT told me that these issues are not related to OSA.
I have sleep apnea and CFS. I see a great sleep doc in Boston.
Sleep apnea needs to be managed. I see him once a year. I've had 3 sleep studies since I was diagnosed 8 years ago, to be sure my level is set right for my bi-pap.
In addition to the apnea, I have "fragmented sleep". It's a brain thing where my breathing is sometimes lighter and sometimes heavier. When heavier, I wake myself up.
The goal per my doc is to stay in sleep as long as possible without awakenings. My apneas are in a normal range with the bi-pap. But I have those other awakenings. So, he prescribed Ambien and says Klonopin is just as effective. Though I find Ambien works better.
He's big on circadian rhythm, light box, sleep hygiene (getting to sleep at reasonable hour). All of these things are important for people with sleep disorders.
My holistic doc who diagnosed my CFS and is great, has also said, well if you are depressed, or sleep deprived, those things have to be treated first. She implied that all my problems could be in those arenas. Though she gives me Cortef for low cortisol.
I participated in David Bell online talk and asked him what he recommends I do next (I'm on meds for CFS, etc.). He said "sleep". I was angry and disappointed. Not sure why he said that, could be many reasons. But it shows how important sleep is, I guess. And that we need to maximize sleep as much as possible.
My 2 cents.
I saw your message regarding the surgery. I am getting tired of having breathing problems from one nostril and considering this surgery. I've also scanned the msgs regarding anesthesia. I have to say it does scare me, but I don't want to live with this breathign issue my whole life and wearing Breath-Right strips every night. Any suggestions for a good surgery? I've also heard the surgery with "packing" is worse. I hope to find a surgeon who doesn't do that.
Best - Sun
I have apnea , insomnia and my sleep "clock" is all messed up . They call it circadian rythym(sp) disorder. I go to sleep between 11:30 pm and up to 5:00 am ! I also don't have any stage 4 sleep.Totally messed up . Then , when you add in factors like waking up from pain it is a mess.
I have FMS and sleep apnea. However, I tried for 5 years to use my CPAP. I could fall asleep OK but I couldn't never sleep through the night with the mask on. I would take it off in my sleep and later discover it was off, I'd put it back on. I could never sleep with it for more than 2 or 3 hours. Waking up 6 times a night was more exhausting than before the CPAP so I finally gave up. I tried several doctors and several different masks, nothing seems to help.
I'm coming in a little late, but I was dg with Severe Sleep Apnea before I was dg with FMS. I use a CPAP and have it at 14. It looks like a lot of us have both. Interesting.
Was diagnosed 15 years ago, way before FM.
Separate names with a comma.