swelling of joints/tendons and surrounding tissue

Discussion in 'Lyme Disease Archives' started by 28years, Feb 2, 2009.

  1. 28years

    28years New Member

    I've had CFS for 29 years. Last June I started getting swelling of joints and the tissue surrounding them (possibly the tendons). In July I got acute lyme (with rash) and was treated with doxy for 3 weeks. But the joint pain, and swelling have continued and is progressive-- more and more joints are affected-fingers, wrists, elbows, ankles, shoulder and feet so far, and the ones that are affected stay affected.

    In addition to the swelling my affected joints hurt. They have a dull ache all the time, and a sharp pain when I use them. Also, they crackle alot-even the bones in my hands crackle.

    I have been to a rheumatologist and he checked me for EVERYTHING and found nothing. He did find that in my Western blot I had one abnormal finding (Igm P23). So he sent me to an infectious disease doctor. The infectious disease doctor basically blew me off. He said I don't have lyme and my joints don't look that bad to him!!!

    I know lyme causes swelling of the joints, but from what I've read it migrates from joint to joint instead of staying in the affected joint.

    Also, it seem to be more that my tendons or connective tissue around my joints are affected. Does lyme affect the tendons?

    Does anyone else out there have the same thing? Do you know what causes it and how to stop it?

    Are there any good articles that specifically address joint, tendon and connective tissue problems?
    [This Message was Edited on 02/03/2009]
  2. Nanie46

    Nanie46 Moderator


    I am sorry that you are suffering so much. I can't direct you to specific articles on tendons and joints but they probably exist.

    I think it would be sooooo worth your while to find an LLMD and get a good evaluation to see if you have chronic lyme. 3 weeks of doxy is usually very ineffective. Your symptoms may be caused by lyme (and possibly co-infections) that were not treated effectively. LLMD's do not consider 3 weeks of treatment as nearly enough.

    Considering the health problems you could deal with for the rest of your life if you do not get proper treatment, it would be sooo worth it to find an LLMD fast.

    Borrelia burgdorferi hides deep within the body in all tissues...tendons, fat, muscle etc...so, yes, it can affect tendons, or joints, or muscles etc.

    If you haven't already read it, I would urge you to read "Advanced Topics in Lyme Disease-Diagnostic Hints and Treatment Guidelines for Lyme and Other tick Borne Illnesses, October 2008, by Dr Joseph Burrascano.

    It can be found at:


    You may already know, but there is alot of great info at :


    Dr John Bleiweiss wrote a very eye-opening essay called "When to Suspect Lyme", that I think everyone should read....the first few paragraphs may not seem interesting, but it gets fascinating after that. It can be found at:


    There are also some great articles at:


    To find a LLMD in your state, go to www.lymenet.org, click on flash discussion, then click on seeding a Doctor. Register your information for free and then post a message on the "Seeking a Dr board" stating where you are seeking a Dr...for example...."Seeking a LLMD in Central PA".

    Someone will send you a private email with names of LLMD's.

    Good luck to you and let us know how you are doing.