Take these FACTS to your doctor........

Discussion in 'Fibromyalgia Main Forum' started by dojomo, Nov 9, 2002.

  1. dojomo

    dojomo New Member

    What the CDC knows as fact and what is being done...AND why aren't doctors aware of this serious illness.....



    December 1995

    CDC Upgrades CFS

    The Centers for Disease Control and Prevention (CDC) in the United States announced earlier this year that its National Center for Infectious Diseases has listed CFS as a 'Priority-1 New and Re-Emerging Infectious Disease'. Other diseases on this list include malaria, tuberculosis, measles and hepatitis C.
    Reprinted from Emerge, December 1995.

    New York Native, issue #642, August 7, 1995

    A group of researchers led by Dr. Anthony L. Komaroff at the Harvard Medical School just published a study in the Annals of Internal Medicine affirming that the previous estimate of the number of people with Chronic Fatigue Syndrome (CFS) in the United States has been grossly underestimated by the Centers for Disease Control, as the CDC recently acknowledged.


    "Yuppie Flu" is Dead

    CDC: Chronic Fatigue Syndrome is Widespread, Severe
    Chronic fatigue syndrome (CFS) may affect up to 50 times the number previously estimated by the Centers for Disease Control (CDC), reported Dr. William Reeves, chief of Viral Exanthems and Herpesvirus Branch at CDC. Dr. Reeves, Harvard Medical School's Anthony Komaroff and the Oregon Health Sciences University's Dr. Mark Loveless provided testimony at a May 12, 1995 Congressional Briefing sponsored by Representative John Porter (R-IL) and Senator Harry Reid (D-NV). Much new information was presented to dispel the popular belief that CFS is a benign, self-limited illness that only affects whites with high incomes.


    Dr. Reeves stated that 76-220 per 100,000 Americans have a CFS-like illness. Earlier CDC estimates pinned the number at 4-9 cases per 100,000.
    New CDC estimates indicate that CFS is twice as common in the Afro-American and native American populations as in the white population.


    This CDC study also reports that the average income of sufferers identified is $15,000 per year.


    CDC officials have recently added CFS to the list of Priority-1 New and Reemerging Infectious Diseases. Other illnesses listed as Priority-1 include E.coli and tuberculosis.


    Dr. Reeves further stated that, according to CDC's initial study, only 12 percent of patients ever recover. But, he clarified that overall the recovery rate may be as high as 45 percent, stressing that chances for recovery substantially diminish after five years of illness.


    Dr. Mark Loveless, an infectious disease specialist who runs an AIDS and CFS clinic at OHSU, stated that a CFIDS patient feels every day significantly the same as an AIDS patient feels two months before death. His statement was supported by data from clinical research conducted at OHSU and by the experience of other CFS experts.


    Dr. Anthony Komaroff, a CFS researcher, clinician and principal investigator of a National Institutes of Health-funded CFS research center, reported on the serious damage to the brain found in patients with CFS, apparently causing many body systems to malfunction.


    In six months CDC has responded to over 65,000 requests for copies of the newly revised case definition for CFS published in the December 15, 1994 issue of Annals of Internal Medicine.

    Chronic fatigue syndrome is a serious and complex illness characterized by incapacitating fatigue, neurological problems and a constellation of other debilitating symptoms.


    Four Years later 1999

    AP-NY-10-13-99

    CDC Sorry for Diverting Funds

    .c The Associated Press
    By RUSS BYNUM
    ATLANTA (AP) - The head of the Centers for Disease
    Control and Prevention apologized Wednesday to people
    with chronic fatigue syndrome, saying the agency was
    wrong to divert millions of federal dollars earmarked
    to study the mysterious illness.
    CDC Director Jeffrey Koplan promised a ``reinvigorated
    effort'' to study chronic fatigue, which leaves some
    people so drained they can't perform simple tasks.
    Some rarely leave their beds.

    Earlier this year, an audit showed the CDC had
    received $22.7 million from Congress for chronic
    fatigue research, but less than half the money was
    used for that purpose. At least $8.8 million was spent
    on other programs and $4.1 million could not be
    accounted for.
    ``It is clear to all of us that we, CDC, have made
    serious mistakes and have done so for several years,''
    Koplan told 16 chronic fatigue patients and their
    advocates at agency headquarters in Atlanta. ``I apologize to each of you personally.''
    CDC officials have not explained why the money was
    diverted.

    Here we are 2002..............what's new?.......NOTHING.........
  2. dojomo

    dojomo New Member

    What the CDC knows as fact and what is being done...AND why aren't doctors aware of this serious illness.....



    December 1995

    CDC Upgrades CFS

    The Centers for Disease Control and Prevention (CDC) in the United States announced earlier this year that its National Center for Infectious Diseases has listed CFS as a 'Priority-1 New and Re-Emerging Infectious Disease'. Other diseases on this list include malaria, tuberculosis, measles and hepatitis C.
    Reprinted from Emerge, December 1995.

    New York Native, issue #642, August 7, 1995

    A group of researchers led by Dr. Anthony L. Komaroff at the Harvard Medical School just published a study in the Annals of Internal Medicine affirming that the previous estimate of the number of people with Chronic Fatigue Syndrome (CFS) in the United States has been grossly underestimated by the Centers for Disease Control, as the CDC recently acknowledged.


    "Yuppie Flu" is Dead

    CDC: Chronic Fatigue Syndrome is Widespread, Severe
    Chronic fatigue syndrome (CFS) may affect up to 50 times the number previously estimated by the Centers for Disease Control (CDC), reported Dr. William Reeves, chief of Viral Exanthems and Herpesvirus Branch at CDC. Dr. Reeves, Harvard Medical School's Anthony Komaroff and the Oregon Health Sciences University's Dr. Mark Loveless provided testimony at a May 12, 1995 Congressional Briefing sponsored by Representative John Porter (R-IL) and Senator Harry Reid (D-NV). Much new information was presented to dispel the popular belief that CFS is a benign, self-limited illness that only affects whites with high incomes.


    Dr. Reeves stated that 76-220 per 100,000 Americans have a CFS-like illness. Earlier CDC estimates pinned the number at 4-9 cases per 100,000.
    New CDC estimates indicate that CFS is twice as common in the Afro-American and native American populations as in the white population.


    This CDC study also reports that the average income of sufferers identified is $15,000 per year.


    CDC officials have recently added CFS to the list of Priority-1 New and Reemerging Infectious Diseases. Other illnesses listed as Priority-1 include E.coli and tuberculosis.


    Dr. Reeves further stated that, according to CDC's initial study, only 12 percent of patients ever recover. But, he clarified that overall the recovery rate may be as high as 45 percent, stressing that chances for recovery substantially diminish after five years of illness.


    Dr. Mark Loveless, an infectious disease specialist who runs an AIDS and CFS clinic at OHSU, stated that a CFIDS patient feels every day significantly the same as an AIDS patient feels two months before death. His statement was supported by data from clinical research conducted at OHSU and by the experience of other CFS experts.


    Dr. Anthony Komaroff, a CFS researcher, clinician and principal investigator of a National Institutes of Health-funded CFS research center, reported on the serious damage to the brain found in patients with CFS, apparently causing many body systems to malfunction.


    In six months CDC has responded to over 65,000 requests for copies of the newly revised case definition for CFS published in the December 15, 1994 issue of Annals of Internal Medicine.

    Chronic fatigue syndrome is a serious and complex illness characterized by incapacitating fatigue, neurological problems and a constellation of other debilitating symptoms.


    Four Years later 1999

    AP-NY-10-13-99

    CDC Sorry for Diverting Funds

    .c The Associated Press
    By RUSS BYNUM
    ATLANTA (AP) - The head of the Centers for Disease
    Control and Prevention apologized Wednesday to people
    with chronic fatigue syndrome, saying the agency was
    wrong to divert millions of federal dollars earmarked
    to study the mysterious illness.
    CDC Director Jeffrey Koplan promised a ``reinvigorated
    effort'' to study chronic fatigue, which leaves some
    people so drained they can't perform simple tasks.
    Some rarely leave their beds.

    Earlier this year, an audit showed the CDC had
    received $22.7 million from Congress for chronic
    fatigue research, but less than half the money was
    used for that purpose. At least $8.8 million was spent
    on other programs and $4.1 million could not be
    accounted for.
    ``It is clear to all of us that we, CDC, have made
    serious mistakes and have done so for several years,''
    Koplan told 16 chronic fatigue patients and their
    advocates at agency headquarters in Atlanta. ``I apologize to each of you personally.''
    CDC officials have not explained why the money was
    diverted.

    Here we are 2002..............what's new?.......NOTHING.........
  3. klutzo

    klutzo New Member

    Thanks for posting this. Have you read "Osler's Web"? I seem to remember from the book that this man's name is Kaplan not Koplan, or is this someone else? In the book, he was portrayed as the person with the major blame for diverting the funds, with most of it going to new office furniture, on the grounds that no serious scientist was going to study this ridiculous made-up illness as it would ruin their careers. In fact, one guy he didn't like was assigned to CFS as a punishment. If you have not read "Osler's Web" it is a real eye-opener, and most good libraries have it now.
    BTW,the WHO put out a position paper on FMS in 1992 that stated that FMS patients live daily with conditions similar to the last 2 weeks of life for cancer and AIDS patients....sounds similar to the position in the above article on CFS.
    Why don'tdoctors know this and give us the respect we deserve? They don't read the research. Look at the way the average doctor spends his day and you'll see why. The whole system stinks.
    Thanks for another excellent post.
    KLutzo
  4. HOUSEOFBLUES

    HOUSEOFBLUES New Member

    If I took these facts to my doc's they would just shrug their shoulders.........
    It's a shame really how our medical profession has turned out....

    LOVE
    HOUSEOFBLUES