Tansy / Dont Like Liver - Lyme

Discussion in 'Fibromyalgia Main Forum' started by Rosiebud, Sep 18, 2005.

  1. Rosiebud

    Rosiebud New Member

    thanks for answering my question on Lyme testing in UK.

    Why do you think it isnt taken seriously over here. Are the tics in the US more dangerous, give a more serious illness or is it down to the NHS ignoring chronic illnesses again.

  2. tansy

    tansy New Member

    Hi Rosie

    Yep all the usual reasons. Doctors are being taught that lyme disease is very rare so it's not even considered in most cases. The tests here, especially the one in Southampton, produce a high % of false negatives. Even though these tests are not reliable they are being used as if they are. On the rare occassions there's a positive result in most cases ABx are not given for long enough, then it becomes seen as post lyme disease and grouped with ME, CFS, FM, GWS, OPP etc.

    The NHS ignores other chronic illnesses and tends to favour the quick cheap temporary fix approach, over worked doctors and poor funding don't help. Then we have the current emphasis on Evidence Based Medicine and NICE (national institute for clinical excellence) guidelines, which are tying good doctors' hands and means patients are only offered a limited range of treatments. Lyme disease is expensive to treat if the right long term ABx are used, so economics come into it as well.

    It doesn't help that many who are Dx with chronic borreliosis/lyme had prior Dxes of CFS, FM or been told it's all in the mind; that adds to the problems because current policies, already based on misinformation, would once again be seen as ill judged.

    love, Tansy[This Message was Edited on 09/19/2005]
  3. karatelady52

    karatelady52 New Member

    It isn't taken seriously in the U.S. either. Maybe a little more but from reading posts on the lymenet board, many will say they went to a lot of doctors before finding one who believed in it.

    Then, if they do find one who will test them, they're given 4 weeks of ABx.

    My step-sister went to the VA in Chattanooga because she has had a lot of lyme symptoms. He laughed at her and told her lyme was only in the Northeast and he said he wouldn't test her for it!

  4. Rosiebud

    Rosiebud New Member

    Tansy, you always manage to explain everything so clearly.

    karate lady and fogged up - well that just shows Lyme is not only ignored in UK.


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