TANSY - Help

Discussion in 'Fibromyalgia Main Forum' started by Rosiebud, Oct 16, 2005.

  1. Rosiebud

    Rosiebud New Member

    Hi Tansy

    I just read your post on TMJ disorders and ME/CFS.

    I have had jaw clicking for years now. The article said that TMJ clicking is associated with increases of methamaemoglobin, malondialdehyde and vitamin B12levels.

    I am seeing my doctor tomorrow to discuss B12 injections, he's open to them but wants some literature on it.

    What do you think? Does this TMJ clicking mean I already have more than enough B12.

    I know you might not have an answer to this so I can take this piece of info along to doc as well, just dont want to confuse the issue with him.

    Thanks so much.

    love
    Rosie
  2. alaska3355

    alaska3355 New Member

    I had written you about my son's B-12 injections twice a week. I have recently noticed him doing a lot of jaw clicking, so maybe you have a point. Let me know what the doctor says about it. Take care! Terri
  3. Rosiebud

    Rosiebud New Member

    that's strange that your son's jaw has started clicking since he's had the B12 injections.

    I'm so glad he's picking up.

    I'd love to go to Alaska.

    love
    Rosie
  4. Rosiebud

    Rosiebud New Member

  5. tansy

    tansy New Member

    but the clicking and some of the pain was due to my misaligned bite, a bite guard worn 24/7 then at night helped reduce these symptoms significantly. Now it looks as though my cervical spine issues and chronic infections are the most likely suspects for the problems that remain.

    Since my GP refused B12 injections I have been taking sublingual methyl B12, the form that is most efficient in the brain. My TMJ symptoms have not increased since taking methyl B12. So either it's not relevant in my case, or the form of B12 I take prevents it causing this problem.

    love, Tansy
  6. Rosiebud

    Rosiebud New Member

    I'm thinking I might have a misaligned bite too, the way I can wiggle my jaws around.

    I think I'll try the B12 injections if doc approves and if my clicking gets worse I'll know what it's down to.

    Thanks for answering.

    love
    Rosie
  7. tansy

    tansy New Member

    was treated by my dentist, if all the doctors I saw understood my health issues as well as he, life would be so much easier and less frustrating.

    A specialist insisted it was chronic pain syndrome, but thankfully my dentist recognised the problem straight away, so treated it.

    Both coagulase negative staph and borreliosis can cause pain in this area, I was Dx with both last year. My dentist asked for info on both these infections since they can cause pain in and around the teeth, and make any TMJ problems more painful. He accepts that I have them unlike some local doctors who have been reading too many of the Wessely School's untenable hypotheses.

    An ENT specialist asked if I'd been tested for lyme disease, when I told my GP this, this specialist became referred to as another of my "allies". Funny that cos it means half the doctors and all the other health professionals I've seen over the years are too. The PT who is treating me atm will no doubt be regarded as yet another. Talk about a no win situation.

    love, Tansy[This Message was Edited on 10/17/2005]
  8. Rosiebud

    Rosiebud New Member

    thank goodness for your 'allies' then. How awful for your GP to act like this.

    My 'old' GP, he left for another practice, told me several years ago that

    'One day the medical profession will hang its head in shame at the barbaric treatment of people with M.E. just like they did over the treatment of people with polio and TB.'

    love Rosie