Tell Me About Paxil

Discussion in 'Fibromyalgia Main Forum' started by MsE, Sep 11, 2009.

  1. MsE

    MsE New Member

    The doctor I saw today suggested I try Paxil for all the "nerve" stuff related to CFS. She thought it could help my sleep as well as some of the other gad symptoms I've been
    having lately. She thinks it could help normalize my thermostat which has been out of whack--sweats and chills, fluctuating temp and blood pressure. She thought I should start a very low dose of Paxil, and then I could wean myself off Lorazepam. What do you think? Has this worked for any of you?

    I'm not on a high dose of Lorazepam, but I'm on a daily dose of 1/2 mg three times a day, but I don't want to raise it because it is affecting my memory I think. However, I'm not sleeping much and some other stress symptoms are coming back. I would appreciate your advice. Thanks. MsE
  2. MsE

    MsE New Member

    Please reply to this if you can. Thanks so much MsE
  3. HarleyRidingGal

    HarleyRidingGal New Member

    I was given paxil for depression several years ago in the quest to find just the right medication for depression and anxiety, etc.

    First the dose was too high and I was a walking zombie. My doctor lowered the dose and I was so incredibly tense that I wanted to punch holes in the wall. I didn't actually do it, just felt incredibly angry.

    What was the final straw between me and Paxil was that it had terrible sexual side effects. Without being too graphic, it was imposible to finish what had been started. (I hope that doesn't offend anyone. I'm trying to be as delicate as I can).

    A friend of mine approximately five years later had the same exact problems with it (meaning the bedroom) and was given something else.

    So no, it didn't work for me or for my friend but I'm sure that others find it to be helpful with little or no side effects.

    Hope this helps.

  4. MsE

    MsE New Member

    Thanks for responding, Leslie. I appreciate it. What I have read about it concerns me, but I figured if I asked on this board, I would get honest answers from people who understand how reactive to meds CFS people can be. So, thanks again.
  5. jole

    jole Member

    Paxil is a pretty strong antidepressant, and I've never heard of it being used for all the other symptoms you're describing.

    I know people who take it for depression and do well with it. However, it put me in a pit so deep I didn't know if I'd be able to claw my way back out. Worse than that, actually. I called my doc telling her to "admit me" or "commit me", and thankfully, my doc recognized the fact that I was having a severe reaction to it and got me off immediately.

    I don't question her wanting you to try it if she feels you're depressed, but I wonder how it's going to help your other symptoms? ..........Jole
  6. gb66

    gb66 Well-Known Member

    There really doesn't seem to be any way to know in advance how you're going to react. Paxil was prescribed for me years ago for CFS/FM by a doctor that thought it would help with some of the things you mentioned.
    He gave me a 10 mg. dosage but I cut the pill into about 8 pieces since I'd had strong reactions to many medications.

    I still had a very bad reaction. I felt extreme anxiety and fear for about 36 hours and I didn't sleep in all that time. I also had some kind of neurological reaction. I couldn't put my right foot down to walk. It seemed to be twisted and was very sore. This lasted the entire time also.

    When I told the doctor what happened his only comment was that he had a 92 year old woman patient that took it and it didn't bother her at all. I can't imagine what this had to do with me! I stopped going to him shortly after that. Not the world's best docotor. He didn't understand CFS or FM at all. Even got mad at me because I wanted to see an infectious disease specialist and told me that if I did, he wouldn't be my doctor anymore. Well, I decided to give him his wish. He isn't! GB66
    [This Message was Edited on 09/12/2009]
  7. greatgran

    greatgran Member

    Hi friend, I tried paxil a few years back and it is the only antidepressant that didn't give me the weird head feelings, however it caused me to yawn like crazy and gave me a choking sensation. The doc I was seeing started me out on only 2 mgs. He was a very good psych. and knew of my intolerance to AD's.

    Paxil has done wonders for my friend no side effects but she doesn't have CFS.

    Won't hurt to try . Seems we just have one thing after another. Will be in touch.

  8. MsE

    MsE New Member

    She (and the literature I've read about it) says it is for anxiety as well as depression. I have not been having panic attacks, but I am suffering from generalized anxiety disorder (I think). Or, whatever that fouled up neurons problem is that CFS people deal with. It is like my mind doesn't feel anxious, but my body reacts as if it were. Something isn't firing right in my brain, she suspects, and thinks this might help. I'm willing to give it a try. I think.
  9. Chelz

    Chelz New Member

    I had taken Paxil back in 1997 before I was diagnosed with FM. I was depressed because I didn't know what was wrong with me and I had too much pain and fatigue along with sleep problems and all the issues that go with FM.

    First of all, all the reasons your doctor wants to put you on Paxil for things such as the "nerve" stuff and normalizing your thermostat is not the reason this drug is prescribed. It still amazes me to this day that doctors are still prescribing antidepressants for reasons other than depression. This drug was meant for depression only

    The main issues with this drug were the horrible side effects, which I found out through searching the internet, affected a lot of people.

    When I first took this drug, I thought it worked for me because it basically made me numb physically and emotionally. My thoughts were very indifferent, almost like I just didn't care about anything.

    Next came the horrible weight gain, blurry vision, my periods were all screwed up. Before I took this drug, none I had none of these issues. I researched this drug, printed out the information, and presented it to my doctor. She was stunned that I actually took the time to do this. She did not hesitate to withdraw this drug from me.

    Next came the awful withdrawal period. I had never been so sick in my life, not even with the FM problems. It took almost 3 months before I felt better. I did lose the weight once the drug was withdrawn, and my periods went back to normal like they were before I took the drug.

    There is a petition on the internet about Paxil. People sign the petition in the hope that this drug would be removed from the market. So far there are thousands of signatures. For me, I wished my doctor wasn't so quick to recommend this drug, I only took it because this was back in 1997, before my FM diagnosis, and I was desperate for something.

    Please do your own research on this drug, thank goodness we have the internet which can give us so much more additional information about these drugs, I just wish I would have researched sooner before taking it, but it was a long time ago.

    I work in a hospital, medical records main floor and mental health department, and I know a few of the doctors now, they don't even prescribe this drug that much anymore.

    If depression is something that you have along with your CFS, please discuss this carefully with your doctor. I truly believe these drugs are given out for so many other problems, when there are other safer alternatives to take. I'm sorry this post was so long, but this drug is very powerful, and I believe it should be only given under the care of a psychiatrist. Please take care. Hugs, Chelz.
  10. MsE

    MsE New Member

    I followed your advice and researched Paxil. What I learned iss that it IS used for anxiety as well as depression. However, I also found information that made me cringe. On top of that, after using the med two nights, I am fighting even more than the usual CFS exhaustion. I simply can't tolerate anything that makes me even more tired than I am anyway. On top of that, my eyes have bit a bit blurry. So, after what I found on the internet after reading your thoughtful post, I decided not to get involved with Paxil. Thank you for taking the time to share your knowledge. MsE
  11. Chelz

    Chelz New Member

    I am so glad you researched Paxil. We do have the ability to come to some conclusion as to what drugs we decide to take, along with our doctors as well.

    It was so important to me to just give you a "heads up" about Paxil, not just because of what this drug has done to me, but some of the important information that you can obtain, through your own time and research. I would not wish some of the horrible problems that I had on this drug to anybody.

    On the other hand, I do understand your need for help. You having CFS is so similar to my having FM. The difference now is that we can empower ourselves at least a little about what we can and cannot put our bodies through, or at least have a better awareness of what we decide to eventually do.

    I hope with all my heart you find the treatment, medication, or whatever you need to do to help yourself, it can sometimes seem like such a long road. Good luck to you always, Hugs, Chelz.
  12. thisonecoolgirl

    thisonecoolgirl New Member

    My doctor prescribed Paxil for me about five years ago (long before the CFS) because my Prozac (for severe clinical depression) was losing its effectiveness and he determined that my anxiety could actually be a problem and not just me being "high strung."

    I hated it. It didn't help my depression - or, if it did, it didn't matter because I was just as upset about feeling flat and strange all the time. I would often get a sense that everything was surreal - "am I really here? is this my car? why do I have a car? am I touching this steering wheel or is it touching me?" - and as much of an escapist as I am, that was too much even for me.

    I've heard it works better for men than women, but I've also "heard" that Prozac will make me murder my family in my sleep. You have to take everything with a grain - or shaker - of salt.

    I've also had friends who have tried it and said it caused weight gain, but I'm not certain I buy that one. I've had lunch with these women - their menu choices were causing weight gain, not the Paxil.

    So, for what it's worth, those are my personal observations. I'm currently rocking a cocktail of Nuvigil, Prozac and Klonopin and it seems to be getting the job done (the job, in this case, being allowing me to get out of bed, work, sleep and not cry hysterically throughout the day.)

    Finding out what works, and what hurts, is a long journey. Acutally, it's more of a hardcore road trip in a car with bad shocks and AM radio. But you'll get there :)

    Love & Luck!
  13. MsE

    MsE New Member

    Since reading these posts and doing some research, I have placed the Paxil bottle on a shelf. Now and then I look at it and wonder if I'm missing out on a good thing, but after all that I've read, I'm not willing to risk it. But gee--it sure would be nice to feel less stressed. Any little thing happens that is out of the ordinary, and I feel all jittery.

    For instance, today my phones went dead. I resurrected my cell and finally figured out how to get it working again (hadn't used it in ages) and made arrangements for the repair guys to come out. In the process of that tiny bit of stuff, I got all blithery and stupid. It sure doesn't take much, and I'm really really really tired of it. Oh well. I'm still upright part of the time. :)
    [This Message was Edited on 09/21/2009]

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