Tests for stealth viruses, HOW?

Discussion in 'Fibromyalgia Main Forum' started by Bambi, Oct 25, 2006.

  1. Bambi

    Bambi New Member

    I have asked several doctors I've had including the PCP and pain specialist I have now, who are keeping me functioning, about getting tested. NONE so far have been willing to help me get the testing done.

    What kind of doctors did you see to get the tests and what did you say to get them to be willing? Every doctor I've seen say it's all bunk and just won't even TRY the testing. My PCP will do the Doxy every now and then when I'm flaring but NO tests for viruses, regular or otherwise.

    I've even read our pets should be tested if we show up positive for various viruses like Mycoplasmas and Lyme as we could be giving and getting them back and forth that way. I can't imagine my vet doing the testing any more than my doctors. It's frustrating when it MIGHT be part of the problem.

    Has anyone who has tested positive for a stealth virus gotten nearly well? I haven't heard any one who says they have, only that they take the antivirals and antibiotics and then have herxs and some eventually feel some better. I could easily have missed posts where people got
    nearly well after treatment. Bambi
  2. Slayadragon

    Slayadragon New Member

    I think it's highly unlikely that anybody's going to get "nearly well" after any sort of treatment that's available today. Since both fibro and CFS seem to stem from a variety of root causes, you're going to have to treat all of them if you're going have a chance of approaching health.

    Some of these core problems (which are written about over and over again on this board) include:

    * Detoxification
    * A nutritious diet (although figuring out what that is for you can be a struggle)
    * Getting good-quality sleep
    * Ridding the body of as much yeast, evil bacteria, mycopasmas and parasites as possible
    * Making sure that the endocrine system is in good shape (supplementing when needed)
    * Supplementing with nutritional substances (which is a trial-and-error thing for each person)
    * Finding food allergies/sensitivities and other allergies/sensitivities, and making a conscientious effort to avoid or address them
    * Increasing the efficiency of the digestive system (in a variety of ways)
    * Figuring out your limits (which may change over time or from day to day) and staying within them
    * Avoiding unnecessary stress

    Doing all of these things is a monumental challenge. The people that I've seen on this board who have truly gotten well have spent at least a year (and in many cases much more than a year) concentrating most of their time, energy and thoughts on this alone. The trial-and-error can be difficult, especially since a) a lot of things you try won't help and b) some of the things that you try will help, but only after a period of front-end difficulty.

    I agree with those who believe that antivirals may work well in many cases, but only if they've been scrupulous with regard to the other factors. Both fibromyalgia and CFS (regardless of whether they are the same disease) have an extremely complex set of problems associated with them.

    Addressing one of these causes (e.g. the viral component) obviously is not going to be enough to get people feeling better, therefore.

    Antivirals also are very new to CFS, and it's unclear which ones are likely to work best or how the best way is to use them. Hopefully treatments will become more effective as those methods are refined.

    Finally, getting from 10% to 90% seems to me to be an awfully ambitious goal, since it's unlikely to be reached in a short period of time. If a person can honestly get from 10% to 30% and stabilize there, they've made a marked improvement. They then can work on getting from 30% to 50%, and so on.

    Working on all the things above is likely to be confusing and overwhelming. I would suggest choosing one area at a time and focusing your resources on it. Hopefully after a while, you will see some improvement in your condition. If not, then you may conclude that this is not a big problem for you and move on to other things.

    If you want a magic cure right now, you're not going to get it. If that's the only thing that you will accept, then you might as well join those folks who accept that they're going to be at 10% their whole lives and try to make the most of that. I understand that attitude too. It's hard to keep pursuing new things, especially when you're feeling bad and your financial resources also are limited.

    If you really want to feel "nearly well," you're going to have to work very hard at it. It's going to be frustrating and (likely) expensive. And you may not get there for years.

    Whether that's worth it for you.....I don't know. Your choice.