Thank God I found this site...

Discussion in 'Fibromyalgia Main Forum' started by faithinlove, Apr 2, 2009.

  1. faithinlove

    faithinlove New Member

    I have just recently found this site and I want to tell all of you that some of the messages that have been posted have already helped me tremendously. I found something that has helped me with the pain at times. Peppermint oil application to the body really helps soothe my achy muscles. This may not help anyone but if it just helps somebody, then that is what we are here for. Keep posting and I will surely keep reading. This seems to be the best place and there are some really educational things on here. God bless all of you. There is a question I have...Is there anything that can help us with the quality of our sleep? A lot of times I hardly get any sleep..and if I do it is just an hour and then awaking again only to go through the same thing over and over.
  2. rockgor

    rockgor Well-Known Member

    You might try ProSleep which is sold here. I have been using it for the past few weeks. I am
    sleeping more and waking up more refreshed. A lot of time, however, I'm sleeping during the
    day. (This is ok since I am retired.)

    Good luck

  3. butterflydream

    butterflydream New Member

    This is a good place for helpful information and i must say Thanks for the peppermint oil tip. i haven't tried that but i sure will give it a try for achy muscles.
    I am prescribed 25mg of elavil for bedtime to help me sleep.
    i also sleep as comfy as possible. Featherbed topper and Comfort U body pillow and elevate my legs.
    Hope you find something that will be best for you.

  4. daboysone

    daboysone New Member

    My Dr. gave me Trazadone to help me sleep plus I also take the amatryptiline mentioned below. I was on 200 mg of Trazadone at bedtime however I have decreased it down to 100mg at bedtime and seem to do good with that. I have a friend who takes just 50mg and it works for her. Also I make sure (or try to) to turn the TV off at least 1/2 hr prior to wanting to fall asleep and read either a book or a magazine. This helps my mind slow down a bit however I cannot say it works every time, but most of the time! I too have the pillow top king mattress, featherbed, fleece sheets, feather pillows and feather comforter! I love my bed! Good luck!
    [This Message was Edited on 04/02/2009]
  5. gapsych

    gapsych New Member

    Wow, 200 mg. of Trazodone. I would be a zombie but then we are all different how we react to these meds.

    I was taking 100 mgs. and my doctor wanted me to wean myself off of the Trazadone as he felt it was contributing to my daytime sleepiness.

    It took me a long time to wean myself off the Trazodone as I had been on it for 15 years. However, an interesting thing happened. When I got off the Trazodone, I was sleeping more and my RLS started back up. My quality of sleep decreased and I was waking up every two hours.

    Long story short, I found that 25 mg. is the best dosage for me. It makes me fall asleep right away plus I am not tired from it the next day.

    This is what worked for me but may not apply to others.

    faithinlove, welcome to the board!!!

    Take care.
    [This Message was Edited on 04/03/2009]
  6. misskoji

    misskoji Member

    This is such a wonderful community with so many caring and helpful people. I'm glad you found your way here too.

    Have you had a sleep study done at all? That may better help you and your doctor find which med would be right for you to try first. If you find that you have RLS, PLMS, or sleep apnea...well I just lost my train of thought...(fog), then different meds would be more beneficial to you.

    Good luck to you and don't be afraid to ask whatever you need to.
  7. wendysj

    wendysj New Member

    Hi Faithinlove,

    We're glad to help! I was so happy to have found this website. It helps in so many ways.

    My doctor says that taking a muscle relaxer a couple of hours before bed helps our brain cycle through the different stages of sleep. I am currently taking 25mg of flexiril. I have noticed a HUGE difference in how I feel when I first wake up.

    I'm currently going through a flare and my gall bladder has to be removed soon... But on normal days, the flexiril really makes a difference for me.

    Good luck getting better sleep.

  8. faithinlove

    faithinlove New Member

    Just letting you know I appreciate you suggestion of the prosleep. Will you let me know what the exact name is of the product so that I can purchase some of it. I found Fibrosleep, but no Prosleep. I appreciate you trying to help me. thank again, Faith :0)
  9. faithinlove

    faithinlove New Member

    Thank you so much for the suggetions you gave me. I hope I can find something that is more comforable to sleep. I have tried the elavil and it is helping me some too. I do hope you give the peppermint oil a try. I know that it does not smell that good but if it helps that pain we can stand it cant we?? Thanks again, Faith :0)
  10. faithinlove

    faithinlove New Member

    thank you so much for your suggestions on what I can do to feel better. I have started taking amatriptaline so maybe this will help me some. I have not yet tried trazadone. If there is any way I can be of help to you just let me know..Thank you and God bless...Faith:0)
  11. faithinlove

    faithinlove New Member

    thank you so much for your response about my post. I have yet to try Trazodone but I wanted to ask you about your RLS, I have that also. Do they ever tell you that FMS and that go together? I just wondered because I have them both as well as CFS. If you ever have anything you wish to ask me, just let me know. God bless and take care.......Faith :0)

  12. faithinlove

    faithinlove New Member

    I have had a sleep study and it showed I do not sleep very well at all. I do not have sleep apnea though. They just told me I do not ever get into a deep sleep pattern. You said you lose your train of thought. Do not feel bad, I think my middle name now is fibrfog...LOL
    God bless you and take care:0) If you ever want to ask me anything feel free and I will also try to help you if I can.Love, Faith:0)
  13. stschn

    stschn New Member

    I've had ME/CFS for 21 years and I thought I'd tried it all even a sleep study that was way off. After some cognitive recovery I went to the research sight here on the board and read what the CFIDS doctors had to say about sleep. 6 of the 9 most respected put Klonopin on the top of the list the 3 that didn't were specialist in FM and I don't remember where it was on their list but go to the top of the page to research,news &articles site and check it out. I found the so few doctors know anything about our situation they did me more harm than good. I am now getting the best sleep I've had in years. All the best, Joyce
  14. rockgor

    rockgor Well-Known Member

    Sorry, I meant Fibrosleep. I am in stage 3 or 4 of Alzheimer's and make lots of goofy mistakes.

    One of my best was when I stepped outside just as it started to rain. I said to my neighbor,
    "Gee, it's raining. Guess I'd better go back and get an elevator."

    And the other day I put the milk away in the cupboard. Etc., etc. One of the interesting
    things I've found out is that Alzheimer's affects not only short term, but long term memory.
    Things I've know for decades (like who wrote a famous book) are now getting hazy.

    Good luck.

  15. daboysone

    daboysone New Member

    What is RSL? I am relatively new to this and not up on the abbreviations yet! I would like to decrease my Trazadone more but right now I am having a hard time of it and alot of stress. Maybe in the next couple of months I could lower it. This message board is a life saver! I realize now that I am not alone and almost feel a bond between all of us.
  16. stschn

    stschn New Member

    If you go to the research, news, articles here I remember reading that one of the Doctors said that Klonopin stopped Alzheimer's. May have been Cheney but I'm not sure.
  17. shari1677

    shari1677 New Member

    faithinlove - have you ever thought about having a sleep study done?

    My doc gave me ZANAFLEX to help me sleep. It seemed to do the trick in the beginning, but now I wake up only after a few hours and I really don't want to take it again.

    I also had a sleep study done and was found to have hypopnea. I was given a CPAP and my fatigue seems to have been cut down quite a bit.
  18. Pansygirl

    Pansygirl New Member

    faithinlove ~ the people here are so supportive , I'm glad I found this site back last summer.

    daboysone ~ RLS is Restless leg syndrome. I have this and it usually happens when
    I'm trying to relax and go to sleep.

    I also was prescribed ambien 10 mg by my doctor for better sleep. That dose kept
    me sleeping through the next morning which was not good. So I tried 5mg and that still
    kept me groggy so I stopped taking it , but I still have it if I were to need it. I have
    kids and I need to be awake in the mornings to get them to school.

  19. Rgonza2

    Rgonza2 New Member

    Hi faithinlove,
    I was on Ambien CR 12.5 for over 3 years and in still couldn't get a whole nights sleep! I started seeing a new doctor two weeks ago and she immediately stopped the Ambien and has me taking 1 pill of Melatonin (3 mg.), one pill of Magnesium Complex (500 mg.) and 3 pills of Tryptophan (500 mg.). I had one nite of not being able to sleep (the first night off of the Ambien) and have slept all thru the night every night since. It has seemed to really work for me, and is all over the counter and is much cheaper the Ambien!!
    Thanks for the peppermint tip, I'm going to give that a try for my muscles in my neck and shoulders!
    Best wishes,