Thanks for posting to my question. I just joined your group today. I would love to keep in touch with someone who feels like I do. I have a wonderful husband, who gets very frustrated and wants me to go see another dr. he keeps saying there has to be a doctor who can help. I have been down every road there is to beat this thing. and I just thank god that I am not bed ridden, although there are day's I could just stay in bed all day. I just keep thinking something has got to work! been ill for 18 yrs. Anybody who wants to communicate please let me know.