Thanx everybody

Discussion in 'Fibromyalgia Main Forum' started by mariac2000, Oct 17, 2002.

  1. mariac2000

    mariac2000 New Member

    i guess I fliped out this morning or something, but you all areright and I am stronger than this and a diagnosis isn't important as long as I know I have people who believe in me, and I know you guys do.If I ever get like this again please give me a firm kick in the ass(one of my body parts that rarely hurts. Although I do have one more gripe today and it's this.. I spent a long time typing out my history, symptoms and meds that I take and have brought it to every drs appt yet not one has looked at it. No wonder they can't diagnose me. I really dolove you guys.

    Maria
  2. mariac2000

    mariac2000 New Member

    i guess I fliped out this morning or something, but you all areright and I am stronger than this and a diagnosis isn't important as long as I know I have people who believe in me, and I know you guys do.If I ever get like this again please give me a firm kick in the ass(one of my body parts that rarely hurts. Although I do have one more gripe today and it's this.. I spent a long time typing out my history, symptoms and meds that I take and have brought it to every drs appt yet not one has looked at it. No wonder they can't diagnose me. I really dolove you guys.

    Maria
  3. stillafreemind

    stillafreemind New Member

    But I will only kick your butt if you promise to kick mine when I need it!<g>

    Know just what you mean about writing everything out! The last doc wanted to know what meds I take..I said none. Then he looked at the supplements..okay, I take quite a few..and then he like gets an attitude. For the life of me .. is there not room for both traditional AND alternative medicine and treatment?

    You have a great day and I will too!
  4. Scoobsmom

    Scoobsmom New Member

  5. ohmyaching

    ohmyaching New Member

    Like you I have never had a diagnosis for my illness. The doctors around here don't believe in CFS. I was told by a doctor 400 miles away who was specializing in CFS that he thought I could have it, but I was too borderline for him to commit to that diagnosis. That was quite awhile ago. Now that there are more tests and more is known about this disease I should probably spend a lot of money and travel to see another specialist for testing, but I know how I feel and I'm sick of arguing with them. A disgnosis would not get me any more support from my doctors than I have now. They don't know about CFS and they don't want to know. It has always bothered me that I have spent alot of my time and my money trying to PROVE to the doctors I was sick. I was made to feel that I had to prove there was something wrong before I was deemed worthy of any consideration and as far as they were concerned people with CFS were just being hysterical. It wasn't enough that I knew how constantly sick and tired and in pain I was. I had to prove it to them, but then I don't look sick and my frequent illnesses were easily attributed to my allergies acting up.
    I know exactly how you feel. It is great to be able to come here for support.

  6. Fairyeyes

    Fairyeyes New Member

    I , too, had the same thing with going thru all the trouble of typing out a list of what ails me, only to have it completely ignored. The last doc I had had me popping pills like candy, and all they did was make me feel worse. (ie- neurontin, zoloft, elavil...). I got so pissed, because he would not give me a referral for a second opinion. Got all high and mighty with me. I told him, "hey, lets just hope you never feel the way I do. I am tired of you telling me this disease is 98 percent mental. ".

    I called around, and explained my situation to several head nurses at several doc offices. I came across a gal who thought her boss would be the right doc for me. I scheduled an interview with him, as though he were a candidate for a job. I not only gave him my list, but sat there and waited while he read thru it. I told him all my concerns(I am of child bearing age, and might like a baby. I don't want drugs swishing thru my bloodstream, an I refuse any more SSRI's).

    Lo and behold, he was a gem! Immediately gave me a rheumatology referral, and also put in a request to have me set up for accupuncture, as well as chiropractic thru the hospital my insurance is with! He told me that he would never claim to be an expert on FMS, and that he also does not believe there is a doc alive who can make that claim. However, he believes that between him, a few other good docs, and me, we can put our heads together and make me feel better- not cured- but better!

    I highly recommend that you interview the nurses over the phone, ask them to be frank. And once you do get some leads on decent docs, set up interviews with them. If their attitude sucks, they are not hired! Remember, they need our business, and we can choose not to give it to them. We are the boss, not the other way around.

    I wish you the best of everything, and hope you act aggressively regarding your health. In this era of HMO's, and kickbacks for cheaping out on patients, it does no good to let them be in charge.


  7. Mikie

    Mikie Moderator

    These guys work for us and if they want to keep their jobs, they need to start paying attention. I like you attitude.

    Love, Mikie

[ advertisement ]