I'm very concerned for us all that soon, CFS and possibly FMS are going to be treated exactly like they are in the UK. I do believe that is the model that our CDC has decided is best for us. I'm not sure that writing letters is going to change this. I highly doubt it. I hate to be so cynical but I feel the need to be realistic. Something has to be done, but I'm afraid most of us are too ill to fight this. I am. I think Sophie Mirza and Ryan Baldwin may represent the future of children and young people with CFS and possibly, severe FMS. I know this is being discussed in other threads but those threads are doing my head in with so much info to scroll through.