The IDSA Controversy

Discussion in 'Lyme Disease Archives' started by mrdad, Jun 11, 2008.

  1. mrdad

    mrdad New Member

    I just found a website that deals with medical issues including, but not limited to Lyme! It has some detailed
    blogs on the IDSA study on Lyme and detailed background.
    "Google" Lyme Disease Activism versus Science. You will come
    upon "Notes from Doctor RW" Restup first Kids! It's a long
    ride, but an informative one me thinks! Affiliated somehow

    I think that controversy is fine as long as it is constructive
    and attempts to attain a "truthful end". Somehow I think
    Scientific Method is secondary oft times to personal agendas!
    Caution:"You are about to enter the unspun zone" I think!?


    [This Message was Edited on 06/11/2008]
  2. mrdad

    mrdad New Member

    I'm another "victim" of all this! It does help to know just

    WHY these folks are so tunnel visioned for "Scientists"?

    Take care my friend.

    Mr Dad

    PS. Where are the other Chicago "Six" friends of yours?
  3. bunnyfluff

    bunnyfluff Member

    I have been Zoned!

    Thanks for the info!

  4. wld285

    wld285 New Member

    The one from New York.
    [This Message was Edited on 06/14/2008]
  5. victoria

    victoria New Member

    all the controversy over lyme. When 'they'/'the establishment' get so adamant about the exact way to treat etc., one just has to get suspicious as we all know how bacteria are constantly evolving and becoming resistant.

    It reminds me an awful lot of how the psycho-school in the UK etc are trying to further their agenda that CF/FM/ME is only treated successfully by psychologists......... and you know they want to lump all the chronic lymies in there too. So watch out.

    It definitely makes me feel like I'm in the twilight zone, color that any way you want! (What color IS the twilight zone anyway?)

    MrDad... how do you feel lyme is interacting with the hemochromatosis?

    all the best,

  6. mrdad

    mrdad New Member

    It's great to see you on the Board today. You know,one reason

    I suspected Lyme disease is that after my iron level was

    approaching normal, my symptoms were even worse, when in

    reality I should had been feeling some substantial improve-

    ment! Even thou Igenex has found that lyme (old Lyme) don't

    think my current FNP thinks I REALLY have it. I have an appt.

    with my Hematologist mid-July and I'm hoping he can refer me

    to a possible specialist at UCSF Hospital. I fear that

    there may be lots of "Catch-22's" popping up over this one!

    As you noted looking at my Igenex results, the CDC may not

    recognize the results as being conclusive in their criteria

    of evaluation. I'm on Medi-Cal disability and they may see

    this as an opportunity to do nothing about the "Lyme"!

    We shall see Victoria. Thanks for the inquiry as I do think

    the two illnesses at this point have little relationship

    beyond some coincidental symptoms. Do hope your Son is doing

    better. It's so awful for young people to have to live

    with this bacterial affliction!

    Best wishes and Huggles!